Demographics … who, what, where and when UK National Paediatric Bilateral Audit. Helen Cullington 11 April 2013

1001 children 465 simultaneous 536 sequential

3 Simultaneous Sequential

Simultaneous

Sequential

6 sim

7 seq

8

9

10

Pre, 1, 2, 3 years 1. Professional rating scale 2. Parental questionnaire 3. Performance measure

Simultaneous n= Professional rating scale Parental questionnaire Performance measure N/A

Sequential n= Professional rating scale Parental questionnaire Performance measure N/A

14

15 Home language Arabic Bengali British Sign Language Creole English Farsi Filipino French Gujrathi Hindi Malayalama Mirpuri Nepali Polish Portugese Punjabi Pushtu Romanian Somali Sylheti Urdu Welsh Yiddish

Weaknesses So much missing data Children ‘dropped out’ and ‘dropped in’ Performance testing limited on simultaneous group due to young age Performance testing skewed by results only being obtained if child could do the test 3 year interval only introduced in final year, so limited data Longitudinal study in children – children get older each year!

Strengths This is the population not a sample! Unique and real picture of what children with bilateral CI can do Cases not biased Great example of collaborative work throughout UK

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