1. User Requirements and Engagement in Health Informatics Alistair Sutcliffe Sarah Thew, Oscar De Bruijn, Manchester Business School, Jock McNaught National Centre for Text Mining Iain Buchan, Paul Jarvis NIBHI, School of Medicine Rob Proctor E- Science Centre University of Manchester ADVISES project Adaptive Visualisation Tools for e-Science Collaboration EPSRC E-Science Usability program

2. The Vision Maps and visualisation to support Epidemiology research and PCT analyst- local health policy Easy to ask questions (Not SQL) as the user interface Interactive Visualisation allows users to see the answers to question AND explore data in rapid ‘what if’ mode Two projects: Obesity Atlas- mapping tools for epidemiology ADVISES- more generic mapping and visualisations tools

3. The Domain- Epidemiology Understanding Childhood obesity Causal analysis from complex multivariate spatio- temporal evidence Multi-variate statistical analyses- differences between cohorts over time, between areas Interactive visualisation See the effects of different Analyses- in context (space, time. distribution in population, etc) Research questions

4. Requirements Analysis- Approach Ethnographic studies- observing research practices Interviews for background domain knowledge Language analysis- analysing published papers and recorded conversations (Research Questions) Scenarios and Storyboards- early designs for - Primary Care Trusts- visualisation of epidemiology of childhood obesity - Epidemiology researchers- visualisations of complex datasets Requirements workshops and demonstrations

5. User Engagement- policies User consultation- presentations at PCT working groups- Manchester Obesity task force User Centred design- iterative prototyping- evaluation approach Participatory design, users involved in taking design decisions via storyboarding sessions Long term partnership NIBHI research centre plus outreach mission for local Primary Care Trusts

6. ADVISES PCT prototype Analysis controls Interactive Map display Multiple representations Quick win prototype- more complex controls and functions added later

7. Obesity Atlas prototype

8. Evaluation Regular formative evaluations with users Qualitative task based analysis - ‘thinking-aloud’ 3 rounds of evaluation, 21 participants –8 male, 13 female –8 academic epidemiologists, 13 NHS Primary Care Trust analysts Results - effective operation over a range of tasks- 92% completed - users positive ratings – mean 82% satisfied over range of Qs

9. Lessons learned Maximise access to user/domain experts- - diversify user base - engage users with storyboards and prototypes early - go with the flow- follow your users’ enthusiasm Understanding the domain –background reading –appropriate expertise on the team –talk the users’ language Prioritising Requirements - cost/benefit analysis for trade offs - look for quick wins for user engagement

10. Achievements Prototypes of Obesity Atlas and ADVISES complete Several iterations of user centred design (Obesity Atlas) and participatory design (ADVISES) improved prototypes and incorporated users design ideas Evaluation studies also explored how prototypes could be used in practice – workflow plans Roll out of combined prototypes under way- funded by PCT users Prototypes adopted and being refined by researcher users