Arthritis Foundation Arthritis Ambassador Briefing November 6, PM Eastern Dial In: Participant Code: # Materials available for download at

Agenda Welcome Laurie Markle, Manager for Grassroots Advocacy, Arthritis Foundation 2013 Ambassador Awards Laurie Markle, Manager for Grassroots Advocacy, Arthritis Foundation DOD Announces 2013 Grants Laurie Markle, Manager for Grassroots Advocacy, Arthritis Foundation DOD Funded-Scientific Update: Kevin Deane, MD, Asst. Professor of Medicine, University of Colorado - Denver November Ambassador Assignment: Ask Your Rep to Attend a JBR or other AF event Laurie Markle, Manager for Grassroots Advocacy, Arthritis Foundation 2014 Platinum Ambassador Criteria Laurie Markle, Manager for Grassroots Advocacy, Arthritis Foundation Q&A 1

2013 Ambassador Awards 4 KarenAndersonCA24Capps HeidiBarrettWA2Larsen AmyBarronOH1Chabot MireyaBolanos-KilmonFL26Garcia CindyCopenhaverIL2Kelly DavidEastmanVT1Welch SandiFalkenhagenAL6Bachus DeaneFelterCT1Larson AnitaFricklasCO6Coffman KimberlyGentCO4Gardner HannaGruenPA14Doyle CathyGuerrantOH10Turner MarkHaubnerNY1Bishop LaRitaJacobsFL13Young CarolKrakerAZ8Franks KathrynKuhnsIA3Latham HeidiMcIntyreGA6Price KimberlyPoston MillerIL10Schneider KeithMoschittaTN8Fincher ErikaNetzorgPA7Meehan ErinO'RourkeNY1Bishop StaciPennerKS4Pompeo HeatherPruettGA7Woodall ScottRowbothamNH2Kuster WendyRowbothamNH2Kuster PhilipRuthAR4Cotton EllenSmithRI2Langevin StuSmithRI2Langevin CherylSuhrKY3Yarmuth AngelaWengerWI5Sensenbrenner AngelaYoungKY6Barr PLATINUM AMBASSADORS Completed 6 assignments from December 2012 – October 2013

2013 Ambassador Awards 4 Gold AMBASSADORS Completed at least 4 assignments from December 2012 – October 2013 CindyDuckerAL JessicaEdgarAZ KathleenBaumillerSD TheresaBreesCA MarieCramerNY VanessaHamlerGA AndreaPattersonCA

2013 Ambassador Awards 4 Silver AMBASSADORS Completed 50% of assignments from December 2012 – October 2013 CarolArbaczewskiOH LoraDickinsonTX DeniseMarksberryVA LisaRubinNY Jo AnneShumanOR RobinSpencer-LaurieME DanielleTiptonFL KirstenWaltersWI

Department of Defense Announces 2013 Grants 3 Welcome Kevin Deane, MD, Assistant Professor of Medicine at UC- Denver and recipient of a 2013 CDMRP Grant. June 6, 2012, Ambassador Mark Haubner, with support of Ambassador Erin ORourke, testifies before the US Senate Committee on Appropriations, Defense Subcommittee Hearing in support of post-traumatic osteoarthritis DOD research funding and the addition of rheumatoid arthritis in the list of diseases eligible for DOD research funds.

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November Ambassador Assignment Our World Arthritis Day message to Capitol Hill: Attend your local Jingle Bell Run! 4

November Ambassador Assignment 4 1. Locate your nearest Jingle Bell Run. Search the map on or download the master list, which includes AF staff contact information, from the Ambassador Assignment website at

November Ambassador Assignment your Representatives Health Legislative Assistant requesting your Representative to attend your local JBR. Draft language available on HLAs Address: 3. One week later, call your Representatives HLA and follow up on your request. Draft language available on www. arthritis.org/ambassador_assignment.php , then Call.

