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Whats Wrong with You? Hidden Disabilities and Diversity in the Library Workplace National Diversity in Libraries Conference: From Groundwork to Action.

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Presentation on theme: "Whats Wrong with You? Hidden Disabilities and Diversity in the Library Workplace National Diversity in Libraries Conference: From Groundwork to Action."— Presentation transcript:

1 Whats Wrong with You? Hidden Disabilities and Diversity in the Library Workplace National Diversity in Libraries Conference: From Groundwork to Action July 14-16, 2010 Nedelina Tchangalova, nedelina@umd.edu Aimee Babcock-Ellis, aimeebe@gmail.com University of Maryland Libraries

2 Learning Outcomes 1. Participants will recognize and understand hidden disabilities 2. Participants will learn about potential accommodations 3. Participants will learn how to advocate for people with hidden disabilities

3 Outline Hidden Disabilities 1. The most common 2. Demographic statistics 3. Definition 4. Research findings 5. Specific characteristics 6. Accom- modations 7. Advocacy

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6 Whether you are helping a library user… Do you have anything for people who arent dummies? Source: http://www.CartoonStock.com

7 Or dealing with your own disability…

8 The list goes on… 1.ADHD 2.Ageusia 3.Agoraphobia 4.AIDS 5.AIDS/HIV 6.Alcoholism 7.Allergy 8.Anosmia 9.Antisocial 10.Anxiety Disorders 11.Arachnoiditis 12.Arthritis 13.Asperger Syndrome 14.Asthma 15.Attention Deficit Disorder 16.Avoidant 17.Bipolar Disorder 18.Blurred Vision 19.Borderline 20.Brain Injuries 21.Cancer 22.Cataracts 23.Charcot-Marie-Tooth disease 24.Chronic Dizziness 25.Chronic Epstein-Barr Virus 26.Chronic Fatigue 27.Chronic Illness 28.Chronic Migraines 29.Chronic Musculoskeletal Pain 30.Chronic Pain

9 31.Circadian Rhythm Sleep Disorders 32.Coeliac Disease 33.Cognitive Disabilities 34.Color Blindness 35.Communication Disorder 36.Crohn's Disease 37.Deafness 38.Degenerative Disc Disease 39.Dementia 40.Depression 41.Diabetes 42.Drug Addiction 43.Dyscalula 44.Dysgraphia 45.Dyslexia 46.Emphysema 47.Epilepsy 48.Fibromyalgia 49.Food Allergies 50.Fructose Malabsorption 51.Gastrointestinal Disorders 52.Headaches 53.Hearing Impairment 54.Heart Conditions 55.Heart Disease 56.Hemophilia 57.Hepatitis 58.Hereditary Fructose Intolerance 59.Histrionic 60.Hyperhidrosis … and more

10 61.Hypertension 62.Hypoglycemia 63.Inflammatory Bowel Disease 64.Interstitial Cystitis 65.Irritable Bowel Syndrome 66.Kidney Failure 67.Klippel-Trenaunay Webber Syndrome 68.Lactose Intolerance 69.Learning Disabilities 70.Lung Disease 71.Lupus 72.Lyme Disease 73.Mental Retardation 74.Metabolic Syndrome 75.Migraine 76.Multiple Chemical Sensitivity 77.Multiple Sclerosis 78.Obsessive-Compulsive Disorder 79.Panic Disorder 80.Paranoid 81.Paraplegia 82.Prader Willi 83.Personality Disorders 84.Phobias (heights, water, dark, etc.) 85.Post-Traumatic Stress Disorder 86.Primary Immunodeficiency 87.Psychiatric Disabilities 88.Quadriplegia 89.Reflex Sympathetic Dystrophy 90.Renal failure …and even more

11 91.Repetitive stress injuries 92.Respiratory Disabilities 93.Rheumatoid arthritis 94.Schizoid 95.Schizophrenia 96.Schizotypal 97.Scleroderma 98.Seasonal Affective Disorder 99.Sickle Cell Disease 100.Sleep Disorders 101.Somatosensory Deficit 102.Speech impairment 103.Stress 104.Temporomandibular Joint Disorder 105.Thyroid Disorder 106.Tourette Syndrome 107.Transverse Myelitis 108.Traumatic Brain Injury 109.Ulcerative Colitis 110.Vertigo 111.Vision Problems 112.…. 113.…. 114.…. 115.… 116.…. 117.… The list is endless… Reference: Job Accommodation Network, Accommodation Information by Disability: A to Z http://askjan.org/media/atoz.htm

