2 Contents Foreword What is Patient & Public Involvement (PPI)? p4 Why carry out PPI? p5Getting involved in PPI activities p6The PPI cycle: four types of activity p8A. Patients’ needs and views p10B. Participation and co-design p11C. Partnership in running services p12D. Planning and monitoring p13Involving seldom heard people and p14 diverse minority groupsOur commitment to our patients is to provide caring, safe, thoughtful and effective care. We have made a promise to patients that ‘we are here for you’.In making this a reality every day, for every one of our patients it is essential that patient and public opinion is heard, feedback is acted on, and lessons are learned.This guide has been introduced to help volunteers and other members of the public to support us in our Patient and Public Involvement activities. If you would like get involved please do get in touch with the PPI team.Chief Executive,Nottingham University Hospitals NHS TrustIn this document the term ‘patients and public’ encompasses patients, carers, service users, individuals, groups and communities. Depending on what we want to achieve we may involve different people or groups at different times.23
3 Why involve patients and the public? What is Patient and Public Involvement?PPI means putting patients and the public at the centre of all that we do, so they can:Let us know about their needs and experiencesIdentify what they want from servicesShare their ideas and get involved in service designHave a say on how services and plans are deliveredUnderstand why services need to changeTell us how we are doing delivering our promisesInvolve people in decisions about their treatmentUnderstand what’s going well.PPI helps us to be ‘here for you’Our promise to our patients at Nottingham University Hospitals NHS Trust (NUH) is that ‘we are here for you’. Through our Values and Behaviors project we have promised patients that they will feel cared for, feel safe, feel confident in their treatment and feel that our services are getting better.PPI is about listening to and involving patients and the public, so we can understand how we can best serve their needs as individuals. It helps us to be ‘here for you’ in ways they want.Why is PPI important?PPI is about understanding and valuing the benefits of involving patients, visitors, carers and other members of the public in the planning, development, day-to-day delivery and evaluation of health services. Effective PPI can improve patient care, and it’s a legal requirement too.What benefits are we looking for?By listening to patients’ views: we can learn about their needs and experiences and identify specific areas for improvementBy involving patients and the public in service design: we can ensure that our services are designed and adapted to respond better to the needs of individual patients and patient groupsBy running services in partnership with patients: we keep patients’ needs at the forefront of every decision we make, and allow alternative proposals to be developedBy measuring how we are doing: we can see how our improvement plans and activities are progressing.45
4 Getting involved in PPI activities PPI activities you can get involved inWe have a regular programme of events for our 10,000 Foundation Trust public membersOur Readers’ Panel advises us on patient information leaflets and other publicationsOur Patient Partnership Group meets monthly to comment on services and advise on PPI activitiesWe have a Young People’s ForumWe work closely with LINks (local involvement networks) and patient support groupsWe attend local community events and forums.Listening to patients’ experiencesWe measure the views of inpatients and users of other services through annual national surveys and monthly Trust-wide surveysWe use handheld ‘patient opinion trackers’ to understand patients’ experience of our services, and train volunteers to carry out these surveys and to undertake ‘observations of care’We have processes to manage and learn from patient complaints, concerns and compliments.The PPI cycleAll these activities form part of our PPI cycle and the next pages describe how you can help us by getting involved…At NUH PPI is everybody’s jobEverybody at NUH is committed to improving the health and wellbeing of the people we care for. Involving patients in improving services is an important part of our professional roles. Our Trust- wide values and behaviours state that:Improving services is everybody’s roleWe can start by listening to patients.Getting involvedThis guide has been introduced to help volunteers and other members of the public to support us in our PPI activities. If you are interested in getting involved please get in touch with the PPI team onext 7602967
