1. Introducing the Administrative Data Research Network Melanie Wright

2. Why are ADRN here today  Administrative Data Taskforce report Dec 2012  Government response June 2013  Network commissioned October 2013  Network ‘open for business’ November 2014  Involved in Open Policy Making process almost from beginning  Served as a model for data-sharing for research strand Introducing the Administrative Data Research Network | RSS | 17/03/2016

3. Our Structure  Administrative Data Service - University of Essex  4 Administrative Data Research Centres  England – University of Southampton  Northern Ireland – Queens Uni Belfast  Scotland – University of Edinburgh  Wales – Swansea University The Network is funded by the Economic and Social Research Council. 5-year grant Oct 2013 – Sept 2018 Introducing the Administrative Data Research Network | RSS | 17/03/2016

4. Our Governance and Oversight  ADRN Board convened by UK Statistics Authority – reports to Parliament  Internal management structure reporting to ESRC – reports to BIS  Approvals Panel of independent experts  Expert Scientific Advisory groups Introducing the Administrative Data Research Network | RSS | 17/03/2016

5. How It Works  Application  Ethical review, privacy assessment, feasibility, potential public benefit & scientific merit  Approvals Panel of independent experts  Accreditation and training  Negotiation for permission to access & link  Linkage via Trusted Third Party  Analysis in a secure environment  Results of analyses checked before released  Plain English summaries of research published Introducing the Administrative Data Research Network | RSS | 17/03/2016

6. Current Projects Status  47 Developing application (7 going to April Panel)  30 Approved by Panel; in or awaiting data negotiations  3 Data supply agreed: Awaiting extraction of data  6 Data with secure environment (ADRC) / analysis underway  2 Analysis complete Introducing the Administrative Data Research Network | RSS | 17/03/2016

7. Current Projects An Investigation into the Impact of Disability on Employment in Wales The Residential Mobility of Mental Health Service Users (MHSUs). Social Defeat in Northern Ireland: Assessing the Impact of Social Risk Factors on Serious Psychiatric Disorders Using Data Linkage Link between congenital heart diseases early in life and educational outcome in NI. Understanding participation in post-compulsory education and training in Wales Examining contributory factors in road traffic collision data involving older people in Wales Improving the experience of dementia and enhancing active life: living well with dementia - the IDEAL study– data linkage extension Refugees, Dispersal and Deprivation SEED Better Decisions: Uncovering how patients' socioeconomic, educational and demographic factors impact clinical decision-making. Understanding the determinants of educational achievement and the association with health and well-being by age 14 in Wales Informal care in the last days of life: a data linkage study. Past and Current Same Sex Couples in Northern Ireland: An Exploratory Analysis. Understanding outcomes for children from Scottish Children's Reporter Association (in conjunction with the British Association for Adoption and Fostering) Investigating the impact of a sick sibling on family health and educational outcomes An investigation of maternal mental health and filial educational attainment in Scotland Placement stability of children in out of home care in Scotland: A sequence analysis Does priority need for homeless prison leavers reduce recidivism? A case study from Wales Effects of Local Housing Allowance Reform on the Private Rental Market Introducing the Administrative Data Research Network | RSS | 17/03/2016

8. Current Projects Extending the opportunities for prevention of suicide: linking dispensing and employment data to the Suicide Information Database- Wales (SID-Cymru). Examining the link between family health events and pupil performance indicators in Wales. An exploration of maternal and infant health and educational outcomes following metformin exposure in pregnancy - using linked administrative data Feasibility study exploring the use of data linkage in the evaluation of the Supporting People Programme Evaluating the use of contextual data in undergraduate admissions Economic change and internal population dynamics: an innovative study of new residential mobilities in Scotland Methodological innovation in the spatial analysis of educational micro-data: understanding social and spatial inequalities A pilot ADRC-NI project linking Social Security Benefits and Census data to identify those least likely to claim disability related benefits. Improving Migration Statistics by Combining Survey Data Prevalence and variation in antidepressant prescribing across Northern Ireland: a longitudinal administrative data linkage study for targeted support. Higher Education: Access, Earnings and Employment The kinds of poverty in schools and their impact on student progress Assessing the relationship between concessionary bus use and health for older people in Wales Leading for Growth: Top Teams and SME Performance. Use of out-of-home care for children born with drug withdrawal syndrome: longitudinal study of mothers and children using linked administrative data. Introducing the Administrative Data Research Network | RSS | 17/03/2016

9. Current Projects Assessing the impact of measures to raise attainment and take-up of STEM subjects Energy efficiency and household health co-benefits: building the evidence Residential mobility and diabetes. The wider impacts of benefit sanctions: educational attendance, behaviour and attainment Technical change, employment and inequality. A spatial analysis of households and plant data. Examining the effect of relative housing wealth on individuals’ Health and Well-Being (H&WB). Examining risk factors for Domestic Abuse and Child Sexual Exploitation to inform future policing in the Swansea area Job quality, well-being and health. Understanding Educational Disadvantage among Primary School Children in England Investigating the role of buses in access to hospitals Pipeline and Return to Science and Mathematics A Longitudinal Examination of Educational Attainment throughout the School Lifecourse in Aberdeen: Inequality at the Starting Gate and Beyond Evaluating the effects of Community Treatment Orders (CTO) in England Evaluating the impacts of Welsh Government funded schemes designed to improve the energy efficiency of homes of low income households on health outcomes through the use of existing data The effect of unexpectedly high patient demand in midwife units on educational outcomes. The Economic Burden Associated with Mental Ill Health Among Informal Caregivers in Northern Ireland: an investigation of economic transitions and economic costs. Pilot of the Healthy Ageing In Scotland (HAGIS) study Liquidity Constraints and the Duration of Unemployment in the UK Introducing the Administrative Data Research Network | RSS | 17/03/2016

10. Current Projects Status  47 Developing application (7 going to April Panel)  30 Approved by Panel, in data negotiations  3 Data supply agreed: Awaiting extraction of data  6 Data with secure environment (ADRC) / analysis underway  2 Analysis complete Introducing the Administrative Data Research Network | RSS | 17/03/2016

11. Blockages to Progress  Detailed knowledge and understanding of what data exist, down to variable level  Dept resources to prepare and share  Legal interpretation: two sides to the coin  Once bitten twice shy (data loss scandals, care.data)  Lack of precedent: how safe is safe enough  Generalised bureaucrat risk aversion  Researcher skepticism Introducing the Administrative Data Research Network | RSS | 17/03/2016

12. What Difference Will Legislation Make  Simplify the painfully complicated legal landscape  Not Prohibited vs Explicitly Permitted  Enable broader research use of HMRC data  Establish ADRN model as best practice; standardise safeguards  Make data linkage for research ‘business as usual’  Necessitate proper funding of data sharing activities within government  Improve government data management practices  Lessen researcher skepticism Introducing the Administrative Data Research Network | RSS | 17/03/2016

13. What I Wish the Proposal Included  Department of Health data  Census data  Even stronger language that depts should participate https://www.whitehouse.gov/sites/default/files/omb/memoranda/2014/m-14-06.pdf  Funding for depts to participate  Possibility of re-use of linked datasets  Funding for enabling infrastructures such as ADRN Introducing the Administrative Data Research Network | RSS | 17/03/2016

14. Our Mission and Vision To benefit society and quality of life through intelligent social research To place the UK at the forefront of innovative social and economic research http://adrn.ac.uk Introducing the Administrative Data Research Network | RSS | 17/03/2016