November Ambassador Assignment 4 4. If your Representative or legislative staff can make the JBR, notify the associated Arthritis Foundation staff listed on the JBR master list and Laurie Markle at Guide Includes: Dos and Donts of Interacting with a legislator Handler Guide Sample legislator talking points

November Ambassador Assignment 4 5. Report your activity to the Ambassador Reporting website ( under the assignment labeled November Username: your address Passcode: Your Last Name Need help navigating the reporting site? me at and I will set up a time to

November Ambassador Assignment 4 IF THERE IS NOT A JINGLE BELL RUN IN YOUR AREA… –Call your local/state AF office. –Ask to speak with someone in Development. –Ask them what upcoming fundraising event you should ask your Representative to attend. –Follow steps 2-5 above.

2014 Platinum Ambassador Criteria 4 Platinum Ambassadors in 2009: 8 Platinum Ambassadors in 2013: 32 We are improving our standards to catch up with the great work that you are already doing! In 2014, the designation of Platinum Ambassador will be bestowed upon individuals that complete all 8 assignments and at least 3 bonus assignments.

2014 Platinum Ambassador Criteria 4 Bonus 1 Serve as Team Captain to an Arthritis Walk or Jingle Bell Run team that raises at least $1000. You may participate virtually in the Arthritis Walk or Jingle Bell Run nearest you, should one not be within driving distance. Bonus 2 Accept an invitation from the Arthritis Foundation, should it be made, to present at a congressional briefing or hearing or with a state or federal agency or legislature. Bonus 3Volunteer in the coordination and/or training at a State Advocacy Day or local advocacy training. Bonus 4 Recruit a minimum of 50 advocates at an Arthritis Foundation sponsored or third party event (e.g. Arthritis Walk, JBR, Gala or Bone Bash) and share list with Arthritis Foundation staff. You may combine recruitment efforts at a series of Arthritis Foundation events to achieve this goal. Bonus 5 Serve as the Mission Delivery Chair for an Arthritis Foundation event. This includes, but is not limited to, Arthritis Walk, Jingle Bell Run, Bone Bash, and Galas. Bonus 6 Recruit a minimum of thirty (30) new e-advocates outside of Arthritis Foundation events. List must include first name, last name, address, home address, city, state and zip delivered via Excel file to Laurie Markle. Bonus 7 Meet with your state or federal Representative or staff in your hometown and share with them at least one of the Arthritis Foundations state or national advocacy priorities. Bonus 8Attend a Town Hall or Tele Town Hall meeting with a State or Federally elected official. Bonus 9Appear in a local or online newspaper or news channel for your efforts raising awareness about arthritis and advocating. Bonus 10Serve on an Arthritis Foundation state, regional or national public policy committee. Bonus 11 Speak with your local Arthritis Foundation exercise class, Alpha Omega Pi, Kiwanis Club or other philanthropic group about arthritis advocacy. Collect e-advocacy commitments or petition signatures. Bonus 12Successfully invite a state or federally elected official to attend an Arthritis Foundation event. Bonus 13 Organize a visit with Representative and an area Pediatric Rheumatologist in their clinic to discuss the value of the Pediatric Subspecialty Loan Repayment Program. Bonus 14 Serve as an Arthritis Foundation representative to a state or federal public health or policy committee. Examples include Georgias Obesity Committee, Pennsylvanias State Public Health Coordinating Committee, and the NIAMS advisory panel. Bonus 15 Serve as a patient grant reviewer to a state or federal health agency or committee such as the Patient Centered Outcomes Research Institute or Department of Defense. Bonus OptionBe Creative! If youve completed an additional advocacy-related task for the Arthritis Foundation thats not mentioned in this list, share it here.

2014 Platinum Ambassador Criteria 4 Successfully complete your November assignment and you can receive credit for Bonus Assignment #12!

2014 Ambassador Briefing Schedule 4 Ambassador Briefings will take place at 3PM Eastern on the following dates: January 15, 2014 March 5, 2014 April 2, 2014 May 7, 2014 July 16, 2014 September 3, 2014 November 5, 2014

Questions? Laurie Markle, MA Cell: