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“…bringing research based treatments into the lives of individuals with autism.” Dr. Fred Volkmar Director of the Yale Child Study Center.

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Presentation on theme: "“…bringing research based treatments into the lives of individuals with autism.” Dr. Fred Volkmar Director of the Yale Child Study Center."— Presentation transcript:

1 “…bringing research based treatments into the lives of individuals with autism.” Dr. Fred Volkmar Director of the Yale Child Study Center

2 “Leveraging Technology to Meet the Growing Demand for Autism Services” Jamie Pagliaro Co-Creator & EVP of Rethink Autism, Inc.

3 March 2012 1 in 88

4 U.S Department of Education (2010)

5 Child Count in 1999-2000Child Count in 2008-2009 Age 3-5 6311,389 Age 6-11 2,4085,974 Age 12-17 1,3385,028 Age 18-21 329961 Age 6-21 4,07511,963 Age 3-21 4,70613,352 IDEA Part B - Children with Autism in Michigan for 1999-2000 and 2008-2009 (Child Count by Age Group) ~3x

6 What the research is telling us… National Research Council Curriculum Areas:  Functional communication  Social instruction  Play and leisure  Cognitive and academic skills  Challenging behavior  Generalization and maintenance *For more information see Educating Children with Autism (2001)

7 What the research is telling us… National Established treatments – beneficial outcomes  11 treatments identified  Majority developed in the behavioral literature (e.g., Applied Behavior Analysis)  Examples: Comprehensive behavioral treatment Joint attention intervention Antecedent interventions *For more information go to www.nationalautismcenter.orgwww.nationalautismcenter.org

8 Michigan State University: ASD-Michigan Project (2011)  Most educators did NOT use effective strategies regularly.  Many students do NOT have access to the curriculum offered other students.  Educators have low expectations for students with ASD. One-third of the 194 Michigan teaching professionals responding said their students with ASD wouldn’t meet any grade-level achievement standards.

9 The Challenges faced by Schools & Service Providers… 1.How to standardize the delivery of research-based educational services for all children with autism? 2.How to provide training & support across multiple staff, families and geographic locations? 3.How to cost-effectively manage the increased demand for autism services?

10 The Costs…  Out-of-district placements  $60,000-$120,000 per year  Once students leave, they rarely come back

11 The Costs…  Costly related services & extra staff support  $40-$100 per hour  Layered into IEP’s with no plan to fade  Required to benefit from special education?

12 The Costs…  Staff burnout  The “hidden” costs of turnover  Recruiting, training, increased supervision

13 Who We Are… Mission To make research-based educational treatment tools accessible, affordable and easy-to-use for parents and professionals.

14 Bridget Taylor, Psy.D., BCBA-D, Chair  Rethink Autism - Senior Clinical Advisor Peter Gerhardt, Ed.D.  Organization for Autism Research Patricia Wright, Ph.D.  Easter Seals, National Autism Director Michael Alessandri, Ph.D.  Director, University of Miami - CARD Bill Jenson, Ph.D.  Professor, University of Utah Fred Volkmar, M.D.  Director, Yale Child Study Center Catherine Lord, Ph.D.  Cornell Medical Center Louis Vismara, M.D.  Co-Founder, M.I.N.D. Institute, UC-Davis Maurice Feldman, Ph.D., BCBA-D  Professor, Brock University Nicolette Bainbridge Brigham, Ph.D.  Director at TRIAD, Vanderbilt University Scientific Advisory Board

15 Parents/Individuals Nationwide Worldwide – 26 countries Professionals 100’s of school districts nationwide, and virtual schools Department of Defense – military base schools worldwide Health Net - behavioral health subsidiary (MHN) Medicaid coverage through waiver program in two states Web-based Educational Treatment Platform

16 Example MI Partners  Michigan Autism Alliance: Health Insurance Bill  ConsumerLink Networt: 500+ children in Wayne Co.  Henry Ford Health Center: Parent Training Model  Statewide Autism Resources & Training Center: Pilot  Detroit Public Schools: Pilot

17 Key Components Comprehensive curriculum Web-based Educational Treatment Platform

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19 Key Components Comprehensive curriculum Individualized assessment tool Web-based Educational Treatment Platform

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21 Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Web-based Educational Treatment Platform

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24 Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules Web-based Educational Treatment Platform

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26 Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules Data tracking & progress reporting Web-based Educational Treatment Platform

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29 Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules Data tracking & progress reporting Ongoing professional support Web-based Educational Treatment Platform

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31 Comprehensive Video-Based Autism Curriculum  1200+ video-based ABA* exercises  Research-based WITHOUT the jargon  Featuring children with autism Provides the TOOLS to teach! *Applied Behavior Analysis

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33 Comprehensive Video-Based Autism Curriculum  Point of diagnosis through adolescence  Covers the full spectrum  Benefits children with other disabilities Based on INDIVIDUALIZED needs!

34 Comprehensive Video-Based Autism Curriculum WINNER of the 2011 Education Innovation Summit Best in Class Curriculum Award WINNER of the 2011 CODiE Award Best Instructional Solution for Special Needs Students WINNER of the 2011 Interactive Media Award Best in Class Education Best in Class Healthcare

35 Comprehensive Video-Based Autism Curriculum The FIRST & ONLY Autism Curriculum aligned with the Common Core State Standards (www.corestandards.org)www.corestandards.org

36 Staff Performance Generalization Sample in Public School – Western U.S. (Cardinal & Jenson, 2011)

37 Student Skill Acquisition Sample in Public School – Western U.S. (Cardinal & Jenson, 2011)

38 What users are saying… “Since we met, we received our devices and the virtual curriculum. The other teacher as well as myself have been using it everyday since November 23 rd......The program is beyond words, especially when one takes into account it centralizes and breaks it down, as no two communication styles are the same (as is the case in my classroom). Thank you for inquiring, we are happy with the program, just could have used this 5 years ago.” Christopher O'Brien Self-contained Teacher

39 What users are saying… “We could not be more pleased with the rethink autism program and the quality of customer care service. As the sole curriculum or as a supplementary resource, rethink autism is well worth the cost!” Dr. Steven G. Caponegro Director of Special Services

40 What users are saying… “Thanks Robin! It was great to speak to you also! I always get reenergized when I talk to your people! I love that! Thanks for reaching out to me and to us-we love Rethink!!!!” Catherine Perison Behavior Intervention Specialist

41 For More Information: www.rethinkautism.com Contact: Jamie Pagliaro jamie@rethinkautism.com jamie@rethinkautism.com 1-877-988-8871 ext. 205


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