12 Source: http://www.picturesdepot.com

13 1.Abraham Lincoln 2.Agatha Christie 3.Albert Einstein 4.Alexander Graham Bell 5.Alexander the Great 6.Amy Ecklund 7.Andrea Bocelli 8.Ann Bancroft 9.Annette Funicello 10.Bill Clinton 11.Billy Barty 12.Billy Graham 13.Bob Jimenez 14.Bob Love 15.Bree Walker 16.Bruce Jenner 17.Carly Simon 18.Casey Martin 19.Chang and Eng 20.Charles Schwab 21.Cher Entertainer 22.Chris Burke 23.Chris Fonseca 24.Christopher Reeve 25.Chuck Close 26.Curtis Pride 27.Dale S. Brown 28.Daniel Inouye 29.Danny Glover 30.David Jones 31.Dr. Red Duke 32.Dwight Mackintosh 33.Edward Hallowell 34.Edward James 35.Ellie Hawkins 36.Eric Wynalda 37.Ernest Hemingway 38.Fanny Flagg 39.Florence Henderson 40.Frank Dunkle 41.Frank Wolf 42.Franklin Delano Roosevelt 43.Fred Curry 44.Gaston Caperton 45.George Burns 46.George Patton 47.Gheorghe Muresan 48.Greg Louganis 49.Gretchen Josephso 50.Gustave Flaubert 51.Hans Christian Andersen 52.Harriet Tubman 53.Harry Anderson 54.Harry Belafonte 55.Harvey Cushing 56.Heather Whitestone 57.Helen Keller 58.Henry Winkler 59.Itzhak Perlman 60.Jackie Stewart 61.James Brady 62.James Earl Jones 63.Janet Reno 64.Jerry Lewis 65.Jim Abbott 66.Jim Eisenreich 67.John Callahan 68.John Corcoran 69.John Hockenberry 70.John Horner 71.John Updike 72.Johnny Cash 73.Joseph Biden 74.Joseph Heller 75.Judith Heumann Famous People with Disabilities Source: http://freedee.us/images/FamousPeopleDisabilities.pdf

14 76.Katherine Hepburn 77.Kirk Douglas 78.Kurt Vonnegut 79.Leonardo Da Vinci 80.Lewis Carroll 81.Linda Hunt 82.Lindsay Wagner 83.Ludwig von Beethoven 84.Magic Johnson 85.Mahmoud Abdul-Rauf 86.Marilyn Monroe 87.Marlee Matlin 88.Mary Verdi-Fletcher 89.Matt Luke 90.Michael J. Fox 91.Michael Wolff 92.Mike Wallace 93.Mikhael Gorbachev 94.Montel Williams 95.Muhammad Ali 96.Nancy L. Sonnabend 97.Nancy Mairs 98.Neil Bush 99.Nelson Rockefeller 100.Nola D. Chee 101.Nolan Ryan 102.Patricia Polacco 103.Patty Duke 104.Paul J. Orfalea 105.Paul Longmore 106.Pope John Paul II 107.Ray Charles 108.Richard Strauss 109.Richard Thomas 110.Rita Hayworth 111.Robert Dole 112.Robert Rauschenberg 113.Roger W. Wilkins 114.Ron Harper 115.Ron Kovic 116.Ronald Reagan 117.Russell White 118.Samuel Johnson 119.Stephen Bacque 120.Stephen Hawking 121.Stephen J. Cannell 122.Stevie Wonder 123.Sylvia Law 124.Terry Bowersock 125.Thomas Edison 126.Thomas H. Kean 127.Tom Cruise 128.Tom Smothers 129.Tom Thumb 130.Tomima Edmark 131.Tracey Gold 132.Ved Mehta 133.Victor Villasenor 134.Virginia Woolf 135.W.C. Fields 136.Walt Disney 137.Walter Cronkite 138.Whoopi Goldberg 139.William B. Yeats 140.William James 141.William Simmons 142.Winston Churchill 143.Wolfgang Amadeus Mozart 144.Woodrow Wilson Source: http://freedee.us/images/FamousPeopleDisabilities.pdf Famous People with Disabilities continued

15 Lets explore vision disabilities… Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov

16 Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov/health/glaucoma/

17 Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov/health/cataract/

18 Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov/health/diabetic/

19 Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov/health/examples/#5

20 Source: National Eye InstituteNational Institutes of Health, http://www.nei.nih.gov/health/maculardegen/index.asp

21 To sense a dyslexic's reading experience, read the following paragraph: Appasiq or Addasibe, Aragic family bescengeb from Aqqas, the uncle of Muhawwad. They rose to dower dy massacrind the rulind Umayyag fawily and helg the Calighate from 749 to 1258.Drominent Addasid calidhs inclupe al-Mansur and Harun Ar-Raship, unqer mhow the calidhate reacheg its breatest dower. Source: http://www.etni.org.il/etninews/inter2d.htm#ABBASID Abbasid or Abbaside, Arabic family descended from Abbas, the uncle of Muhammad. They rose to power by massacring the ruling Umayyad family and held the Caliphate from 749 to 1258. Prominent Abbasid caliphs include al-Mansur and Harun Ar-Rashid, under whom the caliphate reached its greatest power.

