2. Comprehensive Cancer Control Planning Telling New Jersey’s Story Peg Knight, RN, M.Ed. Executive Director Office of Cancer Control and Prevention New Jersey Dept. of Health & Senior Services

3. History of Comprehensive Cancer Control Cancer leading health concern of NJ citizens Need for a more organized and integrated approach to cancer control DHSS Internal Strategic Planning Team –directed by the Commissioner –identified priority recommendations for cancer control

4. History of Comprehensive Cancer Control State-wide comprehensive cancer control plan Executive Order, May 2000 –“Task Force on Prevention, Early Detection and Treatment in NJ” 2 state-wide educational forums on comprehensive cancer control

5. History of Comprehensive Cancer Control Established Office of Cancer Control and Prevention –Support Task Force Task Force Kickoff Meeting Jan. 29, 2001 –18 month timeline to develop plan

6. Task Force Members Commissioner of Health & Senior Services Chair: Arnold Baskies, MD Vice Chair: Philip Benson 16 public, Governor appointed members: Cancer Survivors Providers of Cancer Treatment and Services Community-Based Organizations Academia Pharmaceutical Industry

7. Centers for Disease Control and Prevention

8. Definition of Comprehensive Cancer Control “an integrated and coordinated approach to reduce cancer incidence, morbidity and mortality through prevention, early detection, treatment, rehabilitation and palliation.”

9. Why Do It? Heavy and unequal cancer burden Inadequate infrastructure Limited resources Limited data use in decision making Lack of coordination One cycle of planning and implementation is insufficient

10. What Works Organization of organizations Commitment to planning & implementation Evidence-based process Topical subcommittees develop objectives and strategies Priority-setting process within larger body Mutual education about issues in cancer control Focus on what’s feasible to do NOW by US

11. TIMELINE

12. A Framework for Comprehensive Cancer Control Phase 1 - Setting Optimal Objectives Phase 2 - Determining Possible Strategies Phase 3 - Planning Feasible Strategies Phase 4 - Implementing Effective Strategies

13. Phase 1: Setting Optimal Objectives Existing data assessed for usefulness Identify existing Needs & Capacity Assessments (N&CA) at County level Identify gaps

14. Phase 2: Determining Possible Strategies WORK GROUPS BREAST CERVICAL PROSTATE LUNG COLORECTAL MELANOMA ORAL/PHARYNGEAL OVERARCHING ACCESS/RESOURCES ADVOCACY NUTRITION/PHYSICAL ACTIVITY PALLIATION CHILDHOOD CANCERS ISSUES ADDRESSED RESEARCH SURVEILLANCE EDUCATION OUTREACH SCREENING TREATMENT PALLIATIVE CARE EVALUATION/QUALITY

15. Work Groups: Composition Decision Makers Task Force Members Members of Respective Task Force Member Organizations Broader, more comprehensive Pharmaceutical Advocacy Groups Community Organizations Local Health Departments Who isn’t here that should be?

16. 4 Stages of Development Develop Issue/Problem Statements Generate Goals and Objectives Select Priorities Develop Implementation Strategies

17. Phase 3: Planning Feasible Strategies

18. Phase 4: Implementing Effective Strategies Evaluating Tool: Data

19. Where Are We Now?

20. Press Conference January 9, 2003

21. $3,250,000 Budget Allocation to Implement the Plan

22. Public Awareness Campaign Melanoma Educational Materials Translation State-wide Campaign State-wide Conference

23. Surveillance Increase BRFSS encounters from 4000 to 10,000 –dissemination of information at the county level –essential for Capacity/Needs Assessment Cancer Cluster Task Force

24. New Jersey Commission on Cancer Research Expanded funding to address –Cancer and Aging –Quality of Life –Disparities Clinical Trial Education Initiative Informed Consent Workshops

25. Evaluation Procurement of evaluation services on the Comprehensive Cancer Control Plan as mandated by Executive Order 114 and as indicated by CDC guidelines allowing for biennial reports, monitoring, revising and updating.

26. Infrastructure Office of Cancer Control and Prevention –directing activities –internal monitoring –funding initiatives NJCEED Cancer Registry –capacity/needs assessment –GIS expansion –NCI SEER contract

27. Infrastructure Health Service Grants through the 25 NJCEED lead agencies –critical for the capacity/needs assessment per CDC guidelines –local cancer coalition building –implementation of the Plan at the community level

28. To be continued...

29. Together We Can Make A Difference Telling New Jersey’s Story

30. THANK YOU!

31. Questions

32. Contact Information Office of Cancer Control and Prevention P.O. Box 369 3635 Quakerbridge Road Trenton, NJ 08625-0369 609-588-7681 609-588-4992 (FAX) peg.knight@doh.state.nj.us www.state.nj.us/health