1. Cancer Outcomes and Services Dataset Linda Wintersgill Information & Audit Manager, NECN

2. – The new national cancer dataset – Cancer Outcomes and Services – Aligned with patient management – Proposed and supported by clinicians – Incorporates previous cancer registration dataset – Updated and aligned with other datasets – Clarified definitions of data items, codes and values – Specifies Provider submissions – Compiled by registries from Providers and other sources What is COSD?

3. Cancer Outcomes and Services Dataset COSD - Structure CENTRAL NERVOUS SYSTEM COLORECTAL CHILDREN,TEENAGERS, YOUNG ADULTS GYNAECOLOGY HAEMATOLOGY HEAD & NECK LUNG SARCOMA SKIN UPPER GI UROLOGY CORE - CANCER REGISTRATION Demographics/Referral/Diagnostics/Diagnosis/Care Plan/Treatment BREAST CANCER WAITS Site specific Clinical and Path Patient pathway referral to treatment

4. Complete patient pathway – Referral details for all cases, all treatments, Includes palliative and supportive care Additional core data items including – Involvement of Clinical Nurse Specialist, Duration of symptoms (Mandatory for Children,Teenagers,Young Adults (CTYA), Optional for others) All registerable conditions – including in situ bladder, in situ melanoma, benign brain tumours Site specific data – Key site specific clinical items – patient management, site specific stage, stage components of RCPath datasets Includes recurrences – Breast cancers to start with What is different about COSD?

5. Site specific data – Key site specific clinical items – patient management – Site specific stage – Stage components of RCPath datasets Includes recurrences – Breast cancers to start with What’s different about COSD? (2)

6. – Monthly submission Current cancer registry feeds expanded to include COSD items 25 working days after diagnosis or treatment Send updates as applicable – Aim for three months to complete initial record (to first treatment) – Final updates to first treatment within 6 months – Further treatments - submit 25 working days after treatment – How to collect in “real time” ? – Clinical ownership/sign off for MDT extract PAS extract Path extract RIS extract What does this mean for Trusts?

7. MDT Systems Pathology Systems Radiology Systems PAS/HIS Systems Work ongoing with Trusts on Gap Analysis Key sources

8. Many site specific items are in the National Audit Site Specific coding is required for the first phase of implementation – how complete is this likely to be for Head & Neck Patients (does audit dataset help)? Dataset will be circulated for consideration - looking for volunteers to take forward NECN Minimum Dataset Policy developed to clearly outline responsibilities for collection of mandated datasets NSSGs to be asked to incorporate specific staging or coding protocols detailed in the dataset into clinical guidelines to ensure a consistent approach across the network What does this mean for this group?

9. Thank You