1. Promoting patient-centred healthcare around the world Patient-Centred Healthcare: From Policy to Practice Jeremiah Mwangi, Senior Policy Officer 26 May 2008 Geneva, Switzerland AdvocacyCapacity Building Partnerships

2. Promoting patient-centred healthcare around the world Content of Presentation About IAPO Principles of patient-centred healthcare Patient-centred Healthcare research Current patient-centred initiatives Conclusion

3. Promoting patient-centred healthcare around the world About IAPO Unique global alliance of national, regional and international groups representing patients Established in 1999 Crossing borders and diseases Vision: Patients throughout the world are at the centre of healthcare 200 members spanning over 40 countries and all world regions Representing an estimating 365 million patients

4. Promoting patient-centred healthcare around the world What is patient-centred healthcare? Patient-Centred Healthcare Principles Respect and support for the individual patient, their wants, preferences, values, needs and rights Choice and empowerment Patient engagement in health policy (See www.patientsorganizations.org/involvement)www.patientsorganizations.org/involvement Access and support Information that is accurate, relevant and comprehensive (See www.patientsorganizations.org/healthliteracy)www.patientsorganizations.org/healthliteracy The essence of patient-centred healthcare is that the healthcare system is designed and delivered so that it can answer the needs of patients

5. Promoting patient-centred healthcare around the world Why patient-centred healthcare? Research Evidence – There is growing evidence of the benefits of its practice (including patient quality of life, improving physiologic measures and increasing efficiency of use of healthcare services) See ‘What is Patient-Centred Healthcare?: A Review of Definitions and Principles’ Available online: www.patientsorganizations.org/pchreviewwww.patientsorganizations.org/pchreview Patients support for a patient-centred approach – An IAPO study into the perceptions of healthcare of patient group members was undertaken by Consensus Research and supported by Pfizer Inc. The 12 countries included in the study were: UK, Germany, France, Hungary, Austria, Czech Republic, Italy, Spain, Belgium, Sweden, Canada, Nigeria.

6. Promoting patient-centred healthcare around the world The study results: demonstrated strongly shared views on the needs and concerns of members related to currently administered healthcare signalled a need for a shift to a more patient-centred approach to healthcare identified three recurring themes that illustrate shared concerns related to: timely access to the best treatment and information the right to participate in decisions at the individual patient level patient involvement in policy-making

7. Patient Involvement: Family Health Teams Partners: Institute for Optimizing Healthcare Outcomes (IOHO) – Blue Sky Family Health Team Objective: To improve patient self-management and self- management support within the context of regional healthcare reform Why: Chronic Disease Management in Canada was not meeting the needs of patients How: Through an integrated structure of healthcare providers, including physicians, nurse practitioners, pharmacists etc, and patient representatives. Promoting patient-centred healthcare around the world Patient-Centred Healthcare: Some practical examples

8. Patient Involvement: Family Health Teams How did the patient organization contribute: –Collaborates in identifying and training patient leaders and professional coaches in self-management; –Development of self-management tools to be used in collaboration between patients and healthcare providers; –Training of FHT staff on self-management support skills (e.g., asking open-ended questions, listening, and identifying barriers) –Engaging community-based support services (nutrition, fitness, stress management, and addictions counseling) in self-management model and collaborating on protocols for referral; –Evaluation and feedback on self-management partnership. Outcomes: Measures have been developed to measure changes in patient and health care professional behaviour including the measures that had been identified by the Ontario Ministry of Health as relevant to their Chronic Disease Management programs. Promoting patient-centred healthcare around the world Patient-Centred Healthcare: Some practical examples

9. People at the Centre of Health Care initiative: World Health Organization – Western Pacific Regional Office Identified changes in the delivery of healthcare globally that are altering community expectations of health care delivery. A common vision and framework for policy and action A system wide approach across four domains: Individuals, families and communities Health practitioners Health care organizations Health systems Within each of these domains, a policy framework has been designed as: “a menu of evidence-based interventions and best practices that promote people- centred healthcare and facilitate policy development and implementation at country level.” Promoting patient-centred healthcare around the world Patient-Centred Healthcare: A system wide approach

10. Promoting patient-centred healthcare around the world Conclusions The strain on healthcare systems is a massive global problem Meaningful patient engagement must be central to efforts to refocus health systems on people and patients. Issues of access to healthcare are integrally linked with provision of information and patient involvement in the delivery of healthcare and development of health policies The best way to achieve patient-centred healthcare is to have an approach based on strong values of respect, partnership and equity – no patient-centred healthcare without cooperation of all stakeholders IAPO welcomes and supports initiatives to reorient the healthcare system to be patient-centred

11. Contact us Please visit our website to find out more: www.patientsorganizations.org www.patientsorganizations.org If you would like to receive our free monthly email newsletter and details of other publications, please send your details to us: International Alliance of Patients’ Organizations 703 The Chandlery 50 Westminster Bridge Road London SE1 7QY United Kingdom Tel: +44 20 7721 7508 Fax: +44 20 7721 7596 Email: info@patientsorganizations.orginfo@patientsorganizations.org Website: www.patientsorganizations.orgwww.patientsorganizations.org Promoting patient-centred healthcare around the world