September 14, 2012 Freeport, Maine

In the Interim Introductions & Context The First 100 Days From the Trenches 1:00 – 1:15 PM

Becca Family Member & Volunteer Degree in Special Education Children’s Community Case Management Intern Community Support Program Manager – Young Adults Sharon Parent Degree in Criminal Justice Children’s Community Case Manager

Families whose children have been diagnosed in the last 6 months may request a complimentary hard copy of the 100 Day Kit or the AS/HFA Tool Kit by calling 888- AUTISM2 ( ) and speaking with an Autism Response Team Coordinator. *Note: We are unable to ship kits internationally. Pgs 17 – 18: 15 Tips for Parents & Families (Coping) Pgs 35 – 36: Assembling Your Team Pg 42 - : Week-by-Week Action Plan Pg 48: 1 pager with ideas for “purposeful play” Pgs 54-56: Service Provider Planner Pg 63: Assessment Tracking Log Pgs 17 – 18: 15 Tips for Parents & Families (Coping) Pgs 35 – 36: Assembling Your Team Pg 42 - : Week-by- Week Action Plan Pg 48: 1 pager with ideas for “purposeful play” Pgs 54-56: Service Provider Planner Pg 63: Assessment Tracking Log

The “referral” has been made.... now what? THE WEB Online Support Groups BlogsFacebook COMMUNITY Local YMCA/play groups After-school program Recreation 1:1 with another parent AT WORK Suggest parent talk to their employer – be proactive. AT HOME Parent Self- Care Plan Pt Self- management resources Referral to formal supports

 Be careful what you say we will “never” do. Never was the worst word for my mom to hear.  I remember my mom always on the phone. I think she needed to talk to someone, a lot.  I know I was a heavy kid, now I’m not saying fat, just heavy. It wasn’t until I was in my 20s that my doctor said something. Just ‘cause I have MR, don’t ignore my other stuff.

September 14, 2012 Freeport, Maine