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Patient Resources Debbye Shepherd, ACNP Pituitary Center Nurse Practitioner.

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Presentation on theme: "Patient Resources Debbye Shepherd, ACNP Pituitary Center Nurse Practitioner."— Presentation transcript:

1 Patient Resources Debbye Shepherd, ACNP Pituitary Center Nurse Practitioner

2 Prior to Surgery/After Discharge Ask your doctor Dr. Knecht/Boron: hormone-related questions 602-406-2323 Dr. Little/White: surgery-related questions 602-406-6281

3 Immediately Post-op Again, ask your doctor Likely also meet other members of the pituitary team: –Endocrine fellow –Neurosurgery resident physicians –Nurse practitioner If you have questions during your hospital stay, let the RN know and a member of the team is always available to address your questions/concerns

4 Online Sites Be careful with online information, ALWAYS take with a grain of salt Some sites are more reputable that others and information is more closely monitored If you read something online that seems to contradict what you understand from your physician, please review with them prior to making changes to your medical management Even something like dietary changes/ supplements can be important

5 Online Sites Pituitary Network Association www.pituitary.org –Informative, accurate –Resources out of state –PNA membership: $55 gives you access to a support forum The Pituitary Foundation www.piuitary.org.uk –Informative, easy to read format –Membership is ONLY for people living in UK

6 Online Sites The Pituitary Society www.pituitarysociety.org –Good overview and information about specific disorders –Membership is for healthcare providers Acromegaly Community, Inc www.AcromegalyCommunity.com

7 Online Sites Multiple sites specific to each disorder and several with free forums for discussion/support Emphasize: do NOT change your regimen based on advice/suggestions from these sites; ALWAYS check with your treating physician

8 Support Group? Interest in meeting? What would expectation be? Run by whom? Frequency/time of day to meet? If you think this would be helpful and you are interested in developing or attending a support group for pituitary disorders in the Phoenix area, please fill out the interest card and return to me!

9 A Special Thanks to our Sponsors Barrow Neurological Institute Corcept Ipsen KARL STORZ Endoskope


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