Patient Information Literature Update

Patient Information During a previous Pan-London Foot Care Network Meeting, the views of the patients echoed those concerns raised by clinicians, in that comprehensive, regulated foot services are needed where everyone, everywhere gets the same standard of care.

“After I’ve been screened and put into one of the risk categories…what then?!” Where the Putting Feet First campaign strives to ensure consistency, transparency and a reduction of inter-practice variability with foot screening, Patients were concerned that there is a lack of the above points when it comes to the resulting advice and information provided and, indeed, how this was passed on to individuals.

Patients were wanting to be provided with information that affected them in their current state and advice to prevent deterioration and “...be provided with the right information at the right time” Patients and clinicians wanted information which was: –Reflective of the outcome of the foot screening –Reliable –Valid –Relevant –Assured –Accurate and Up-to-date –Clear and easy to read

Patients also advised that the information provided needed to be: –Consistent throughout the country, no matter who is performing the screening –Endorsed by trusted, reliable and recognised organisations

Process A review of all available patient information literature was conducted A review of the screening processes employed was also conducted New questions were asked of diabetic patients both with and without a history of active foot problems and patient groups These questions were also asked to Health Care Professionals involved in the management of diabetic patients.

Patient Literature Following a lengthy review of available information from across the country, taking patient and clinician/practitioner views and comments in to consideration, the leaflets developed by the Scottish Foot Action Group mirrored the screening process well, addressed the main areas raised in a clear manner which was easy to read and straight forward.

Action With the consent of the Scottish Foot Action Group, the leaflets were reviewed locally before being put forward to local patients, patient groups and practitioners Feedback received included: - Very good- Inform patients of their risk - Look good- Excellent leaflets - Simple and consistent - Easily readable - Straight forward - Patient friendly

Action (continued…) Patients canvassed expressed concerns: –Information being accessible and available to patients across the country –Reminded of the previously raised point of trying to obtain endorsement/recognition of recognised and trusted bodies to obtain patient confidence, trust and belief in the information given

Action (continued…) This information was shared with patients and clinicians who attended the Pan- London NHS Diabetes meeting in February, In order to obtain feedback from across the country, this information was shared with Trusts throughout the UK

THANK YOU!

Feedback and comments were received from many patients and professionals from various Trusts and Organisations across London and throughout the UK Revisions have been made in the light to the leaflets, which have been forwarded on to various organisations for consideration

The following accreditation has been received: –Diabetes UK –The College of Podiatry –NHS Diabetes –NHS Scotland –Scottish Diabetes Foot Action Group –DISN UK Group –Diabetes Modernisation Initiative –NHS Wales Diabetes and Endocrinology National Specialist Advisory Group –Welsh Endocrine and Diabetes Society –Primary Care Diabetes Society –TREND-UK

The leaflets are currently being reviewed by the following: –Association of British Clinical Diabetologists –Royal College of General Practitioners (RCGP) –Royal College of Nursing (RCN)

Forward Planning To further reduce variability of information available for patients, the Circulation Foundation are looking in to a collaborative approach for the generation of information leaflets relating to diabetes and peripheral arterial disease.

Forward Planning (Cont’d) Diabetic Foot Forum –Concentrating on the difficult problem of the Diabetic Ischaemic Foot Monday 9 th December (afternoon)

Forward Planning (Cont’d) Medicine and Me: –Living with Diabetic Eye Disease Royal Society of Medicine March 2014

Forward Planning (Cont’d) Diabetic Foot and Lower Limb Care for the 21st Century: What every patient has the right to expect Saturday 10 th May, 2014 Diabetic Foot Master Class Friday 13 th June, 2014

Thank you.