1. 1 Fall 2010 Breast Oncology Program Breast Cancer: From Basics to Beyond SPORE Advocacy Commentary Shelley Volz, M.A. November 22, 2010

2. 2 Personal Breast Cancer Journey (1998-1999) Original Diagnosis November 1998 -- DCIS MRI January 1999 shows Invasive Cancer with lymph node involvement Mastectomy with Tram Flap Reconstruction Chemotherapy Radiation Survivor of breast cancer TREATMENT

3. 3 From Patient to Advocate

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6. 6 http://thinkbeforeyoupink.org/

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8. 8 Breast Cancer Advocates impact research 36 Advocates attended in 2009

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10. 10 Decision Services 2005-2010

11. 11 Three proven strategies to inform and involve patients Question-listing increases question-asking Summaries & recordings increase information recall O'Connor et al: Decision aids…. Cochrane Database Syst Rev, 2003 Kinnersley et al: Interventions before consultations …. Cochrane Database Syst Rev, 2007(3). Pitkethly et al: Recordings or summaries of consultations … Cochrane Database Syst Rev, 2008. Reviewing decision aids increases knowledge

12. 12 UCSF Breast SPORE Specialized Programs of Research Excellence National Cancer Institute Translational Research Program 67 active SPORES in 23 States studying 17 organs or systems Goal to fund projects that will result in new and diverse approaches to the prevention, early detection, diagnosis and treatment of human cancers. http://spores.nci.nih.gov/

13. 13 TARGET How long before SOC? How impact lumpectomy vs. mastectomy choice? How will patients make informed choices about their radiation options? Can we take what we’ve learned from the other decision aids and create our own? Who might fund it?