1. Using Patient Stories within the 1000 Lives Campaign in Wales Patient Stories – Anna Tee

2. Patient Stories What are we trying to accomplish?

3. Patient Stories “If we want to know how a person feels, we must begin by acknowledging the fact that there is one and only one observer stationed at the critical point of view... [she] is the only person who has even the slightest chance of describing ‘the view from in here’, which is why [her] claims serve as the gold standard against which all other measures are measured.” (Gilbert 2006)

4. Patient Stories The story is not the outcome – it is what you do with what you hear that is of the utmost importance

5. Patient Stories How will we know that a change is an improvement? What changes can we make that will result in an improvement?

6. Patient Stories Media Purpose: To validate the Campaign; Change a public mindset; Endorse good work and draw attention to flaws in the system How: Features in press/tv/web Campaign: Press Releases, Case Studies, Feature articles Patient narrative Maybe captured as a written account, or recorded interviews. Best to consider all potential uses and prepare accordingly Learning Purpose: To improve care How: Generating dialogue within teams; identifying needs; creating improvements, feedback outcomes (from Discovery) Campaign: Learning Sessions, How to Guides, Intranet dialogue. 1 Story - 4 Applications Collecting stories for the 1000 Lives Campaign Education Purpose: To see the patient as equal to the treatment; enabling a focus on the patient and not just the outcomes. How: course syllabus, lectures, etc Campaign: Learning Session, How to Guides, Intranet dialogue Inspire Purpose: To provide motivational reminders to frontline staff of ‘Why they do, what they do’ How: Distribute for use on Trust intranets, newsletters and in team meetings and conferences Campaign: Newsletters, E-bulletins, intranet/websites. Planning the Interviews Finding the stories Framing the questions Holding the interview Storage and retrieval Campaign Connectors Content areas Hearts and minds Healthcare improvement Local feedback Technicalities Written, audio, video Editing Photography Determining Uses Research Stories used as part of research projects should be based in perception and adherence to the truth of the participants experience. The Campaign work does not focus on this use.

7. Patient Stories

8. Preparation is the key

9. Patient Stories Do something with the information afterwards

10. Patient Stories Remember - the story is not the outcome – it is what you do with what you hear that is of the utmost importance Contact details for further information anna.tee@wales.nhs.uk