1. Addressing Psychosocial Support Needs of Transitioning Adolescents Living with HIV Since Childhood: A Global Perspective Rena Greifinger, MS Independent Consultant Director, One Love Project at Next Step 2012 International AIDS Conference Washington D.C. USA

2. Anatomy of an Adolescent Brain

3. Living with HIV

4. What Does Psychosocial Mean? Unpacking our definition. Psycho - Feelings, thoughts, beliefs, and attitudes. Social - Interactions, culture, family, peers, school. Psychosocial support Individual and group counseling Peer support Case management Psychosocial well being ICAP Adolescent HIV Care and Treatment

5. What Psychosocial Challenges do ALHIV Face?

6. SOCIETY/POLICY COMMUNITY ORGANIZATIONAL INTERPERSONAL INDIVIDUAL Coping w/diagnosis Fear/anxiety about the future Mental health/substance use Stigmapoverty Weak social/family support Loss/bereavement Weak linkages to care Weak referral systems Lack of trained professionals Stigma Gender inequality Stigma Political inertia Unsupportive schools Workplace discrimination Policies go unnoticed Churches/religious institutions Lack of funding Disclosure

7. 4 Recommendations from the field, for the field

8. 1.Provide psychosocial support that is holistic, intentional and sustainable  Address all clinical and psychosocial needs  Design programs for ALHIV specifically  Provide long-term support Recommendations from the field, for the field

9. 2. Provide training and capacity-building  Clinical care needs  Sexual and reproductive health  Creating a youth-friendly environment

10. 3. Critically involve ALHIV  Treat ALHIV as the experts that they are  Create meaningful partnerships with adults  Shift paradigm from survival to quality of life  Harness the power of peers Recommendations from the field, for the field

11. 4. Improve linkages to care & support  SRH services including PMTCT  Adult care services  Peer and psychosocial support  Education and employment support Recommendations from the field, for the field

12. Cross-cutting themes  Stigma  Sustainable resources Recommendations from the field, for the field

13. One Love Project a program of Next Step

14. Annual 5-day retreat for YPLHIV and health care providers Grounded in positive youth development Ongoing engagement model No Longer Voiceless Conference

15. * disease progression * adherence * poetry interviewing * financial literacy * advocacy * yoga * complementary therapies * housing * college options * non-college options * substance use * sexual health * relationships * disclosure * zumba * music therapy * painting * public speaking * resume writing * social media * peer pressure * bullying * dancing * stress management * the law * nutrition * 2012 Agenda

16. Impact Improved confidence, attitude, self-efficacy Increased linkages to care, psychosocial support, job training, advocacy, media; etc. Replication – One Love West Coast – SHIFT Uganda

17. THANK YOU!