EPE C for VE T E R A N S EPE C for VE T E R A N S Education in Palliative and End-of-life Care for Veterans is a collaborative effort between the Department.

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EPE C for VE T E R A N S EPE C for VE T E R A N S Education in Palliative and End-of-life Care for Veterans is a collaborative effort between the Department of Veterans Affairs and EPEC ® Module 13 Responding to Requests to Hasten Death

Define physician-assisted suicide (PAS) and euthanasia Describe their current status in the law Identify root causes of suffering that prompt requests Use a 6-step protocol for responding to requests Objectives

Clinical case

Trying to ask for help Fear of psychosocial, mental suffering future suffering, loss of control, indignity, being a burden Depression Physical suffering Why Veterans ask for hastened death

Euthanasia and physician- assisted suicide Aiding or causing a suffering person’s death physician-assisted suicide clinician provides the means, Veteran acts euthanasia clinician performs the intervention Many clinicians receive a request Requests are a sign of Veteran crisis

The legal and ethical debate... Principles obligation to relieve pain and suffering respect decisions to forgo life-sustaining treatment

... The legal and ethical debate PAS illegal in all states except Oregon and Washington (as of 2010) Although PAS is legal in Oregon and Washington, it is not legal within VA facilities, which function under federal jurisdiction Supreme Court Justices supported right to palliative care

6-step protocol to respond to requests Clarify the request 2. Assess the underlying causes of the request 3. Affirm your commitment to care for the Veteran

4. Address the root causes of the request 5. Educate the Veteran 6. Consult with colleagues... 6-step protocol to respond to requests

Immediate, compassionate response Open-ended questions Ask about suicidal thoughts, plans Be aware of personal biases potential for countertransference Step 1: Clarify the request

Step 2: Assess underlying reasons The 4 dimensions of suffering physical psychological social spiritual Particular focus on fears about the future depression, anxiety

Step 3: Affirm your commitment Listen, acknowledge feelings, fears Explain your role Reassure you will continue to be clinician throughout care Commit to help find solutions Explore current concerns

Step 4: Address root causes Provide professional competence in: withholding, withdrawal aggressive comfort measures palliative care principles local palliative care programs Address suffering, fears

Address physical suffering Pain Breathlessness Anorexia/cachexia Weakness/fatigue Loss of function Nausea / vomiting Constipation Dehydration Edema Incontinence

Address psychological suffering Treat depression anxiety delirium Individual, group counseling Specialty referral as appropriate

Psychosocial suffering, practical concerns... Sense of shame Not feeling wanted Loss of function self-image control, independence

... Psychosocial suffering, practical concerns Tension with relationships Increased isolation Worries about practical matters who caregivers will be how domestic, financial, or legal responsibilities will be dealt with who will care for dependents, pets

Address spiritual suffering Consult chaplain, psychiatrist, psychologist Try to use Veteran’s own community Discuss issues of prayer meaning, purpose in life life closure gift giving, legacies Cultivate Veteran’s own unique coping skills

Address fear of loss of control... Explore areas of control, independence Right to determine one’s own medical care accept or refuse any medical intervention life-sustaining therapies

... Address fear of loss of control Select personal advocate(s) proxy for decision-making Prepare advance directives Make a commitment to help Veteran maintain as much control as possible

Address fear of being a burden Establish specifics worry about caregiving family willing alternate settings worry about finances resources, services available Refer to a social worker

Address fear of indignity Discuss what indignity means to the individual dependence, burden, embarrassment Importance of control Explore resources to maintain dignity Reassure Veteran of non- abandonment

Address fear of abandonment Assurance that clinician will continue to be involved in care Resources provided by hospice and palliative care

Step 5: Educate Refusal of interventions Declining oral intake Sedation

Decline oral intake Accept / decline artificial hydration, nutrition Educate Veteran and family caregivers refocus their need to give care possibility of declining oral intake force-feeding not appropriate ensure favorite foods available artificial nutrition / hydration often not helpful

Palliative sedation... When symptoms are intractable at the end of life Continuous, intermittent Death attributed to illness, not sedation

... Palliative sedation Benzodiazepines Anesthetics Barbiturates Continue analgesics

Step 6: Consult with colleagues Seek support from trusted colleagues Reasons for reluctance to consult

Summary