1. NDAU/NNAP Collaborators Meeting Neena Modi Professor of Neonatal Medicine Imperial College London Vice President, Science & Research Royal College of Paediatrics & Child Health

2. Newborn care is now visible! 2003: Department of Health review; establishment of Neonatal Networks 2006: National Neonatal Audit Programme established 2007: National Audit Office report “Caring for Vulnerable Babies: The reorganisation of neonatal services in England” 2007: Neonatal Data Analysis Unit established 2008: Neonatal Taskforce 2009: Neonatal Toolkit 2010: NICE Quality Standards for Neonatal Specialist Care 2011: National Neonatal Audit Programme funded to 2014

3. Newborn care is leading the way National organisation of delivery National professionally developed dataset National electronic data capture at the point of care, by clinical staff National quality standards, first wave National audit

4. The National Neonatal Audit Programme Lead by the Royal College of Paediatrics & Child Health Commissioned by the Healthcare Quality Improvement Partnership Awarded following a national tendering process Managed by a Project Board, chaired by Dr Michael Watkinson, Consultant Neonatologist, Birmingham Heartlands Hospital Administered by Kim Davis

5. RCPCH Science & Research Department RCPCH Science & Research Department British Paediatric Surveillance Unit Clinical Standards National Audit National Neonatal Audit Programme Epilepsy Reduced Consciousness Children’s Diabetes Clinical Outcome Review Programme Policy Initiatives

6. What is the Neonatal Data Analysis Unit An independent academic unit, launched in 2007, led by a Steering Board An initiative that aims to improve electronic data quality and develop their use to improve clinical care and service planning, and for health services and clinical research Builds on the principal that data should be captured once and should be of high quality

7. NDAU Steering Board Jane AbbottHead of Programmes, Bliss Peter BrocklehurstProfessor of Perinatal Epidemiology & Director, National Perinatal Epidemiology Unit University of Oxford Kate CosteloeProfessor of Paediatrics, Queen Mary University of London Elizabeth DraperProfessor of Perinatal Epidemiology, University of Leicester, Chair, British Association of Perinatal Medicine Data Group Jacquie KempLondon Perinatal Director Azeem MajeedProfessor of Primary Care & Public Health, Imperial College London Neena Modi (Chair)Professor of Neonatal Medicine, Imperial College London Andrew WilkinsonProfessor of Paediatrics, University of Oxford

9. What the NDAU provides Consistency in data management across networks Population-based mortality and morbidity surveillance Benchmarking Case-mix adjusted outcomes Complex outputs Support for quality improvement programmes Support for clinical and health services research Development of new audits and initiatives

10. NDAU: NHS activities NHS Trusts (Caldicott Guardian and Lead Clinician Approval) “NNAP” National Neonatal Audit Programme Royal College of Paediatrics & Child Health National Perinatal Epidemiology Unit “MBRRACE- UK” (Mothers & Babies: Reducing Risk through Audits & Confidential Enquiries across the UK) “Matching Michigan” Reducing line associated bloodstream infection “CHILP” Children’s Infection Linkage Project Neonatal Data Analysis Unit National Neonatal Database National Perinatal Epidemiology Unit NDAU Team Eugene Statnikov, Shalini Santhakumaran, Sridevi Nagarajan, Brad Manktelow, Richard Colquhoun National Patient Safety Agency Health Protection Agency National Patient Safety Agency Health Protection Agency Royal College of Paediatrics & Child Health National Neonatal Database Neonatal Data National Patient Safety Agency Health Protection Agency British Association of Perinatal Medicine NHS Information Centre Development of core dataset to define levels of neonatal care Maternity dataset development support

11. NDAU: Research activities Neonatal Data Analysis Unit NHS Trusts Improving data quality The NDAU team E Statnikov, S Nagarajan, S Santhakumaran Prof Neena Modi Neonatal Data Analysis Unit National Neonatal Database Reliability of NHS two- year outcome assessments Hilary Wong, Prof Deborah Ashby, Dr F Cowan, Dr A Huertas Facilitating clinical trials; NEC surveill’nce Cheryl Battersby, Prof Kate Costeloe Linkage to NHS Records Programme Jo Murray, Prof Azeem Majeed Heath Economics Dimitrios Rothivis, Prof Stavros Petrou Parent Involvement Victoria Foster, Jane Abbott, Prof Alys Young A Preterm Growth Reference Prof Tim Cole, Prof Neena Modi Caldicott Guardian Approval National Information Governance Board, Ethics & Confidentiality Committee Approval NHS Trust R&D Approval National Neonatal Database Research Ethics Approval Project Specific Research Ethics Approval

12. Acknowledgements Contributing Neonatal Units around the country, staff, parents and patients The NNAP and NDAU teams Collaborators, supporters and funders