5 The PPI cycle A. Patient needs and views Four types of PPI activity Getting new insight into the needs, views and experiences of the people we serve, listening to:Patient storiesFocus groups and discussionsOne-to-one interviewsB. Participation and co-designInvolving patients in designing improvements and making strategic decisions, through:‘In your shoes’ workshopsExperience-based designInformal consultation meetingsC. Partnership in running servicesGiving people a say in running our services, via:User and community groupsPatient championsCarer groupsD. Planning and monitoringChecking how we are doing and where to focus improvement efforts, using tools including:SurveysObservations during care and treatmentRecording and action planning.Four types of PPI activityAt NUH we use PPI across the life-cycle of service delivery and improvement, from listening to patients’ views, involving them in designing improvements, acting as partners in oversight of service delivery, and measuring how we are doing to identify new areas for improvement.A. Patient needs and viewsTypes of PPID. Planning and monitoringB. Participation and co-designC. Partnership in running services89
6 A. Patient needs and views B. Participation and co-design This includes approaches that staff and services use to gain insight into the needs, views and experiences of the people we provide a service to. This helps us to understand where we need to focus our improvement efforts and identify what works well to give positive feedback to our teams.Patient stories to inspire and motivate changeFocus groups to explore an issue in detailOne-to-one interviews to gain insight from a broader cross-section of the population.How can you get involved?The experience of every single patient or carer is important to us, and is an opportunity to learn and improve. Let us know if you or a family member of friend has had an experience at NUH from which we can learnTo support our frontline teams in their efforts to hear about patients’ experiences we can offer you training to listen to patients’ stories on the wards or to facilitate focus groups.This includes approaches that can help us involve patients and the public in designing service improvements and making strategic decisions:In your shoes: setting priorities with patients and building staff ownership for delivering themExperience-based design: staff and patients working together to design service improvementsInformal consultation meetings: getting public feedback to proposals, and listening to alternative approaches.How can you get involved?By registering your interest in supporting a specific service or group of services, we can let you know about the improvement events and workshops that will most interest youYou could support the services you are interested in by offering to help with ‘recruitment’ of patients and the public to attend events, for example by handing out leaflets.1011
7 C. Partnership in running services D. Planning and monitoring This includes approaches that give our communities and service users a say in how our services are run and help us to stay patient-focused in our day-to-day management and decision-making:User and community groups: regular meetings of people who are interested in specific services to provide insight into experiences and feedback on developmentsPatient champions: involving patients as observers at regular management meetings to ensure decision-making is patient-centredCarer groups: support networks for carers to understand their needs and experiences, and gain feedback on proposals.How can you get involved?You could join an existing user or carer group. Contact the PPI team for a list of current groupsWhere a user or carer group doesn’t currently exist we can support you to set up and run oneWe are actively looking for ‘patient champions’, so if you would like to attend key meetings to help us stay patient-focused please let the PPI team know.Approaches to check how we are doing in delivering our promises to ensure patients feel cared for, feel safe and feel confident in their treatment, and in delivering improvement plans:Surveys: can help determine priorities and track if services are improving over timeObservations during care and treatment: are helpful in providing immediate feedback to clinicians on the care they are providing and supporting behaviour changeRecording and action planning: after each PPI activity teams develop an action plan.How can you get involved?Learning how to undertake ‘observations of care’ is a simple way to help us ensure we are delivering our promises and procedures. It’s a lot easier than it sounds, so please get in touch with the PPI teamHelp us to get feedback from patients in real time through our ‘patient opinion tracker’ programme.1213
8 Involving seldom heard and diverse minority groups There are many people in our community whose views we have not heard as much as we could. Often it is these groups who do not access services they are entitled to and often need.There are many reasons why these groups are heard less than others, and so we need to work harder to ensure we do listen to their experiences and points of view. If you can help us to hear more about the needs and experiences of these groups and individuals, please get in touch with the PPI team.People who find it more difficult to have their views heard can include, but are not limited to:Anyone with a bad experience of the serviceEthnic minorities or people who don’t speak English as a first languagePeople with mental health issuesPeople with learning difficultiesDisabled peopleChildren and young peopleOlder peopleLesbian, gay, bisexual and trans peopleVictims of domestic abuseRefugees and asylum seekersHomeless peopleTravellersSingle parentsSex workersPeople who workCarersDrug users.1415
Your consent to our cookies if you continue to use this website.