1. Personal Experience Outcomes 1

2. Introductions 2

3. Agenda Introductions Personal Experience Outcomes Overview Your role in supporting Personal Experience Outcomes Moving Beyond a Good Paid Life Person Centered Thinking Community and Relationships Person First Language Valued Social Roles Self Evaluation 3

4. Learning Objectives The learner will recognize the three themes of Personal Experience Outcomes and how they relate to all people. The learner will be able to explain what Personal Experience Outcomes are to others. The learner will demonstrate the ability to apply Person Experience Outcomes to their own life and to the lives of the people they support. The learner will critique their own use of Personal Experience Outcomes and related concepts and identify ways to improve their ability to integrate into their work with people. 4

5. Personal Experience Outcomes Choice I decide where and with whom I live.  The decisions reflect the person’s lifestyle and preferences.  The homes meets the person’s needs.  The person feels safe and comfortable.  The person feels good in their home. I make decisions regarding my supports and services.  The person receives services/supports to help in daily life.  The person receives services/supports given with respect to preferences and needs.  The person makes decisions about services/supports. I decide how I spend my day.  The person makes choices about daily activities such as sleeping, eating, bathing and recreation.  The person decides when and how to do daily activities.  The person has the ability to choose routine or flexibility.  The person’s preferences are respected and honored. 5

6. Personal Experience Outcomes Personal Experience I have relationships with family and friends that I care about.  The person has family and friends for whom she/he feels love, friendship or intimacy.  The person has friends or family involved in his/her life.  The person is receiving support from friends/family as she/he desires. I do things that are important to me.  The person does things each day that are important to him/her (work, volunteer, hobbies, study, social time).  The person does things that are enjoyable and gives the person a sense of purpose. I am involved in my community.  The person is engaged in the community in ways that she/he likes.  The person has a sense of belonging and connection.  The person believes that she/he is viewed by others as making a contribution.  The person has opportunities for socialization. 6

7. Personal Experience Outcomes Personal Experience Continued My life is stable.  The person can live within her/his means.  The person is not worried about changes that could happen in the future.  The person feels adequately prepared for whatever changes happen in the future. I am respected and treated fairly.  The person is treated with respect by the people who are in her/his life.  The person is treated fairly by the program that support her/him.  The person is treated fairly as a citizen.  The person believes she/he is worthy of respect and fair treatment. I have privacy.  The person has time and space to be alone when she/he wants.  The person can talk privately with others when she/he wants.  The person controls how personal information is shared with others. 7

8. Personal Experience Outcomes Health and Safety I have the best possible health.  The person is comfortable with her/his physical, mental, emotional health.  The person is getting the help that she/he wants for any health concerns.  The person has information she/he wants about her/his health concerns and options.  The person can make informed decisions about her/his health. I feel safe.  The person feels safe where she/he lives, works and in the community.  The person is able to make her/his own decisions about what is safe for her/him.  Other people respect the person’s right to make her/his own decisions about safety and risk.  The person has help making decisions about safety, if she/he needs it. I am free from abuse and neglect.  The person is not being abused or neglected, in person, property or finances.  The person does not feel threatened or mistreated.  The person has the help that is needed to deal with past abuse or neglect. 8

9. Moving Beyond a Good Paid Life Emphasis on services, programs, health and safety Service Life Closest people are paid or family Few real connections A Good Paid Life Active circle of support Focus on connecting, building relationships, and natural supports Community Life 9

10. In your role, how can you use the concept of moving beyond a good paid life to support Personal Experience Outcomes? 10

11. 11 “Writing a plan without understanding what people aspire to leads to better paper, not better lives.” -Michael Smull

12. 12 System OrientationPerson Orientation Plan a lifetime of programsCraft a desirable lifestyle Options are limitedOptions are maximized Focus on slots/closures/bedsFocus on outcomes Focus on labels and deficits Focus on strengths and capacities Organized to please funders, policies Organized to support quality of life Professional control Person-driven control and shared decision making Protection from failureRisk is responsibly supported Lots of planning, little actionLots of action and assessment

13. 13 Important To Important For

14. Person Centered Thinking and Planning Person Centered Planning Work on understanding the community role & contribution of people with disabilities. Re-design of human service culture, mission, & structure 14

15. In your role, how can you use the concept of person centered thinking to support Personal Experience Outcomes? 15

16. 16 “Loneliness is the only real disability.” -Beth Mount

17. Community and Relationships Friendship having friends, relationships, including a “best friend”. Mostly these can be described as “strong ties’’ Acquaintance Having a network of acquaintances Membership Being a member of associations and organizations Keeping in touch With trends and movements of interest; subscribing to them; belonging to “social worlds” Being part of a family Having an active connection with family life Having a partner Someone to whom a long- term commitment has been made Being a neighbor Living next door to, or at least near to someone (down the street or across the road) Knowing or being known in a neighborhood Using the resources of the neighborhood and recognizing and being recognized by others who use them too Themes which impact all relationships Time The amount of time people spend together and the length of time they have spent together in the past. Intensity Some ties and connections are invested with a lot of emotion. They mean a lot to us, perhaps more than anything else. Others are less important, and some not very important at all. Reciprocity The exchange of services between people. This may range from simply following the rules of politeness, to providing practical help, to sharing major parts of our life and work. Intimacy We share confidences with some people more than with others. Some of our ties and connections involve a lot of trust. 17

18. In your role, how can you use relationships and community connections to support Personal Experience Outcomes? 18

19. Person First Language Say this Instead of this People with disabilities. The handicapped or disabled. He has a cognitive disability/diagnosis. He is mentally retarded. She has autism (or a diagnosis of…). She’s autistic. He has Down Syndrome (or a diagnosis of…). He’s Down’s; a mongoloid. She has a learning disability (diagnosis). She’s learning disabled. He has a physical disability (diagnosis). He’s quadriplegic/crippled. She’s of short stature/she’s a little person. She’s a dwarf/midget. He has a mental health condition/diagnosis. He’s emotionally disturbed/mentally ill. She uses a wheelchair/mobility chair. She’s confined to/is wheelchair bound. She needs…or she uses… She has problems with…has special needs. 19

20. In your role, how can you use the concept of person first language (how we talk about people) to support Personal Experience Outcomes? 20

21. Valued Social Roles You ______ _______ Person You Support ______ _______ 21

22. In your role, how can you use the concept of social valued roles (how we think about people) to support Personal Experience Outcomes? 22

23. Sam Berns and his philosophy for a happy life 23

24. Self Evaluation Personal Commitment 24