1. #hfeaconference2014 26 February 2014 Alan Thornhill HFEA Authority Member Helping us build better data collection systems

2. What is the aim of Information for Quality? To improve the effectiveness of the information we hold and collect, by reviewing our: forms validation rules verification procedures clinic portal choose a fertility clinic publishable information website

3. Working with stakeholders Four expert groups Wider stakeholder engagement Data dictionary Data warehouse and analytics Digital Data submission ADVISORY GROUP

4. Expert groups Purpose: To look into the detail of each project To tackle technical/controversial issues To consider the requirements of all stakeholders and define a reasonable balance between differing perspectives To engage with centre staff and wider stakeholders throughout the process

5. Two of the projects Data dictionary What is a data dictionary? Developing and defining the dataset Providing a clear rationale for each piece of data requirement Data submission Deliver effective mechanisms for the submission of data to the HFEA

6. We want you to get involved There are still spaces on each expert group. We are looking for: Clinic staff Researchers Patients Donors Donors conceived people

7. Any questions? Contact: #hfeaconference2014 InformationForQuality@HFEA.gov.uk

8. #hfeaconference2014 ‘Quick’ coffee break