Self-Report of Functional Status and Quality of Life: Children Susan K. Parsons, MD, MRP Director, Center on Child and Family Outcomes, ICRHPS Tufts-NEMC.

Slides:

Advertisements

Similar presentations

The Ohio Mental Health Consumer Outcomes System A Training for Family Members Prepared by Velma Beale, M.A. NAMI Ohio For the Ohio Department of Mental.

Advertisements

1 National Outcomes and Casemix Collection Training Workshop Strengths and Difficulties Questionnaire.

Pediatric Chronic Pain and Differences in Parental Health-Related Quality of Life Gustavo R. Medrano¹, Susan T. Heinze¹, Keri R. Hainsworth 2,3, Steven.

Is Caregiver Depression Associated with Children’s ADHD Symptoms and Overall Functioning? Randi Scott SUMR Final Presentation August 07, 2008.

TEMPLATE DESIGN © Limited Health Literacy is Common in Former Prison Inmates Mim Ari, MD 1, Joel M. Hirsh, MD 2, Brenda.

Chronic GVHD Symptoms Sandra A. Mitchell, CRNP, M.Sc.N., AOCN

1 Epoetin Alpha: FDA Overview of Patient Reported Outcome (PRO) Claims Ann Marie Trentacosti, M.D. Study Endpoints and Labeling Office of New Drugs Food.

Putting it All Together: Tools for Documenting Chronic GVHD Response Assessment Sandra A. Mitchell, CRNP, M.Sc.N., AOCN National Institutes of Health Bethesda,

1 The Child and Family Traumatic Stress Intervention A family based model for early intervention and secondary prevention Steven Berkowitz, M.D. Steven.

Massachusetts Massachusetts Medical Orders for Medical Orders for Life-Sustaining Life-Sustaining Treatment Treatment “MOLST Overview for Health Professionals”

Why Patient-Reported Outcomes Are Important: Growing Implications and Applications for Rheumatologists Ron D. Hays, Ph.D. UCLA Department of Medicine RAND.

CRS Zambia ICT4D Conferences Warren Lambert. Who is VP Health? VP Health is a software company that specializes in the provision of software applications.

Lesson Eight Standardized Test. Contents Components of a Standardized test Reasons for the Name “Standardized” Reasons for Using a Standardized Test Scaling.

Cross-Cultural Use of Measurements: Development of the Chinese SF-36 Health Survey Xinhua S. Ren, Ph.D. Boston University School of Public Health, Boston,

Decreasing the high level of childhood obesity How is weight measured? BMI = Body Mass Index Overweight Obesity CONCERNS:  12% of normal weight teenagers.

Mosby items and derived items © 2005 by Mosby, Inc. Chapter 41 Sleep.

Trend in Use of Day Care Facilities. trends/worktrends2_3.pdf trends/worktrends2_3.pdf.

Objective Measures of Physical Performance in Chronic GVHD: Pediatrics David A. Jacobsohn, M.D. Kimberly E. Thormann, M.A., CPNP Children’s Memorial Hospital.

Self-Report Measures of Functional Status and Quality of Life: Adults Sandra A. Mitchell, CRNP, M.Sc.N., AOCN National Institutes of Health Bethesda, MD.

Illinois Medical Home Project Presented by Kathy Sanabria, MBA, PMP Project Director.

An evaluation of mental health literacy learning for Bachelor of Education students: Mental Health Day 2014 Susan Rodger, Western University, Karen Weston,

1 8/14/2015 Evaluating the Significance of Health-Related Quality of Life Change in Individual Patients Ron Hays October 8, 2004 UCLA GIM/HSR.

® Introduction Mental Health Predictors of Pain and Function in Patients with Chronic Low Back Pain Olivia D. Lara, K. Ashok Kumar MD FRCS Sandra Burge,

Perspective in pediatric nursing

Assessing Chronic Illness Care in Prison (ACIC-P): A Tool for Tracking Chronic Illness Care in Prison Emily Wang, M.D., MAS Yale University School of Medicine.

National Outcomes and Casemix Collection Training Workshop

1 Hearing the Voices of the Children Measuring Pediatric Health-Related Quality of Life from the Perspective of the Children and Their Parents Quantifying.

Using Interactive Multimedia to Teach Parent Advocacy Skills.

November 10, 2010 Statewide Conference Call Healthy Children, Healthy Weights Curriculum provided in cooperation with Columbus Public Health. Funding provided.

Some Approaches to Evaluation: A Focus on Outcomes Assoc Prof Jan Sansoni Australian Health Outcomes Collaboration Australian Health Services Research.

Mental Health Program Evaluation Template MHPET ONLINE.

Presented By: Trish Gann, LPC

Selection of a Survey Instrument for a Heart Failure Disease Management Study Lee R. Goldberg, MD, MPH Heart Failure/Transplant program University of Pennsylvania.

FDA Approach to Review of Outcome Measures for Drug Approval and Labeling: Content Validity Initiative on Methods, Measurement, and Pain Assessment in.

Assessment of Risk and Protective Factors. What assessment tools is your SBHC using???

Assessment of Risk and Protective Factors. What assessment tools is your SBHC using???

Quality of Life in People with and at Risk for Type 2 Diabetes: Findings from the Study to Help Improve Early Evaluation and Management of Risk Factors.

+ The Grow Clinic Evaluation Plan Julia Hilbrands PH 221 March 11, 2015.

Survey Updates and Quality Improvement Resources Julie A. Brown, RAND Corporation AHRQ 2012 Annual Conference Bethesda, MD September 9, 2012.

