Genevieve Young-Southward1 Christopher Philo2 Sally-Ann Cooper3

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Genevieve Young-Southward1 Christopher Philo2 Sally-Ann Cooper3 What is the impact of transition on health and wellbeing in young people with intellectual disabilities? A systematic review Genevieve Young-Southward1 Christopher Philo2 Sally-Ann Cooper3 1Institute of Health and Wellbeing 2School of Geographical and Earth Sciences 3Institute of Health and Wellbeing University of Glasgow Methods Inclusion criteria: Age of participants was between 13 and 24 years old Data for participants with intellectual disability was reported separately from those without intellectual disability Both transition and health were discussed Article was written in English 6 databases were searched using key search terms Grey literature and reference lists were hand searched A sample of titles and abstracts were screened by a second reviewer to check agreement Transition – the move from childhood to adulthood – is an important stage in life for all young people Transition may impact health and wellbeing in a number of different ways Transition may be experienced differently by young people with intellectual disabilities Database search Titles read n = 15,985 Excluded n – 15,446 Duplicate n = 165 Clearly not relevant n = 15,281 Abstracts read n = 539 Excluded n = 466 Wrong age group n = 54 ID participants not reported separately n = 64 Not discussing both transition and health n = 333 Not English language n = 15 Results Papers read in full n = 73 15,985 articles were initially extracted, of which 17 met the inclusion criteria (Figure 1) The results of the articles were mixed and in places contradictory, indicating that, while there are numerous health and wellbeing issues present in this population during transition, including obesity, sexual health and social conflict, the majority of parents of children with intellectual disabilities rate their child’s quality of life during this period positively Identified from Additional searches n = 19 + 1 published dataset Excluded n = 59 Wrong age group n = 8 ID participants not reported separately n = 23 Not discussing both transition and health n = 28 Excluded n = 17 Wrong age group n = 2 ID participants not reported separately n = 6 Not discussing both transition and health n = 9 Final inclusion n = 17 Conclusions Figure 1: Inclusion and exclusion of articles The studies in this review reveal a mixed picture of health and wellbeing outcomes for young people with intellectual disabilities during transition More research in this area, including secondary analysis of existing data, combined with qualitative exploration of young people’s transition experiences, is needed Limitations Studies that were not in English were excluded We have no reason to think that there would have been publication bias in the topic reviewed Contact g.young-southward.1@research.gla.ac.uk