1. To Share or Not to Share? IGR 16 th October 2013 Janet Davies, Director of Nursing & Service Delivery

2. u Focus on Patients u Essential for Care Information

3. u Critical for Governance u Can restrict good practice Rules and Guidance

4. Citizens Said u Powerful stories reinforcing what the Future Forum heard u Strong support for –more sharing of information to support their care –anonymous data to be used “for the public good” –research but plea to be asked before information is used u Antipathy to their identifiable information being used for other purposes u No surprises and the complex area when carers are involved

5. Organisations Said u Anxious about sharing u Concerns about organisations’ reputation u Causes: –The Caldicott principles especially number 4 –Large fines from ICO for data breaches –Greater awareness of data protection –More care pathways cross organisational boundaries u Increased caution among health & care professionals

6. Nurses Said u Prevented from communicating with patients using technology of choice u Concerns about sharing information between health and social care causing problems where teams interface u Sharing with independent/third sector problematic u Families are treated differently in health and social care u Rules and Guidance are all different – and creating confusion u Training not fit for purpose for all u Rules go beyond Caldicott principles

7. Challenge u To make recommendations that change the culture while staying within the law and maintaining focus on good IG practice

8. The Final Report - Purpose u Enhance trust u Better balance the risks of failure to maintain confidentiality, and failure to share u Simplify information governance, and for it to be seen as more closely aligned to clinical governance, not as a technical issue

9. u 14 Chapters u 26 Recommendations u A new Principle

10. u The duty to share information can be as important as the duty to protect patient confidentiality

11. u ISOG – take forward work u IIGOP – Oversee activity THE GOVERNMENT RESPONSE

12. u HSCIC: Treating confidential information with respect u Rule 2: Members of the Care team should share confidential information when it is needed for the safe and effective care of an individual NEW RULES