1. Pediatrics KNR 365

2. Pediatric Definition The branch of medicine that deals with the development and care of infants and children and the treatment of their diseases. The Free Dictionary

3. Carter & Van Andel, 2011 Disabilities Wide range of acute, chronic, & traumatic conditions Acutely ill, complex medical needs Terminally ill Settings Pediatric hospitals, pediatric units in general hospital, outpatient, schools, camps, recreation/SRA More….

4. Issues Separation from parents, siblings, peers New routines Undergo strange & often painful procedures Surrounded by strangers Cope & adjust to pain, accidents, disabilities Deal with disfigurement Stress of parents

5. TR Interventions Diversion & stress management Expressive & creative arts Journaling Community reintegration Pet therapy Adapted sports Facebook Skype

6. ATRA: Pediatric Treatment Network Sibling Day Camp – My parents forgot to come to my soccer camp. – I had to quite karate because everyone was at the hospital and couldn’t drive me. – My parents have been really busy since my brother got sick and this is the first fun thing I have done in awhile. – Sometimes I wish she would just die so I could have some time with my mom.

7. Patient-and Family-Centered Care http://www.ipfcc.org/faq.html http://www.ipfcc.org/faq.html Patient- and family-centered care is an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families. It redefines the relationships in health care. Patient- and family-centered practitioners recognize the vital role that families play in ensuring the health and well-being of infants, children, adolescents, and family members of all ages. They acknowledge that emotional, social, and developmental support are integral components of health care. They promote the health and well-being of individuals and families and restore dignity and control to them. Patient- and family-centered care is an approach to health care that shapes policies, programs, facility design, and staff day-to-day interactions. It leads to better health outcomes and wiser allocation of resources, and greater patient and family satisfaction.

8. Patient-and Family-Centered Care Shriners Hospital We understand that you are the expert on your child. You know how he will respond to new people and places, the best way to get her to take her medicine, how to settle him down to sleep at night, what she likes to do for fun and which stuffed animal absolutely must be packed in the bag when you come to the hospital. It is your detailed knowledge of your child that helps make our medical team more effective. And it is why we put the family at the center of our care

9. Patient-and Family-Centered Care Shriners Hospital Support groups for parents to help cope with caring for a child who is disabled or critically injured. Activities to keep siblings busy during hospital visits and groups to help siblings get to know other children who have brothers or sisters who are disabled or critically injured. Family accommodations available onsite so that you can be close to your child during his or her stay.

10. Patient-and Family-Centered Care Shriners Hospital Transportation assistance getting to and from the hospital for scheduled appointments. Psychological/psychiatric services for patients and families. Social workers to help families with a variety of issues at home and in the community.

11. Shriners Hospital, Chicago, IL http://www.shrinershospitalsforchildren.org/Hospitals/ http://www.shrinershospitalsforchildren.org/Hospitals/ Orthopaedics – Cerebral Palsy – Clubfoot – Dwarfism – Fracture Complication – Juvenile Rheumatoid Arthritis – Muscular Dystrophy – Scoliosis – Spina Bifida Burn Cleft Lip and Palate Spinal Cord Injury More….

12. RECREATION THERAPY AND CHILD LIFE

13. http://www.childlife.org/certification/ http://www.childlife.org/certification/ Certified Child Life Specialist

14. Lekotek http://www.lekotek.org/ http://www.lekotek.org/ Lekotek uses interactive play experiences, and the learning that results, to promote the inclusion of children with special needs into family and community life – Family Play Sessions – Toy Lending Library – Compuplay Family Computer Center Switches, iPads Locations in Illinois

15. Other Issues Latex allergies Infection control – Toy cleaning protocols – Activity area disinfected – Youth in isolation