1. Immunology Nursing in Australia Geraldine Dunne BSc (Hons) RN, Clinical Nurse Consultant Department of Immunology & Infectious Disease, Sydney Children’s Hospital, Randwick, Sydney, Australia Geraldine.dunne@health.nsw.gov.au

2. Sydney Children's Hospital Network Sydney Children’s Hospital network consists of The Children’s Hospital at Westmead Sydney Children’s Hospital Randwick Both are: Tertiary referral centres with an A& E department Both hospitals have: Allergy & Immunology departments I am employed as a Clinical Nurse Consultant (CNC) at the Randwick campus within the department of Immunology and Infectious Disease

3. Skills and Experience RN (UK) RSCN (UK) BSc(hons) Child Health Adv Dip Child Development + Other short courses Immunisation for RN’s Certificate IV in Teaching and Assessing Experience in General Paediatrics both community and hospital based Previously, heavily involved in the world of allergy Managed NSW Anaphylaxis Training program Currently working in immunology and ID Involved with various projects through ASCIA 3

4. Role of Immunology Nurse Specialist in Australia Disparate group Non standardized No specific course or qualification required Role will vary according to State Size of department Funding Resources available

5. NSWRemaining 6 states in Australia Immunology across Australia Approximately 0-10 Immunology ‘centres’ across each state E.G. Tasmania does not have a major centre 3 main paediatric Immunology ‘centres’ within NSW 6 main adult immunology ‘centres’ within NSW

6. NBA (National Blood Authority) Approval of SCIg products 2013 Prior to new approval Recent changes in Australia:- SCIg Formally approved access to SCIg for a number of specific indications across Australia Introduced 2 products to the market Gammanorm 16.5% Imported Octapharma Evogam 16% domestic CSL Kiovig also available:- 10% for SC or IVI Availability of Normal Human Immunoglobulin (NHIg) only Indicated for IM use but was used ‘off license’ (CSL)

7. ASCIA Membership for Registered Nurses across Australia ASCIA Australasian Society of Clinical Immunology and Allergy 79 nurses who are members of ASCIA 16 nurses who are members of the ASCIA Nurses SCIg special interest group

8. ASCIA Projects to dateIn progress for In 2015 ASCIA 2014 ASCIA developed SCIg Position Statement SCIg support resources - patient booklet PID e-training for GPs. SCIg e-training for nurses to up- skill nurses starting to work in SCIg programs Guidelines documents relating to pre-transplant care and transportation of patients for transplant

9. Immune Deficiency Foundation Australia (IDFA) Consumer Group 9

10. My Contact details Geraldine Dunne BSc (Hons) RN Clinical Nurse Consultant Department of Immunology Sydney Children’s Hospital Randwick, Sydney, Australia Geraldine.dunne@health.nsw.gov.au 10