Presentation is loading. Please wait.

Presentation is loading. Please wait.

Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Childrens Foundation Dr Honor.

Similar presentations


Presentation on theme: "Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Childrens Foundation Dr Honor."— Presentation transcript:

1 Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Childrens Foundation Dr Honor Nicholl School of Nursing and Midwifery, Trinity College, Dublin *** A review of specialist community service in Ireland November 2012

2 The aim of this presentation is to overview the services provided by the Jack & Jill Childrens Foundation to children in Ireland who have neurodevelopmental disabilities.

3 The Jack & Jill Foundation established in 1997 by Jonathan Irwin and Mary Ann OBrien Registered charity in Ireland Based in Naas, County Kildare

4 CEO Board Of Trustees Administration team ( 9 plus CEO) 11 Registered Childrens Nurses 3 volunteers

5

6 11 Registered childrens Nurses All RCNs with other qualifications All have 1-16 years of experience in childrens community care with the Foundation

7

8 Cover all 26 counties Liaison nurse covering 1- 6 counties each Anne Reilly Cathy Keighery Caroline Thomas Eilin Ni Mhurchu Marie Bowen Joanne Doyle Mags Naughton Rhona Kett-Sheridan Saundra Nolan Sinead Moran Mary Joe Guilfoyle

9 Criteria We provide home respite care to families of children with severe developmental and non oncology palliative care needs up the age of 4 years 1579 families to date 294 children currently receiving service

10 Referral Assess a need Fund home services Provide direct care Liaison function Ongoing support

11 Annual Family day Advocacy Strategic developments Remembrance day Family support Fund raise

12 Analysis of Organisational statistics from our database Liaison Nurses examined Client Case Notes No ethical approval required

13

14 New referrals 715 children 100 separate diagnoses Outcomes Outcomes Over 4 cessation of service [ 29%-62% pa ] Improved assessed off books before 4 [ 7%-24% pa] Death = 175 over

15 Average age at referral was 13 months Average duration of care provision was 17 months

16 175 children 50% male and 50% female 35 % died in hospital 61% died at home 3 children died on the way to hospital 1 death in residential care (transferred to Europe) 1 child died abroad on holiday 3 children died in respite

17 OF INTEREST 25% of children referred passed away during their time with our service, 60% of these children died at home. National average for children 0-18 years who die at home is 11% (DoH&C 2009) 64% of deaths occurred in the first year of life

18 Rapid response Unpredictability Children dying at home Service needs Staff needs FUNDING

19 Duration of our service provision Services ceases at age 4 years Seeking homecare packages for children who continue to need care at home after leaving the services of the foundation. Need a cohesive pathway for these children

20 Amy (Edwards Syndrome) John (Lissencephaly)

21 Thank you! Any questions


Download ppt "Anne Reilly RGN, RCN, MSc. Margaret Naughton RGN, RCN. Saundra Nolan RCN, RGN, BNS. Community Liaison Nurses The Jack & Jill Childrens Foundation Dr Honor."

Similar presentations


Ads by Google