Kidney Community Advocacy Day 2017 Advocate Pre-Training Zach Kribs Government Affairs Specialist American Society of Nephrology

Kidney Community Advocacy Day 2017 Advocate Pre-Training Goals Become familiar with KCAD messages Learn what to except in a meeting with your Congressional delegation Introduction Messages Meeting Tips How To Prepare

Kidney Community Advocacy Day 2017 Training Session Advocate training is scheduled for Monday, September 18 at 5 pm During training, we will group you into a meetings team made up of 3-6 individuals from your state or region Handouts will be provided to help you stay on message Introduction Messages Meeting Tips How To Prepare

Kidney Community Advocacy Day 2017 Messaging Goals Advocate for issues of importance to the patients and health professionals our organizations represent: More robust kidney research funding Living Donor Protection Act of 2017 Introduction Messages Meeting Tips How To Prepare

Kidney Community Advocacy Day 2017 Messaging Goals Remember, your story is the most important message of KCAD! Think of ways your story can connect to these messages Introduction Messages Meeting Tips How To Prepare

Message #1: Kidney research funding Introduction Messages Meeting Tips How To Prepare

Kidney Research Funding Background A January 2017 Government Accountability Office (GAO) report on Kidney Disease Research Funding and Priority Setting underscores the need for increased investment in kidney research The report confirms gap between cost of kidney diseases to federal government and federal investment in research Investing in research leads to breakthroughs Consistent, dedicated funds for research of kidney diseases critical Introduction Messages Meeting Tips How To Prepare

Kidney Research Funding Ask: $2 billion increase in National Institutes of Health (NIH) funding for 2018 At-least proportional increase for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Recognize the need for increased funding for kidney and kidney transplant research, underscored by the January GAO report Create a “Special Kidney Program” $150 million per year for 10 years of dedicated funding for kidney research at NIDDK Modeled after the Special Diabetes Program Introduction Messages Meeting Tips How To Prepare

Kidney Research Funding Ask: Special Diabetes Program Authorized in 1997 by bipartisan leadership of U.S. House Speaker Newt Gingrich and Clinton White House Chief of Staff Erskine Bowles Formed after a Congressional Diabetes Research Working Group reported limitations in diabetes research due to inadequate funding $150 million in dedicated funding per year Has resulted in the development of the first artificial pancreas Introduction Messages Meeting Tips How To Prepare

Kidney Research Funding Ask Notes The NIH has broad bipartisan support Be sure to thank your Congressional office for their support The $2 billion increase is necessary to keep pace with medical inflation Most NIH funding goes back directly to individual states in the form grants For every $1 invested by the NIH, it returns $8 of economic impact to the local economy Introduction Messages Meeting Tips How To Prepare

Message #2: Cosponsor the Living Donor Protection Act of 2017 Introduction Messages Meeting Tips How To Prepare

Living Donor Protection Act Background Transplantation provides best outcomes for many patients least expensive therapy Not enough organs to meet waitlist demand The Living Donor Protection Act of 2017(LDPA): Eliminates barriers to living organ donation Protects insurance of living donors Protects the employment of living donors Introduction Messages Meeting Tips How To Prepare

Living Donor Protection Act Ask House of Representatives LDPA sponsored by: Rep. Jamie Herrera Buetler (R-WA) Rep. Jerry Nadler (D-NY) Please cosponsor the LDPA Senate Bill has not been introduced Please sponsor the LDPA Introduction Messages Meeting Tips How To Prepare

Understanding a Congressional Office: Tips for a Successful Meeting Introduction Messages Meeting Tips How To Prepare

Tips for a Successful Meeting-Start Confirm which advocate is taking the lead for the meeting ahead of time Allow everyone to introduce themselves Introduce yourself, where you are from, and your organization Emphasize if you are a constituent State what you are here to discuss Kidney research funding Living Donor Protection Act Introduction Messages Meeting Tips How To Prepare

Tips for a Successful Meeting Share personal anecdotes about how today’s asks would help you, a loved one, or a patient you know Use provided handouts to help guide your conversation If you do not have an answer to a question, say that you will have your organization’s staff follow up Remember that regardless of your political affiliation or that of your Congressional delegation, they and their staff are serving you and want to ensure a positive meeting Introduction Messages Meeting Tips How To Prepare

Tips for a Successful Meeting- Finish Thank the staff and/or member again Ask if they need your organization’s staff to follow up Keep track of the following: Were there any questions we need to follow up on? Did the office request more information? What was their position on our messages? Introduction Messages Meeting Tips How To Prepare

Don’t be surprised if…. Your meeting lasts only five or ten minutes You meet with an intern or young staff member Your meeting occurs in a hallway or the office lobby Introduction Messages Meeting Tips How To Prepare

How To Prepare For Your Meeting We want to ensure you feel prepared going into your KCAD meetings Several helpful resources can be found on the participant website, including Talking points Tough questions and responses Leave behinds Please familiarize yourself, and remember you can always fall back on having your organization’s staff follow up after your meeting Introduction Messages Meeting Tips How To Prepare

How To Prepare For Your Meeting We will provide several materials at the training session on Monday, September 18, including: Meeting schedules Bios for your Congressional delegation Copies of meeting handouts Introduction Messages Meeting Tips How To Prepare

How To Prepare For Your Meeting Preliminary schedule for Kidney Community Advocacy Day 2017 Date Time Event Location Monday, September 18 5:00 p.m. – 6:00 p.m. Welcome Reception Marriott at Metro Center Washington, D.C. 6:00 p.m. – 9:00 p.m. Advocacy Training and Dinner Tuesday, September 19 7:00 a.m. – 8:00 a.m. Advocacy Information Session and Breakfast 9:00 a.m. – 5:00 p.m. Hill Visits – Individual schedules with meeting details will be distributed at the Sept. 18th Training Session Capitol Hill Washington, D.C. Introduction Messages Meeting Tips How To Prepare

Questions? Please contact Zach Kribs at zkribs@asn-online.org or 202-618-6991