“We acknowledge the traditional owners of this Land, the Nyungar people, and pay respect to the Elders of their community.” Training to care for people with dementia

End of Life Dementia Care Train the Trainer Program Pilot Presentation 23 rd October 2012 Jan Akers

Training to care for people with dementia Background CoP-D1 Project - Suite of Resources WADTSC’s NPA – ‘End of Life’ Knowledge Translation Activity

Aims of the project Develop a train the trainer package Pilot with 5 organisations in WA – evaluate Based on evaluation, modify and improve: deliver a second pilot in WA Invite other DTSCs to do a pilot – SA doing Final outcome – training package on DTSC website – stand alone Training to care for people with dementia

Why? ‘Chang et al (2009) have long advocated the need for staff to have superior skills in assessment, pain and symptom management and negotiation of care with family’ Chang and Johnston Training to care for people with dementia

A Palliative Approach ‘One thing that is known is that dementia is a progressive disease that cannot be cured…people with dementia will have a shortened life span because of their disease’ E. Chang, 2007 Training to care for people with dementia

Participation Criteria Organisations that provide residential aged care: for people with dementia who are at end stage of life who recognise a need for improvement in practices related to end-of-life dementia care who could commit to a12 week program Training to care for people with dementia

Pilot One: The 5 Organisations Southern Cross Care Inc. Adventist Aged Care Catholic Homes Inc. Hall & Prior Rockingham Juniper (UCH) Rowethorpe Training to care for people with dementia

Pilot Two: The 2 Organisations Maurice Zeffert Home Juniper (UCH) - Ella Williams facility Training to care for people with dementia

Engagement Each organisation nominated 2 key people to participate in the program The 2 key people needed to have the capability, desire, strength and knowledge to lead and implement change Training to care for people with dementia

1. Area of Concern EOL D 2. Specific Issue 3. Form a work team 4. Plan of Action 5. Implementation 6. Feedback 7. Evaluation : Preparation Workshop 1 Workshop 2Workshop 3 Follow up Chang e Map

Stage 1 Preparation Scope the ‘gap’: Audit SWOT Training to care for people with dementia

Stage 2 Intervention Form a Community of Practice (CoP) Develop S.M.A.R.T goals Action Plan – do it! Training to care for people with dementia SPECIFIC MEASURABLE ACHIEVABLE REALISTIC TIME-LIMITED

Evaluation Evaluate – the process Evaluate – the outcomes Evaluate – the impact Reflection and logging activities Staff Knowledge Resident QOL Training to care for people with dementia

Participants’ Quotes ‘Great project with potential for being very unifying for the whole team’ ‘Proud of the outcome’ ‘Opportunity to influence others – the ripple effect’ ‘Like being on a journey’ Training to care for people with dementia

Participants’ Stories Gabriella and Roanne from MZH Inc. Deb from Southern Cross Care Inc. Me Tun and Ruth from Adventist Aged Care Angela from Catholic Homes Inc. Isabelle from Juniper Ella Williams facility Training to care for people with dementia

Gabriella and Roanne – Maurice Zeffert Home Inc. Engagement of executive staff ‘Smoothing the journey’ Training to care for people with dementia

Deb - Southern Cross Care Inc. Benefits of a pre-project audit: staff audit - some surprises Q1 What do you think palliative/end of life is? Q2 How do you think we should treat people who are in their last stage of life? Q3 What care do you feel the resident should receive during the last days of their lives? Q4 How do you think we can help families during this difficult time? Q5 What can I do to assist you to provide best care…? Q6 What education would help you to provide highest standard care? Training to care for people with dementia

Me Tun and Ruth - Adventist Aged Care S.M.A.R.T goals – ‘small changes’ ‘the ripple effect’ F.A.S.T Scale – ‘a tool which engaged families, GPs and care staff ’ Training to care for people with dementia

Angela - Catholic Homes Inc. Achievements ‘Some surprises… New criteria for admissions - less repetition’ Training to care for people with dementia

Isabelle - Ella Williams facility A Reflection ‘Importance of passion and planning’ Training to care for people with dementia

Questions? Training to care for people with dementia