1. [State] Newborn Screening Public Policy [Members Names]

2. Values Identify and explain what values played a role in your group’s decisions. Where did these values come from (which role)? Were there any universal values?

3. Payment How will these tests be paid for? What happens if someone doesn’t have insurance? Justify

4. Uses of Information How ill the screening information be used? To whom is it of value?

5. Alpha – 1-anitrypsin Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

6. Alzheimers Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

7. Breast Cancer Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

8. Cystic Fibrosis Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

9. Galactosemia Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

10. Huntington’s Disease Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

11. Hypothyroidism Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

12. Maple Syrup Urine Disease Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

13. Neurofibromatosis Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

14. PKU Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

15. Sickle Cell Disease Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

16. SLO/RSH Screen or not? Why – refer to demographics, costs, effectiveness, reliability, importance Would it be mandatory, optional (for anyone or particular populations) or not available at all?

17. Impacts from This Policy Who will be affected positively and negatively by the decision for each disorder? Explain how they will be affected.