Setting the context Christine Lenehan Director CDC

Key policy developments Edward Timpson MP appointed Parliamentary Undersecretary of State (Children and Families); Dr Dan Poulter appointed at DH Draft legislation published for pre-legislative scrutiny in September 2012; Children and Young People’s Health Outcomes Forum submitted its recommendations to the Secretary of State for Health in July (including on children with disabilities and long term conditions) Changes to safeguarding guidance: Department reviewing responses to consultation on revised statutory guidance Working Together to Safeguard Children and Managing Cases: Framework for the Assessment of Children in Need and their Families.

Draft legislation - key highlights New requirement for local authorities, health and care services to commission services jointly, to ensure that the needs of disabled children and young people and those with SEN are met. LAs to publish a clear, transparent ‘local offer’ of services, so parents and young people can understand what is available. More streamlined assessment process, which integrates education, health and care services, and involves children and young people and their families. New 0-25 Education, Health and Care Plan, replacing the current system of Statements and Learning Difficulty Assessments, which reflects the child or young person’s aspirations for the future, as well as their current needs. Option of a personal budget for families and young people with a Plan, New statutory protections for young people aged 16-25 in FE and a stronger focus on preparing for adulthood. Academies, Free Schools, Further Education and Sixth Form colleges to have the same SEN duties as maintained schools.

Timetable for legislative reform (indicative) Allows the provisions to be informed and improved by the views and evidence of stakeholders, and to continue to learn from the experience of the Pathfinders September to December 2012 Period of pre-legislative scrutiny led by the Education Select Committee Early 2013 Children and Families Bill introduced into Parliament. December 2012 Education Select Committee publishes a report of its findings From now until Enactment: 1996 Education Act and current Code of Practice still applies Transition arrangements will be clarified by DfE September 2014 Implementation of provisions (meeting original Green Paper commitment to have reforms in place by 2014) Spring 2014 Royal Assent (subject to Parliamentary process) Early 2013 Draft Regulations and a Draft Code of Practice published for consultation, informed by pathfinder learning.

Aligning the legislative frameworks Health and Social Care Act 2012 Care and Support Bill SEND provisions Integration duty on NHS CB. CCGs and Monitor Duty on LAs to ensure integration of care and support services with health services Duty on LAs to ensure integration of special educational provision with health and social care provision Enhanced JSNA and new Joint health and wellbeing strategy Joint commissioning arrangements Transition clauses

Pathfinder update: Purpose of the Pathfinders The 20 SEND pathfinders (representing 31 LAs and their Health partners) are working towards the following common objectives: Develop a new 0-25 assessment process and a single plan which bring together the education, health and social care services on which children and young people who are disabled or have SEN and their families rely and focuses on improving outcomes; Explore how the voluntary and community sector could ensure access to specialist expertise and introduce more independence to the process; Ensure the full engagement of children, young people and their parents and families, schools and colleges; and Improve choice and control for children, young people and their families through the use of personal budgets and direct payments.

Evaluation - early findings Good progress has been made in setting up partnerships and engaging families A range of approaches to the single assessment process, from bringing together the results of specialist, separate assessments to a single assessment event. The greatest focus so far has been on a single planning process. More family and young person centred processes are in place, using keyworking to improve communications The capacity of health, education and VCS to engage remains a concern in some areas A challenge remains about how to scale up approaches to a whole area in a sustainable way e.g. key working

Children and young people’s health outcomes strategy Secretary of State for Health established an independent Forum to deliver the following key outputs: identification of the health outcomes which matter most for children and young people, how well these are supported by the existing indicators in the Public Health and NHS Outcomes Frameworks and; how the different parts of the health (and wider system) will contribute and work together in the delivery of those outcomes.

Children & Young People’s Health Outcomes Strategy – Key messages from Children & Young People From the engagement already undertaken with CYP a number of key issues that they want the Strategy to address have emerged. Better access to child friendly information Care by professionals who have had training in working with CYP Care to be in environments which are appropriate to their age and needs Appropriate and efficient system for transfer from child to adult services CYP want to have a say and be listened to in decisions about their health and take a lead where able

The ambitions behind the health reforms for children and young people Children, young people and their families are always involved in decisions about their care. Where there is informed, expert, clinical knowledge underpinning the commissioning of integrated services across primary, secondary and tertiary care, social care and wider services. Where there is a strong focus on outcomes and reducing health inequalities. Where the focus on promoting good health is of equal importance to caring for those who are ill. Where the use of evidenced based treatment is adopted across the life course. Firstly the opportunities radical reform of the health system provides to overcome some of the well evidenced problems with the existing system

Sub Groups The Forum set up 4 subgroups. One subgroup looked at long term conditions, disability and palliative care. Subgroup co-chairs – Colin Green, Director, Children, Learning & Young People, Coventry City Council Gillian Baird OBE, Paeditrician, Guy’s Hospital, London

Subgroup’s report Subgroup report published with Forum report in July. Recommendations include – New indicators in the NHS Outcome, Public Health and Commissioning Outcome Frameworks on - the time to receive a definitive diagnosis from first presentation or contact with NHS services, the provision of integrated care for children and young people with a long-term condition or disability, and ensuring effective and healthy transitions between child and adult services.

Next Steps Forum report being used as a basis for compiling the Children and Young People’s Health Outcomes Strategy. Discussions under way with organisations that have an interest in and responsibility for improved health outcomes for children and young people on agreeing their commitments to meeting the Strategy’s objectives. Strategy due to published this Autumn.