Interacting with People with an Intellectual and Developmental Disability (ID/DD) Presented by: APS Healthcare Southwestern PA Health Care Quality Unit (APS HCQU) April 2011 cjp

Disclaimer Information or education provided by the HCQU is not intended to replace medical advice from the consumer’s personal care physician, existing facility policy or federal, state and local regulations/codes within the agency jurisdiction. The information provided is not all inclusive of the topic presented. Certificates for training hours will only be awarded to those who attend a training in its entirety. Attendees are responsible for submitting paperwork to their respective agencies. Standard APS disclaimers 2

Note of Clarification While mental retardation (MR) is still recognized as a clinical diagnosis, in an effort to support the work of self-advocates, the APS SW PA HCQU will be using the terms intellectual and/or developmental disability (ID/DD) to replace mental retardation (MR) when feasible.

Objectives Learn tips for communicating with individuals with an Intellectual and Developmental Disability (ID/DD). Connect with personal feelings regarding people with ID/DD and learn how these feelings may influence interactions with this population. 4

Definition of Intellectual Disability Disability characterized by significant limitations both in intellectual functioning and adaptive behavior as expressed in adaptive skills in these areas: Conceptual Social Practical Originates before age 18. American Association on Intellectual and Developmental Disabilities

Diagnostic Criteria Sub-average intellectual functioning (IQ <70) Impairment in at least two areas of adaptive functioning Skills that people possess so they can function in their everyday lives Onset before age 18, and before 22nd birthday in the state of PA

Historical Treatment of People with ID/DD Separated from the rest of society Institutionalization Social reform issue Provided the opportunity to live in the community

ID/DD: Terminology “Words Do Matter” Intellectual and Developmental Disability (ID/DD) versus Mental Retardation (MR) “Words Do Matter”

Myths About People with Intellectual Disability… The eternal child Cannot learn Need to be protected Want to be fixed Do not require relationships Are not capable of living meaningful lives

Challenging Behaviors Form of communication Research has shown that 75% of the time, when a challenging behavior is present in a person with ID/DD, there is an untreated medical problem.

Systems of Support: Living Arrangements At home with family Lifesharing with someone not related to them Independently with supports Community homes Intermediate Care Facilities (ICFs)

People First Language Recognize the person first - before his or her disability Realize that words have the power to inspire or hurt people

ACTIVITY: DESCRIBE YOURSELF

Examples of People First Language SAY DO NOT SAY Person with a disability Disabled, handicapped He has Down Syndrome He’s a Down’s boy, or the Down’s boy He uses a wheelchair Confined to a wheelchair Person with a physical disability Crippled person, quadriplegic

Positive Approaches Positive Approaches is a worldview, a movement, in which all individuals are treated with dignity and respect. Positive Approaches invites us to work in collaboration and in a spirit of openness, honesty and equality.

Communication Considerations Speak directly to the person Explain in simple terms Avoid complex and abstract terms or concepts 18 second rule Listen Give 18 seconds for person to answer Repetition / Consistency Communication partners Adaptive communication Sign Language / Communication Technology Always use People First Language

Interactions With People Who Use Wheelchairs Speak to person directly Talk normally Look beyond the chair

SCENARIOS FOR DISCUSSION

What A Person With ID/DD Wants You To Know They are people like everyone else. They deserve respect. They have feelings, hopes, and dreams. They feel pain. They can learn new things. They enjoy meeting others.

References Caring for People with I-DD: An Introduction, (January, 2010), APS Healthcare SWPA HCQU Power Point.. Retrieved, May 2011. Communication at the Bedside, (August 2010), APS Healthcare SWPA HCQU Power Point. Retrieved April, 2011. Emergency Department: Caring for Patients with ID/DD (Clinical), (April, 2011), SWPA HCQU Power Point. Retrieved April, 2011. ID/DD Overview. (March 2010), APS Healthcare SWPA HCQU Power Point. Retrieved May, 2011. Understanding the Needs of People with ID/DD in Your Workplace, (October 2010), APS Healthcare SWPA HCQU Power Point. Retrieved May, 2011.

To register for future trainings, or for more information on this or any other physical or behavioral health topic, please visit our website at www.hcqu.apshealthcare.com Last slide 21

22

Evaluation Please take a few moments to complete the evaluation form found in the back of your packets. Thank You!