1. Wake Up London The Impact of Dementia on London’s Black, Asian and Minority Ethnic Communities

4. What does this mean for London communities? Black African and African-Caribbean 58% of the UK’s black ethnic groups (Black African-Caribbean, Black African and Black Other) live in London and also that the African-Caribbean population is demographically the 'oldest' of the black ethnic groups. This are over 3,760 people over 65 across all Black communities living with dementia in London today. African-Caribbean people have an increased risk of vascular dementia and higher prevalence of young onset dementia that White UK population

5. Irish The Irish community in the UK is the ‘oldest’ demographically so will have the highest proportion of dementia. This are over 2,750 Irish people over 65 from this communities living with dementia in London today. While it is well known that the Irish population have high risk for a variety of health problems there are no studies of the impact of dementia on the Irish community in London or England as a whole What does this mean for London communities?

6. South Asian While there are over are over 5,290 people of South Asian ethnicity living with dementia in London the majority (about 2,900) are of Indian ethnic identity as the Pakistani and Bangladeshi groups are demographically ‘younger’ There are very few studies of the impact of dementia on South Asian communities despite what is known about the stigma of mental health issues in the communities and the fact that they are at higher risk of vascular dementia due to the higher incidence of hypertension than the White UK population What does this mean for London communities?

7. What does this mean for other London communities? Arabic Jewish Chinese White Other

8. Family member with increasing memory loss & erratic behaviour Increased carer burden & isolation Carer has health crisis Patient Person living with dementia has health crisis Hospital Admission Residential Care Admission Carer unable to continue with care CRISIS POINT What does this mean for individual families? Impact of stigma and lack of information No suitable home based care can be provided

9. A London wide campaign reaching out to black and minority ethnic communities to reduce stigma about dementia and provide information on how to get further information and access to services. On-line resources targeted at black and minority ethnic communities to provide information and peer based support. A research programme at a regional level targeting high risk communities to gain better understanding of managing the risk factors. A regional expert advisory panel to support effective commissioning and a co-production approach to service development. A regional commissioning strategy that invests in appropriate services to address the volume of delivery in an economically effective way across the region. What could a London-wide solution look like ?

10. Contact details David Truswell David.truswell@nhs.net Or access the resources and professional networking links at Or keep up with the blog at http://www.facebook.com/pages/Resources-for-Dementia-and-Black-Minority-Ethnic- and-Refugee-Communities/122493921131184 http://www.linkedin.com/groups?home=&gid=4271774&trk=anet_ug_hm& http://davidondementia.livejournal.com/1455.html#