1. My healthy life Helen Mycock – Mencap Health programme manager

2. What we’ve achieved - national

3. 3 BIG ISSUES Primary care General hospital care Specialist healthcare

4. ‘Getting it Right’ 3 year campaign

6. Getting It Right – update  200 organisations signed up to charter  193 in England, 6 in Wales and 1 in Northern Ireland  In England this broke down into: 78 out of the 175 NHS General Hospital Trusts ( 44.5%) 62 out of the 146 Primary Care NHS Trusts ( 42.5%) 21 out of 56 Mental Health / Learning Disabilities NHS Trusts (37.5%) 7 out 10 SHA’s ( 70%) 6 out of the 12 Ambulance Trusts (50%) 5 Medical colleges 10 non-NHS organisations

7. Almost half (46%) of doctors say that people with learning disabilities receive a poorer standard of healthcare Almost third of nurses (33%) had personally witnessed a patient with Learning Disabilities being treated with neglect or lack of dignity Nearly 4 out of 10 doctors and third of nurses went as far as saying that people with Learning Disabilities are discriminated against (Mencap, Getting it right survey, June 2010) Concerns remain

8. More still to do on reasonable adjustments, particularly round changing clinical practice Implementation of the Mental Capacity Act is still a concern 6 Lives Progress Update (2010)

9. Getting It Right – what next ?  Which health organisations are not signed up ? Why ?  Need to ensure local stakeholders and users / carers are equipped to hold organisations who have signed up to the charter to account  Considering extending revised version to GP Consortia and practices  Implementation of 2 key projects in which ‘Getting It Right’ has had a key part in securing funding

10. HSCVF – Getting It Right ….from the start  3 year programme  Working with 4 Clinical commissioning groups across England  20 volunteers each area ( 10 volunteers with a learning disability and 10 volunteer supporters)  Review of current position and offer of further self assessment particularly focussing on reasonable adjustments  Bespoke training and input according to local needs – some GP focussed and some community healthcare focussed  Schedule of data collection – qualitative and quantitative  External evaluation and dissemination  Impact upon policy and practice : Opportunity to influence commissioning under new arrangements and shape local health watch Support implementation of DES for annual health checks, equalities act and ‘big society’ ideals Dissemination of outcomes for widespread impact across UK

11. Simply health – general hospital road shows  One off funding from Simply Health ( health insurance company)  Road shows within general hospital settings  Showing DVD ‘Freddie’s story’  Information, resources and workshops  Sign up to Getting It Right Charter and local accountability  Hospital passport  Mental Capacity Act  Impact upon policy and practice Support implementation of equalities duty and Mental Capacity Act Widespread sharing of good practice Maintaining charter pledges and commitments

12.  Community Action  Campaigns and policy  Part of wider interconnected national support team based upon evidence of needs and to deliver beneficial and innovative outcomes which support Mencaps strategic goals : Children and young peoples programme Families and inclusive communities Inclusion support Leisure and positive activities Inspire Me Raising Your Game NOFAS ( National Organization on Fetal Alcohol Syndrome) Learning products Health programme –where it fits

13. My Healthy life priorities 2011/12  Continue to improve access to and the quality of primary health care by: implementing HSCVF project GP / clinical commissioning group sign up to primary care focussed GIR charter Utilising ‘ my healthy life’ outcomes in ‘what matters to me’ quality checks within Personal Support Services Partnership working to support / contribute to research Provision of a Health hub to share good practice/ outcomes  Continue to improve care and safety in general hospitals by: Implementing simply health programme Agree and promote a standard hospital passport Further promotion and sign up to GIR charter Support / contribute to research Sharing with partners as members of the health and human rights project Share good practice on health hub and potentially host A2A national network website  Improve safety, access to and quality of specialist healthcare including mental health services ( see next slide for details)

14.  Winterbourne review – support implementation of recommendations.  Influencing specialist and local commissioning  Decrease in out of area placements  Increase in personalised local commissioning and specialist community support  Support / contribute to research  Review of and potential to up date Green light tool kit ( in partnership with IHAL ) to help improve access to mental health services ( in primary and secondary care) Specialist Healthcare (including access to Mental health care)

15. We must ensure progress is not lost: 1.Health checks and HAPS 2.Using health self assessment framework 3.Data and choice and control 4.PMLD and specialist commissioning 5.Local Healthwatch NHS bill 2011 – moving forward

16. Any questions