1. Supporting people to have the best wellbeing (self care) Dr Katie Coleman September 2014

2. What are the main aims and objectives of supporting people in the community? ‘Person Centred Co-ordinated Care: The Islington Way’ Care planningInformationCommunication Decision making Transitions My goals / outcomes ‘I want to have longer appointments with someone who is well prepared so that I do not have to tell my story again ‘I want to feel supported by my community and get the most out of services available locally’ ‘I want to be listened to and be heard’ ‘Helping people to help themselves’ ‘I want my care to be coordinated and to have the same appointment systems across services’ ‘Better access to health care through social services and vice versa” ‘No clear systems and processes through all healthcare services’ ‘I want to be treated as a whole person and for you to recognise how disempowering being ill is’

3. People being supported to look after themselves. ‘self empowerment’ – being empowered by being given the ability to make choices, to be listened to and to be heard. ‘you are disempowered by being ill. You need services which empower you as you find that you lose your voice’ Its about care and not medication / medical help. It was felt this ethos can get lost. ‘patients need to not have to be an expert.’ - those patients whose knowledge, skills and confidence is lower tend are intrinsically more scared and overwhelmed by self care. To ensure that patients don’t feel scared – they need to be supported to build their knowledge, skills and confidence. ‘Self care’ and what this means to patients

4. A review was undertaken with Long Term Condition patients to understand what they wanted from self care. The key things which came out were: – Self management programmes – Help navigating healthcare system and community services – Developing community and creating networks e.g. peer support, voluntary work and exercise classes – Help facing and overcoming social isolation Self Care review with LTC patients

5. Self care review with patients Tools and pilots to support self care Patient Activation Measure (PAM) An evaluated tool which measures a persons knowledge, skills and confidence in manage their health. Currently surveying our 44 000 patients who have LTC to discover their activation level. We can then commission tools that will support their needs. Long Term Condition service: Care and support planning consultations to identify what is important to a person and what support they need to improve their health and wellbeing. Health Navigators Community support: Peer support groups and community projects Self management programmes: Expert Patient Programme and Self Management Programme Personal Health Budgets: currently being piloted in Continuing Healthcare and mental health. Being delivered alongside Personal Budgets and the Making It Real Board Shared decision making – providing people with the information and time needed to make an informed decision about their care, in partnership with their health professional. What are we doing around self care?

6. Questions: 1. How can people be supported to stay out of hospital and be looked after in the community? 2.Do you know what support there is in your local community to look after your wellbeing? 3. What could you do to help support lifestyle change in your local community? II.What support skills do you need to do this? 4. Do you feel your social networks and local community supports your health and why? (Please think about non medical factors such as friends and family, housing and personal interests). Questions