#1 STATISTICS 542 Intro to Clinical Trials Quality of Life Assessment.

Georgetown University National Technical Assistance Center for Children’s Mental Health 1.

Lecture 6: Reliability and validity of scales (cont) 1. In relation to scales, define the following terms: - Content validity - Criterion validity (concurrent.

Copyright © 2015 McGraw-Hill Education. All rights reserved. No reproduction or distribution without the prior written consent of McGraw-Hill Education.

From Blue to You Depression in Children and Adolescents.

Introduction to the Patient-Reported Outcomes Measurement Information System (PROMIS) UCLA Center for East-West Medicine 2428 Santa Monica Blvd., Suite.

Presented By: Mohammed Al-Issa. Objectives of the Study To assess the degree of satisfaction among dialysis patients in their dialytic therapy. To assess.

Erickson’s Theory of Psychosocial Development

RNSG 1163 Summer Qe8cR4Jl10.

Hermann P. G. Schneider, Alastair H. MacLennan and David Feeny

CHILDREN & YOUNG PEOPLE’S DIRECTORATE Director of Children & Young People/Executive Director of Social Work Assistant Director Corporate Parenting Assistant.

Are Young Adolescents’ Social and Emotional Skills Protective Are Young Adolescents’ Social and Emotional Skills Protective Against Involvement in Bullying.

Whose Life is it Anyway? Proxy v. Self reported quality of life in Childhood Cancer Survivors Penney Upton.

Mental health needs in Louisiana schools following Hurricane Katrina Academy Health June 3, 2007 Paula A. Madrid, Psy.D. Director, The Resiliency Program.

Amy Houtrow, MD, PhD, MPH No relevant disclosures

ULTIMA*DCF for children and adolescents clinics and hospitals.

Quality of Life (QOL) & Patient Reported Outcomes (PRO) Lori Minasian, MD Chief, Community Oncology and Prevention Trials Research Group, DCP, NCI, NIH,

Dyadic Patterns of Parental Perceptions of Health- Related Quality of Life Gustavo R. Medrano & W. Hobart Davies University of Wisconsin-Milwaukee Pediatric.

Use of mental health services by U.S. children, 2005* Gloria A. Simpson Robin A. Cohen Patricia N. Pastor Cynthia A. Reuben *Findings are based on the.

Report on the NCSEAM Part C Family Survey Batya Elbaum, Ph.D. National Center for Special Education Accountability Monitoring February 2005.

How to select child care Advice of a friend Cost Location Type of program Call the Director Tour facility during operation Ask about staff experience and.

EARLY CHILDHOOD CONSULTATION PARTNERSHIP A COLLABORATION BETWEEN ADVANCED BEHAVIORAL HEALTH & THE THE DEPARTMENT OF CHILDREN AND FAMILIES. FUNDED BY THE.

PT 142 – Assessment in Physical Therapy Prepared by: Almira A. Tagala-Manuel, PTRP Prepared by ATM for PT 142 students AY

Stanford Chronic Disease Self-Management Program.

The Impact of Lifestyle Modification on the Health-Related Quality of Life of Patients With Reflux Esophagitis Receiving Treatment With a Proton Pump Inhibitor.

Health Related Quality of Life after serious occupational injuries and long term disability Presenter: Ibishi Nazmie MD,PhD University Clinical Center.

Patient Baseline Assessment

Development of an electronic personal assessment questionnaire to capture the impact of living with a vascular condition: ePAQ-VAS Patrick Phillips, Elizabeth.

Stephanie J. Lee, Loretta A. Williams

Stephanie J. Lee, Loretta A. Williams

Interreg-IPA Cross-border Cooperation Programme Romania-Serbia

Presentation transcript:

Self-Report of Functional Status and Quality of Life: Children Susan K. Parsons, MD, MRP Director, Center on Child and Family Outcomes, ICRHPS Tufts-NEMC Boston, Massachusetts

Why Measure Impact? Improved understanding of the impact of chronic GVHD will contribute to better supportive care. Information on disease impact can inform the evaluation of new therapies. Information on disease and treatment impact can inform decision making.

How Do We Measure Impact? Symptoms scales: –What symptoms are they having? Patient/proxy-reported functional status and quality of life: –Performance: What are they doing? –Health-related quality of life: How are they doing? Objective measures of physical performance: –Physical performance: What can they do? –End organ functional capacity (e.g., PFTs)

Self-Reported Outcome Measures Lee Chronic GVHD Symptom Scale Activities Scale for Kids (ASK) Child Health Ratings Inventories (CHRIs)

Activities Scale for Kids (ASK) Evaluates physical performance and ADL (e.g., personal care, dressing, eating) 30-item, self-report measure for children aged 5–15 years Younger children may complete with assistance from parents

Child Health Ratings Inventories (CHRIs) Health Related Quality of Life (HRQOL) instrument, originally developed for children with chronic disease Two self-report age-based versions: –School-aged: 5–2 years –Adolescent: 13–21 years Age-based modifications: –School-aged version: pictorial response scale; computer animated –Adolescent: text based; web-based tool under evaluation Parent proxy versions with parallel content

CHRIs Components 20-item general health module: CHRIs-General –Physical functioning –Role functioning –Emotional functioning –Energy 10-item transplant-specific module:CHRIs-HSCT –Hassles –Distress –Body image Reference period: past week Generate domain scores, scaled from (worst- best)

CHRIs Administration Patients (8–18 years of age) and parents Parent only in the 5–7-year age group Children 8–12 complete CHRIs-General and CHRS-HSCT on laptop computer All other measures paper and pencil mode Assistance from research/clinical staff only