1. Mae NISCHR CRC yn rhan o’r isadeiledd ymchwil i Gymru sy’n cael ei ariannu gan NISCHR, Llywodraeth Cymru www.wales.gov.uk/nischr NISCHR CRC is part of the research infrastructure for Wales funded by NISCHR, Welsh Government www.wales.gov.uk/nischr Involving patients and public in research MITReG 27.06.14 Barbara Moore Communications and Engagement Manager National Institute for Social Care and Health Research Clinical Research Centre

2. Introduction What is meant by patient and public involvement in research Public involvement in research in Wales Public involvement in translational research

3. Defining public involvement in research “a situation where service users and researchers work together to design, undertake or evaluate research, rather than service users being ‘subjects’ of the research” Morrow et al 2012

4. NISCHR Research Infrastructure

5. Improve relevance by supporting a portfolio of people-centred research studies which benefit health and social care service delivery Involve people by providing opportunities for patients, service users, carers and the public to input into research development Increase capacity by providing a competent and accessible research workforce to increase the quantity of research studies recruiting in Wales Underpin quality by providing a high quality, Wales-wide training programme to support excellence in studies registered on the NISCHR Clinical Research Portfolio Engage partners by communicating and collaborating with NISCHR CRC stakeholders NISCHR CRC Aims

6. Involving People Involving People supports Health and Social Care researchers based in Wales to make public involvement an essential part of their work. We can: Connect researchers with the Involving People Network Provide advice and guidance Provide training Book accommodation & travel, cover expenses and offer payment for time for Involving People Network members

7. Involving People Network – interest areas at July 2012

8. Public involvement in translational research “There is no doubt that you can do laboratory-based research without patient and public involvement. But, if you do involve people, and you involve them early, you will reap the benefits as a research programme evolves.” Dr John Bradley, Director NIHR Cambridge Biomedical Research Centre 2012

9. Examples Dr John Bradley Patients influenced his study design Helped indentify an intervention to test Attended the interview for funding award Helped monitor progress Acted as critical friend The study led to a large study MITReG Workshop where two people identified to contribute to research bid Comment on project drafts and final project reports