Prostate Cancer Support Federation Charity Nº: We have no national screening programme for the most common cancer in men and the only test we have can suffer from poor sensitivity and specificity Management decisions on treatment are personal and can be complex. E.g. over-diagnosis, over-treatment, use of MRI, biopsies Primary care awareness still needs to be improved Availability of drugs for advanced prostate cancer is a real issue Emerging best practice needs to be better reflected in NICE guidelines Side effects of treatment are not universally well managed (continence, ED, emotional, psychological problems) Patient Observations

Prostate Cancer Support Federation Charity Nº: My Gold Standard Pathway Risk Assessment & Referral Shared Decision Making Diagnosis Information & Support Access to Treatment Non-curative Care Shared Care Supported Self Management Access to Specialist MDT

Prostate Cancer Support Federation Charity Nº: My Gold Standard Pathway My symptoms and concerns have been taken seriously, and if I am at risk of prostate cancer it will be diagnosed sufficiently early to give me the best possible outcome. I will receive the most effective diagnostic options for my condition to be accurately graded and staged no matter where I live. My treatment options, whilst primarily driven by clinical expertise, take into consideration my personal circumstances and preferences. I feel comfortable with the information presented for me to make an informed decision on my treatment. I will have access to treatments offering me the best chance of controlling my cancer and that gives me the best quality of life regardless of where I live. I have a personalised care plan that provides me with a ‘roadmap’ of what lies ahead. I understand the process for reviewing it with my CNS. My ongoing care will include access to any specialist services or support that I and/or my partner will require. This should give me the best chance of returning to ‘normal’ either after my treatment or whilst living with my cancer. I have the opportunity to take control of my condition and treatment, while still being supported by appropriate medical experts. I see evidence of joined-up thinking in the ongoing support and advice I receive, irrespective of who I need to contact. I have access to all the services that will help me achieve the best quality of life at this time, enabling me to come to terms with situations that I have never had to face before. This means I don’t have to wait until I need end of life care to get the help that I need now.