1. The Promise of Clinical Data Registries: Using Data to Improve Patient Health Outcomes TUESDAY, SEPTEMBER 9, 2014 12:30 pm - 2:00pm Eastern

2. Agenda WELCOME AND INTRODUCTIONS REGISTRIES: BRIEF OVERVIEW C-P Alliance’s criteria for registries SPEAKER PRESENTATIONS FEEDBACK FROM CMS PARTICIPANT DISCUSSION

3. The Agency for Healthcare Research and Quality (AHRQ) defines patient registries as a collection of uniform data (clinical and other) used to evaluate outcomes in specific populations for scientific, clinical or policy purposes. Registries for Evaluating Patient Outcomes: A User's Guide Definition of a Patient Registry

4. Defining Characteristics of a “Patient Registry” Types of Patient Registries –Multiple purposes –Varying levels of sophistication Overview of Patient Registries

5. C-P Alliance criteria in four areas: –Performance measures –Data quality and interoperability –Accountability –Quality improvement Guiding Principles

6. We designed this webinar to help consumer, labor, and employer advocates understand: –What defines a clinical quality data registry; –How registries can be used to improve quality and benchmark performance; –How registries can be used to support accountability and meaningful information for consumers; –Key challenges and opportunities. Webinar Objectives

7. Speakers Dr. Elliott Main, Medical Director of the California Maternal Quality Care Collaborative (CMQCC) Dr. William Rich, Medical Director of Health Policy for the American Academy of Ophthalmology (AAO) Chris Queram, President and Chief Executive Officer of the Wisconsin Collaborative for Healthcare Quality (WCHQ) Dr. Daniel Green, Medical Officer at Office of Clinical Standards and Quality at the Center for Medicare and Medicaid Services (CMS )

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