AISHA TATOR EXECUTIVE DIRECTOR DONATE LIFE NEW YORK STATE

2002-2017

To ensure a transplant for every New Yorker in need. Mission Goal To increase organ, eye and tissue donation in New York State through collaborative advocacy, education, promotion, and research.

Who is Donate Life New York State? Donate Life NYS is a non-profit organization comprised of organ and tissue recovery organizations throughout New York State, health professionals and individuals whose lives have been affected by donation. Donate Life NYS’ corporate board members include the following Organ, Eye and Tissue recovery organizations:

ORGAN SCARCITY CRISIS IN NEW YORK STATE 9,400 individuals waiting 450 individuals died in 2017 while waiting 1 person dies every 19 hours while waiting

ORGAN SCARCITY CRISIS IN NEW YORK STATE

National Donor Designation Share, 6/30/17 State Share MT 92% AK 90% WA 87% OR 77% UT 76% IN 74% AL 73% MO IA 71% LA 70% KS 68% ME 67% CO 66% State Share NH 65% SD 64% ND VA OH 63% WI MD 62% ID NC NM DC MN GA 61% State Share MA 61% HI IL 60% MI VT 58% AZ WY OK RI FL DE 56% NE 55% AR 53% State Share KY 52% SC 49% CT 47% PA TX 46% CA 45% TN 43% NV 42% WV 41% NJ 37% MS 36% NY 30% PR 22% ALL 55% Donor Designation (DD) An individual’s commitment to donate recorded in a searchable donor registry DD Share Designated donors as a percentage of state population age 18 and over

Reforming the New York State Donate Life Registry! DonateLife.ny.gov

Andy Brattain-NYSACC Chair-Annette Hill,

Statewide Media Campaign Statewide Media Campaign

Search engine marketing (SEM) Out of home/displays Social media

140,000 enrollees

Permanent Extension of Lauren’s Law

16 and 17 Year Olds Eligible to Enroll in the New York State Donate Life Registry 35,000 enrollees

Lauren’s Law Implemented Impact of Policies on Donor Designation Rate 18.2% 16 and 17 y.o. Implemented 16.4% Lauren’s Law Implemented Prior to the implementation of Lauren’s Law and the lowered age of enrollment, NY’s donor designation rate, which is the percentage of individuals completing a donation-relevant transaction at the DMV who check “yes” to registering as an organ and tissue donor, averaged 10.8%. Since these two legislative changes took effect, the donor designation rate in New York State has grown to an average of 18.2%. If the donor designation rate had not increased, we would have expected just approximately 1.7 million individuals to check “yes” at the DMV, but due to these legislative changes, approximately 2.5 million individuals have checked “yes,” meaning during the past two and a half years, 800,000 people – more than three quarters of a million - said “yes” to signing up as an organ and tissue donor at the DMV. 10.8% Pre-Lauren’s Law

Donor Enrollments by Source 2010 2017 The NYS DMV has an eight year cycle for renewals of driver licenses and non-drive IDs, with four consecutive years of the cycle being low renewal years with a nearly 70% decrease in the number of donation-relevant DMV transactions. In 2010 (the earliest comparable year to 2017 for which enrollment data by source is available), there were approximately 343,000 enrollments, 93% of which came from the DMV. In 2017, more than a half-million New Yorkers joined the Registry, and only 71% of these individuals joined while through a DMV transaction. Non-traditional portals of enrollment, coupled with legislative changes impacting the donor designation rate at the DMV, have lessened our dependence on the DMV for donor enrollments, and have significantly increased the number of annual Registry enrollments overall. 51% INCREASE! 343,341 Enrollments 517,923 Enrollments

Significant Registry Growth FEBRUARY 2018 x2! 5,027,897 REGISTRANTS Our registry has more people in it than the population of 27 states. JULY 2011 2,505,088 REGISTRANTS

What You Can Do to Help JOIN IT HOST IT SHARE IT LINK IT SEND IT If YOU have not joined the Registry, enroll today at donatelife.ny.gov/register HOST IT Host donor registration drive. Donate Life New York State and its members are here to help! SHARE IT Display the link to the Registry on your social media accounts. LINK IT Add a link to donatelife.ny.gov/register to your website. SEND IT Email employees, co-workers, friends, family and ask them to enroll at donatelife.ny.gov/register

New York State Ophthalmological Society

Follow Donate Life New York State on Social Media: facebook.com/DonateLifeNYS twitter.com/DonateLifeNYS youtube.com/DonateLifeNYS

State Legislative Advocacy Day University Club, Albany, NY Tuesday, May 15, 10AM-4:30PM University Club, Albany, NY

Thank You! Aisha M. Tator (518) 326-3237 atator@dlnys.org