State Developmental Disabilities Councils

DDCs Jennifer G. Johnson, Ed.D., Supervisor Jennifer G. Johnson, Ed.D., Supervisor – Team Members Team Members Lisa Kennedy- Oksala Program Specialist hhs.gov hhs.gov Sara Newell Program Specialist

DDCs Contribute to a system that is: Contribute to a system that is: –Coordinated –Comprehensive –Consumer and family centered –Consumer and family directed –Includes needed community services, individualized supports, other forms of assistance that promote self- determination

Council Membership Appointed by the Governor after soliciting recommendations Appointed by the Governor after soliciting recommendations Council may coordinate Council and public input to Governor Council may coordinate Council and public input to Governor Members must be representative of the State: Members must be representative of the State: –geographically –Racial and ethnic diversity Membership must be rotated Membership must be rotated

Council Membership Not less than 60% are r epresentatives of Individuals with Developmental Disabilities : Not less than 60% are r epresentatives of Individuals with Developmental Disabilities : –Individuals with developmental disabilities –Parents or guardians of children with developmental disabilities –Immediate relatives or guardians of adults with mentally impairing developmental disabilities

Council Membership Of the 60% representing individuals with developmental disabilities: Of the 60% representing individuals with developmental disabilities: –1/3 must individuals with developmental disabilities –1/3 parents or guardians –1/3 combination

Council Membership Institutional representation: Institutional representation: –Of the members representing individuals with developmental disabilities, at least 1 shall be: an immediate relative or an immediate relative or guardian of or guardian of or an individual with a developmental disability an individual with a developmental disability who resides or previously resided in an institution

Representation of Agencies and Organizations Representatives of state entities including Rehabilitation Act, IDEA, Older American Act of 1965, titles V and XIX of the Social Security Act. Representatives of state entities including Rehabilitation Act, IDEA, Older American Act of 1965, titles V and XIX of the Social Security Act. Centers in the State Centers in the State P&A system P&A system Local & nongovernmental agencies, and private nonprofit groups Local & nongovernmental agencies, and private nonprofit groups

Council responsibilities A Council, through Council members, staff, consultants, contractors, or subgrantees, has specific responsibilities for serving as an advocate for individuals with developmental disabilities and conducting or supporting programs, projects, and activities that carry out the purpose of the DD Act

Council responsibilities: State Plan Development Developing the State Plan, which Developing the State Plan, which –Is a 5-year strategic plan –Provides for the establishment and maintenance of the Council –Identifies the agency or office within the State designated to support the Council –Describes the results of a comprehensive review and analysis

Council responsibilities: Comprehensive Review and Analysis A description of the services, supports, and other assistance being provided to individuals with developmental disabilities and their families including- A description of the services, supports, and other assistance being provided to individuals with developmental disabilities and their families including- –medical assistance, maternal and child health care, services for children with special health care needs, children's mental health services, comprehensive health and mental health services, and institutional care options; –job training, job placement, worksite accommodation, and vocational rehabilitation, and other work assistance programs; and –social, child welfare, aging, independent living, and rehabilitation and assistive technology services

Council responsibilities: Comprehensive Review and Analysis An analysis of the extent to which community services and opportunities related to the areas of emphasis directly benefit individuals with developmental disabilities, to participate in opportunities, activities, and events offered in their communities, and to contribute to community life, identifying particularly- An analysis of the extent to which community services and opportunities related to the areas of emphasis directly benefit individuals with developmental disabilities, to participate in opportunities, activities, and events offered in their communities, and to contribute to community life, identifying particularly- –the degree of support for individuals with developmental disabilities that are attributable to either physical impairment, mental impairment, or a combination of physical and mental impairments; –criteria for eligibility for services, including specialized services and special adaptation of generic services provided by agencies within the State, that may exclude individuals with developmental disabilities from receiving services described in this clause; –the barriers that impede full participation of members of unserved and underserved groups of individuals with developmental disabilities and their families;

Council responsibilities: Comprehensive Review and Analysis –the availability of assistive technology, assistive technology services, or rehabilitation technology, or information about assistive technology, assistive technology services, or rehabilitation technology to individuals with developmental disabilities; –the numbers of individuals with developmental disabilities on waiting lists for services; –a description of the adequacy of current resources and projected availability of future resources to fund services; –a description of the adequacy of health care and other services, supports, and assistance that individuals with developmental disabilities who are in facilities receive; and –a description of the adequacy of health care and other services, supports, and assistance that individuals with developmental disabilities who are served through home and community-based waivers receive

Council responsibilities: Comprehensive Review and Analysis A description of how the P&A and UCEDD, through interagency agreements or other mechanisms, collaborated with the DDC, each other, and other entities to contribute to the achievement of the purpose of the DD Act; and A description of how the P&A and UCEDD, through interagency agreements or other mechanisms, collaborated with the DDC, each other, and other entities to contribute to the achievement of the purpose of the DD Act; and The rationale for the goals related to advocacy, capacity building, and systemic change to be undertaken by the Council to contribute to the achievement of the purpose of the DD Act. The rationale for the goals related to advocacy, capacity building, and systemic change to be undertaken by the Council to contribute to the achievement of the purpose of the DD Act.

Council responsibilities: State Plan Goals Developed through data driven strategic planning and derived from the unmet needs of individuals with developmental disabilities and their families identified under the CRA Developed through data driven strategic planning and derived from the unmet needs of individuals with developmental disabilities and their families identified under the CRA

Council responsibilities: Self-advocacy goal For each year of the grant, to- For each year of the grant, to- –establish or strengthen a program for the direct funding of a State self-advocacy organization led by individuals with developmental disabilities; –support opportunities for individuals with developmental disabilities who are considered leaders to provide leadership training to individuals with developmental disabilities who may become leaders; and –support and expand participation of individuals with developmental disabilities in cross-disability and culturally diverse leadership coalitions;

Council Responsibilities: State Plan Implementation Implement the State plan by conducting and supporting advocacy, capacity building, and systemic change activities such as Implement the State plan by conducting and supporting advocacy, capacity building, and systemic change activities such as –Outreach –Training –Technical assistance –Supporting & educating communities –Interagency collaboration & coordination –Coordination with related councils, committees & programs –Barriers elimination, systems design and redesign –Coalition development & citizen participation –Informing policymakers –Demonstration of new approaches to services and supports –Other activities

ADD Funding FY 2009 Funding = $74.3 million FY 2009 Funding = $74.3 million Funds distributed based on formula Funds distributed based on formula Minimum allotment States Minimum allotment States

Use of Funds 70% on activities related to goals 70% on activities related to goals Supplement, not supplant, non-Federal funds Supplement, not supplant, non-Federal funds Complement and augment services rather than duplicate Complement and augment services rather than duplicate Available to public or private entities Available to public or private entities 5%/$50,000 for functions of DSA 5%/$50,000 for functions of DSA Not more than 20% to DSA for service demonstrations Not more than 20% to DSA for service demonstrations

Designated State Agency Provide required assurances and supports to Council Provide required assurances and supports to Council Council can be its own DSA Council can be its own DSA Fiscal responsibilities: Fiscal responsibilities: –receive, account for & disburse funds –fiscal control & fund accounting procedures Records, Access, & Financial Reports Non-federal Share Assurances Memorandum of Understanding