22 Link awoke one day to find himself deep in a strange forest. As he started to walk through the woods, he heard cries for help coming from just up ahead of him. Link hurried toward the voice, only to find a group of monsters surrounding the woman who was screaming. When the monsters saw Link, they immediately fled. Now, can you read this paragraph? Source: http://www.dyslexiaaustralia.com/whattheysee.htm

23 Link awoke one day to find himself deep in a strange forest. As he started to walk through the woods, he heard cries for help coming from just up ahead of him. Link hurried toward the voice, only to find a group of monsters surrounding the woman who was screaming. When the monsters saw Link, they immediately fled. A person with a dyslexia sees this! Source: http://www.dyslexiaaustralia.com/whattheysee.htm

24 And this… Source: http://www.dyslexiaaustralia.com/whattheysee.htm

25 And this… Source: Reading by the colors : overcoming dyslexia and other reading disabilities through the Irlen method by Helen Irlen

26 And this… Source: Reading by the colors : overcoming dyslexia and other reading disabilities through the Irlen method by Helen Irlen

27 And this… Source: http://www.dyslexia.com/library/information.htm#See

28 Public Service Announcement (PSA) PSA on Social Issue: Disability (1 min) http://www.youtube.com/watch?v=lXJgDigUWaA Now, lets explore hearing disabilities…

29 Demographics National level

30 Demographics cont. Library professional level

31 Demographics cont. Local level Washington DC area (three institutions)

32 I am a 54 years old African American female. My goal is to obtain my PhD. I am an over-achiever, so I work very hard to work around my disabilities. I had inherited my grand- fathers motivation and thirst for knowledge. I am finishing up a doctoral program in Audiology. Who are the individuals with hidden disabilities?

33 I am a 54 years old African American female. My goal is to obtain my PhD. I am an over-achiever, so I work very hard to work around my disabilities. I had inherited my grand- fathers motivation and thirst for knowledge. I am finishing up a doctoral program in Audiology. Who are the individuals with hidden disabilities?

34 Hidden Disabilities Defined 1.Impairment in functioning 2.Decrease in quality of life 3.Restricted lifestyle 4.Focus on pain 5.Feeling defensive 6.Stigma 7.Chronicity 8.Feeling misunderstood Reference: Taylor, S. Living well with a hidden disability, Oakland, Calif. : New Harbinger, 1999 Hidden disabilities Medical Psychological

35 Source: EmployAbility: A Resource Guide on Disability for Employers in Asia and the Pacific by Debra A. Perry, editor Inferiority Pity Hero worship Ignorance Spread effect Stereotypes Backlash Denial Fear Attitudinal Barriers

36 1.Supervisors dont know policies and procedures 2.Staff dont know if Libraries have a policy 3.Relationship of supervisor and staff determine disclosure 4.Environment not welcoming 5.Personal beliefs 6.Lack of education on hidden disabilities Research Findings

37 Frequent requests to have information repeated Difficulty paying attention Confusion Difficulty following directions Impulsive behavior Sudden changes in mood Shortness of breath Significant fatigue Difficulty sitting still or standing for long periods Sudden weight loss or gain Frequent medical appointments or treatments Recognizing the Hidden Disability

38 Workspace Equipment Materials Work schedule Job restructuring/sharing Increased/modified supervision Mentoring Accommodations

39 The X-Files (1993) Season 3, Episode 22: Quagmire

40 No, Im not being flippant. I mean, Ive given this a lot of thought. If you have a peg leg or hooks for hands, you know, maybe its enough to simply carry on living – you know, bravely facing life with your disability. Its heroic just to survive. But without these things, youre actually expected… to make something of your life – achieve something, earn a raise, wear a necktie… because if I did have a peg leg Id quite possibly be more happy and more content… and not feel the need to chase after these creatures of the unknown… The X-Files: Quagmire (Excerpts from the episode)

41 When I get my PhD in Education, I am going to fight for people, like myself, who are on disability, and are labeled or misunderstood because the rest of the world think disabled people have brains that can no longer function. When I was in elementary school, I was considered a freak because of my ADD. When I got into college, I was considered a faker. Our survey respondents said…

42 Advocacy Provide an environment conductive to self-disclosure Learn more about hidden disabilities Form a disability support group

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