2. Presenters Anita Buel Deaf Community Health Worker PEER Place Marty Barnum Regional Ombudsman Office of Ombudsman for Long-Term Care A Service of the MN Board on Aging

3. Awards Other Screenings: St. Catherine’s University, St. Paul, Minnesota Minnesota Deaf Senior Citizens Sorenson Communications®, SIGNetwork Deaf Perspectives and Video Center streaming November 2012 National Symposium on Health Care Interpreting, CATIE Center, St. Catherine’s University, July, 2012 University of South Florida, Tampa (October 27, 2012) National Center for Deaf Health Research, University of Rochester Medical Center, Rochester, New York Multicultural Conference, San Antonio, Texas Robert Wood Johnson Community Health Leaders Conference, San Antonio, Texas Workshops Based on Film: Coburn Cancer Center, St. Cloud Hospital, CentraCare Health System, St. Cloud Minnesota Metro Minnesota Oncology Nursing Society Southeast Minnesota Oncology Nursing Society Mayo Innovations in Cancer Care Conference, September 2013 Moffitt Cancer Center, Tampa, FL Organizations Purchasing film for education of patients and providers: CATIE Center, St. Catherine’s University, St. Paul, MN Deaf Empowerment Foundation, India San Antonio College, San Antonio, Texas Gallaudet University, Washington, D.C. Hennepin County Medical Center (HCMC), Minneapolis, MN Lyngblomsten Care Center, St. Paul, MN MN Oncology Moffitt Cancer Center, Tampa, FLA Rochester Institute of Technology, Rochester, NY San Antonio College, San Antonio, Texas Troy University, Troy Alabama

4. Reactions

5. Panelists Dennis Berg – husband Tim Buel – husband

6. Imagine: You have a Deaf cancer patient. Suddenly she gets unbearable pain and has to go to the ER What do you think is her BIGGEST worry?

7. Will the interpreter understand me? Will I understand the interpreter? Will the interpreter understand the medical information? Interpreter? WHO? On time? Not leave early?

8. Stories and Language: Patient Judy This was a critical appointment in terms of the research related to getting the patient to start taking medication. Based on what you saw and heard, how did the patient feel? How did the doctor feel? How would you rate the listening/telling tasks of patient & provider? What got in the way? Can you identify any unspoken subtexts? What information surfaces in the parking lot after the appointment? Was there anything the patient said that “surprised” you or made you wonder what she meant? What did the doctor to do to try to bridge the communication gap? Did you ever wonder if the interpreter really signed what was said?

9. Sue Mahler Oral education Voice – comprehensible? Sister and doctor

10. Sue: The story unknown to her doctor American Sign Language is a language. Signed English (using signs in English word order) is not a language but a mode of communication. Less common modes include cued speech and the Rochester (NY) method, which is almost solely made up of fingerspelling The oral method has been a source of dispute for over 100 years. It focuses solely on lipreading and speech. Oral schools still exist and in some, any use of hands (signing) is strictly forbidden. How does the interpreter make it clear who is speaking? Sue signs sometimes and speaks sometimes. The interpreter is forced to use signed English and also “mouth” words to adjust to an oral Deaf person. Do you notice any point where it might NOT be clear to Sue whether it is the doctor or her sister who is speaking?

11. Better Communication Better Health Better Communication Better Health

12. Better Communication Better Health Better Communication Better Health Comprehension

13. Ripple Effect…

14. Dedicated to the doctors, nurses, patients, interpreters, family members and friends who told their stories so that others could learn from their experiences – and be changed.