1. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Michael Winkler Member of BVSS, LV Sächsische Stotterer-Selbsthilfe (LVSS) Stottererselbsthilfe Dresden (Self-helping group for People who Stutter) PRO VOCE – Gesellschaft für Kommunikation und Sprache e.V. Stuttering – Problem or Challenge for People who Stutter and Society? Thoughts about the Role of People who Stutter in the Society http://hr.wikipedia.org/wiki/Slika:Karta_Njemacke.png Saxony 12th BSA National Conference Telford - September 9, 2007 8th World Congress For People Who Stutter Dubrovnik/Cavtat - May 7, 2007 http://de.wikipedia.org/wiki/Bild:TyDresden20050921i0636.jpg Dresden Drežďany Dresde Pictures: http://trabant.shocauto.com/images/U2_Trabant_concert1.jpg; http://static.flickr.com/106/253399475_89d7aac940_m.jpg, http://trabant.shocauto.com/images/Trabant_Limousine_front_corner1.JPGhttp://trabant.shocauto.com/images/U2_Trabant_concert1.jpghttp://static.flickr.com/106/253399475_89d7aac940_m.jpghttp://trabant.shocauto.com/images/Trabant_Limousine_front_corner1.JPG

2. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Short Introduction … Who I am? Michael Winkler born 1975 in Karl-Marx-Stadt (today Chemnitz) – former GDR born 1975 in Karl-Marx-Stadt (today Chemnitz) – former GDR in 1982 – first class – a teacher told me that I stuttered in 1982 – first class – a teacher told me that I stuttered several speech therapists, no stationary treatment/therapy – much of self therapy several speech therapists, no stationary treatment/therapy – much of self therapy Author of some articles in the Kieselstein (journal of the BVSS – Association for PWS in Germany) Author of some articles in the Kieselstein (journal of the BVSS – Association for PWS in Germany) Interests: Public Relations (lectures, radio, TV -> plans for future) Causes & psychological reasons of stuttering, meaning of stuttering Interests: Public Relations (lectures, radio, TV -> plans for future) Causes & psychological reasons of stuttering, meaning of stuttering presently PhD student at the TU Dresden (Cartography) presently PhD student at the TU Dresden (Cartography) consider myself as almost cured (healed) consider myself as almost cured (healed) MDR, 20.01.2006 Me (aged 16, 1991)

3. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Index of the Presentation The Stuttering Person and Society (Self-perception, problems in self-helping groups) The Stuttering Person and Society (Self-perception, problems in self-helping groups) Going back: What actually is Stuttering? Going back: What actually is Stuttering? Positive (and negative) Aspects – Advantages (and Disadvantages) – of Stuttering Positive (and negative) Aspects – Advantages (and Disadvantages) – of Stuttering (Famous PWS, Stuttering as a Path, Stuttering as an Indicator etc.) Chief Cause Fear? … (if time allows) Chief Cause Fear? … (if time allows) Practical things … Questions & Discussion Practical things … Questions & Discussion Stammering & Stuttering German stammeln not knowing what to say stottern not being able to say what one wants to say mental challenge ? psychic challenge ?

4. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 The Stuttering Person and Society The Stuttering Person as Human Being Human Being Being with a multitude of capabilities & characteristics Stutterer, stuttering person or stuttering human being? Stuttering

5. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Human Being Stuttering 1. As what/who do I consider myself? 2. How does the society look at me as a PWS? The Stuttering Person and Society The Human Being as Stuttering Person Being with a multitude of capabilities & characteristics

6. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 THE TWO PHASES (Faces) OF STUTTERING Acceptance Degree of Cure What is (does) Cure (mean)? Healing / Curing?

7. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 The Society and I (the PWS) Stutterer/ Stuttering Person/ Human Being Society Positive Change of Consciousness Therapy, SHG, etc. Interface Acceptance Public Relations & Awareness raising Feeling of Isolation? Disturbed Acceptance? Disturbed SELF-perception? Not enough (own) PR? Too little (own) Acceptance? No direct Influence/Power Using ideas from the PR branch – Edward L. Bernays Propaganda (1928) Modern business must have its finger continuously on the public pulse. It must understand the changes in the public mind and be prepared to interpret itself fairly and eloquently to changing opinion. Chapter Business and the Public, p. 107 Civilization is limited by inertia. Chapter Propaganda and Social Service, p. 147 Internet-Download: www.soilandhealth.org/03sov/0303critic/030332.bernays.propaganda.pdf Edward L. Bernays (1891-1995)

8. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Definitions – What is Stuttering? Stuttering [(lat. balbuties)], also known as stammering in the United Kingdom, is a speech disorder in which the flow of speech is disrupted by involuntary repetitions and prolongations of sounds, syllables, words or phrases; and involuntary silent pauses or blocks in which the stutterer is unable to produce sounds. Stuttering [(lat. balbuties)], also known as stammering in the United Kingdom, is a speech disorder in which the flow of speech is disrupted by involuntary repetitions and prolongations of sounds, syllables, words or phrases; and involuntary silent pauses or blocks in which the stutterer is unable to produce sounds. Definition according to Wikipedia (http://en.wikipedia.org/wiki/Stuttering) Stuttering is another way to speak. Stuttering is another way to speak. Stuttering is a corrective for the unconscious use and conscious misuse of speaking in the societal life; … [just like not being able to talk for mute people.] Stuttering is a corrective for the unconscious use and conscious misuse of speaking in the societal life; … [just like not being able to talk for mute people.] own definition WHY? Causes (passive) - PAST Meaning, Use (active) - FUTURE What am I doing right here, right now? - PRESENT We can understand life only backwards but must live it forwards. Søren Aabye Kierkegaard (1813 - 1855) Danish philosopher, theologian and writer

9. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Famous PWS … Moses, Aristoteles, Demosthenes, Claudius, I. Newton, T. Jefferson, L. Carroll, C. Darwin, F. Kafka, M. Monroe, Scatman John, J. Updike, B. Willis (healed), R. Atkinson (Mr. Bean), J. Roberts, N. Gallagher (Oasis), G. Gates … Successful despite or because of their stuttering? Positive & negative Aspects of Stuttering

10. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Famous PWS … Moses, Aristoteles, Demosthenes, Claudius, I. Newton, T. Jefferson, L. Carroll, C. Darwin, F. Kafka, M. Monroe, Scatman John, J. Updike, B. Willis (geheilt), R. Atkinson (Mr. Bean), J. Roberts, N. Gallagher (Oasis), G. Gates … Successful despite or because of their stuttering? Positive (& negative) Aspects of Stuttering – Advantages and Disadvantages Nicht jeder Zwerg wird ein Feldheer und nicht jeder Stotterer ein Großmeister der Sprache. Aber Stotterer und Zwerge sind stärker als Schöne und Gesunde motiviert, eine geniale Begabung in die geniale Leistung umzusetzen. Wolf Schneider (*1925) German Author & Journalist

11. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Better listeners? Better listeners? Fear of exams mainly focussed on speech? Bonus of pity/sympathy? Fear of exams mainly focussed on speech? Bonus of pity/sympathy? easier to get a withdrawal from (army) service? easier to get a withdrawal from (army) service? sympathetic (showing weaknesses), cute, charming, sexy (!?) sympathetic (showing weaknesses), cute, charming, sexy (!?) better self-perception and analysis? better self-perception and analysis? watches his/her fellow men more intensive (but interprets the information wrongly – not advantageously – very often) watches his/her fellow men more intensive (but interprets the information wrongly – not advantageously – very often) Stuttering as sign post? … (Where fear is, there is the path …) Stuttering as sign post? … (Where fear is, there is the path …) easier self-search and – in the end – self-discovery? easier self-search and – in the end – self-discovery? stop of thoughts – involuntarily into a meditative situation? stop of thoughts – involuntarily into a meditative situation? Rolandisches Operculum – malfunction or advancement? Rolandisches Operculum – malfunction or advancement? Positive (& negative) Aspects of Stuttering – Advantages and Disadvantages

12. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Hauptproblem (Hauptursache?) ANGST Wenn ich alle die Gefühle und ihren qualvollen Widerstreit auf ein Grundgefühl zurückführen und mit einem einzigen Namen bezeichnen sollte, so wüßte ich kein anderes Wort als: Angst. Angst war es, Angst und Unsicherheit, was ich in allen jenen Stunden des gestörten Kinderglücks empfand: Angst vor Strafe, Angst vor dem eigenen Gewissen, Angst vor Regungen meiner Seele, die ich als verboten und verbrecherisch empfand. Hermann Hesse (1877-1962) dt. Schriftsteller, Literatur-Nobelpreisträger aus Hermann Hesse, Kinderseele (um 1919), zitiert nach Alice Miller (*1923), Das Drama des begabten Kindes (1979)

13. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Fear can appear in various and sometimes very subtle forms self-perception (and honesty/sincerity) important Fear can appear in various and sometimes very subtle forms self-perception (and honesty/sincerity) important Fear of Fear of - illness and death question Am I feeling too good? - unemployment too much work - boredom (negative) stress - being lonesome too much closeness - getting fat getting slim (fear of starving ) - speaking not speaking (fear of silence even) Aim: Equilibrium - Balance Aim: Equilibrium - Balance Fear and Stuttering First of all I believe that nothing is impossible, and at the same time I could question everything. What is Perfect balance ? … A perfect yogi can have strong imagination and equally strong reason. Sri Aurobindo (1872-1950) Indian revolutionary, writer, philosopher, mystic There is no courage without fear. www.filousophie.de

14. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Practical things & … techniques to modify your speech & speaking (soft use of voice, voluntary stuttering, etc. – e.g. van Riper, Hausdörfer, Richter) techniques to modify your speech & speaking (soft use of voice, voluntary stuttering, etc. – e.g. van Riper, Hausdörfer, Richter) reduction of fear by PR work / awareness raising (information booth, InVivo exercises such as surveys, using the radio etc. – W. Wendlandt) reduction of fear by PR work / awareness raising (information booth, InVivo exercises such as surveys, using the radio etc. – W. Wendlandt) Literature (about stuttering, psychology, sociology, philosophy, fiction, esoteric books, etc.) Literature (about stuttering, psychology, sociology, philosophy, fiction, esoteric books, etc.) Going abroad (get away from the used social environment) Going abroad (get away from the used social environment) Breathing- and relaxation exercises, Yoga (asanas, meditation), Biomeditation (Viktor Philippi – www.biomez.de), family constellations, etc. Breathing- and relaxation exercises, Yoga (asanas, meditation), Biomeditation (Viktor Philippi – www.biomez.de), family constellations, etc. Not forgetting:DISTANCE to the things (letting go) focus on SUCCESSES HUMOUR (laugh about oneself) LOVE for yourself and others Not forgetting:DISTANCE to the things (letting go) focus on SUCCESSES HUMOUR (laugh about oneself) LOVE for yourself and others Love, work and knowledge are the well-springs of our life. They should also govern it. Wilhelm Reich (1897-1957) Austrian researcher (physics, psychoanalysis, Freudomarxism, etc.) Making a survey on stuttering, 2006

15. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Stuttering person Family Society … and again (own) Theory … The Human Being and Society Stuttering person Family Society Gesell- schaft Familie Stuttering person Family Society Stuttering Person & Family & Society Dissolving the borders Individualisation (Ego) Capitalism Emancipation, etc. Collectivization Tradition etc. Urbanisation Transition Matriarchy/ Patriarchy, etc. Collectivization so-called Socialism (failed so far) new form of Society Separation (Ego)

16. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Last but not least … At the Beginning of the 21th Century technical changes changing human beings e.g. Telephone (flatrate), radio, television, Internet technical changes changing human beings e.g. Telephone (flatrate), radio, television, Internet Transformation of the Labour world e.g. so-called unemployment, basic income Transformation of the Labour world e.g. so-called unemployment, basic income … How do I change myself/get I changed? Will I be changed at all? Advantages/Disadvantages? Challenges & chances for people who stutter?

17. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 General thoughts and questions … for making me and you think What structure of organisation is the most efficient in order to work on stuttering? Verein ( reg. association) – initiative – (loose) network? What structure of organisation is the most efficient in order to work on stuttering? Verein ( reg. association) – initiative – (loose) network? Verein – pros & cons? (Vereins-)family as support or cage/island? Verein – pros & cons? (Vereins-)family as support or cage/island? Initiatives and networks in their work too inconstant/irregular? Initiatives and networks in their work too inconstant/irregular? How to apply for finances not being a Verein (association)? How to apply for finances not being a Verein (association)? How to maintain (ones own) motivation without being discouraged and losing energy due to bureaucracy and/or Vereinsmeierei and/or egoisms of members (e.g. self-promotion)? How to maintain (ones own) motivation without being discouraged and losing energy due to bureaucracy and/or Vereinsmeierei and/or egoisms of members (e.g. self-promotion)? What role does money play at all? What role does money play at all? How can one do self help work with little money? How can one do self help work with little money? How can everyone find her/his optimal way of self help? How can everyone find her/his optimal way of self help? … many more question for the future … many more question for the future

18. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Example for a Awareness Raising Campagne I stuttered.

19. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Campagne Bundeskongress 2008 Dresden Ideen für das Motto des Bundeskongresses 2008 WO DIE ANGST IST, DA IST DER WEG. ICH LIEBE MEIN STOTTERN, DENN ES ZEIGT MIR MEINEN WEG. IST STOTTERN GESELLSCHAFTSFÄHIG?

20. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Last but not least … some quotations We dont teach values, we live them. Wir lehren keine Werte, wir leben sie. Original author unknown We cant teach what we dont know. Wir können nicht lehren, was wir nicht wissen. (www.findarticles.com/p/articles/mi_qa3626/is_200007/ai_n8892650)

21. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Bundesvereinigung der Stottererselbsthilfe & LV Sachsen www.bvss.dewww.bvss.de and www.lvssh.de www.bvss.de PRO VOCE – Gesellschaft für Sprache und Kommunikation e.V. www.pro-voce.de michael_winkler@gmx.net Tel.: +49-351-8107099 (Dresden) Further documents under (mainly in German): http://hinweis.xtm.de/stottern/index.htm Presentation can be sent with email, and also forwarded to interested people Copyleft Thank you very much for your attention … Questions? – Feel free to ask … Life is worth being lived but not worth being discussed all the time. Isabelle Adjani (* 1955) French actress

22. Michael Winkler Cavtat May 7, 2007 Telford Sep 9, 2007 Sources & Copyright/Copyleft F 1 &Aristoteles: http://en.wikipedia.org/wiki/Aristotle F 9Demosthenes: http://de.wikipedia.org/wiki/Demosthenes Isaac Newton: http://de.wikipedia.org/wiki/Isaac_Newton Lewis Carroll: www.mathematik.ch/mathematiker/carroll.php Charles Darwin: http://de.wikipedia.org/wiki/Charles_Darwin (altes Bild) Franz Kafka: www.discoverczech.com/aproject/about/vir_fullsize.php4?tour=200&sight=pg&kteremisto=4 Marilyn Monroe: http://en.wikipedia.org/wiki/Marilyn_Monroe Winston Churchill: http://www.congressionalgoldmedal.com/WinstonChurchill.htm Julia Roberts: www.ruggedelegantliving.com/a/002995.html Rowan Atkinson (Mr. Bean): http://de.wikipedia.org/wiki/Rowan_Atkinson Noel Gallagher (Oasis): http://en.wikipedia.org/wiki/Noel_Gallagher F 1 &Aristoteles: http://en.wikipedia.org/wiki/Aristotle F 9Demosthenes: http://de.wikipedia.org/wiki/Demosthenes Isaac Newton: http://de.wikipedia.org/wiki/Isaac_Newton Lewis Carroll: www.mathematik.ch/mathematiker/carroll.php Charles Darwin: http://de.wikipedia.org/wiki/Charles_Darwin (altes Bild) Franz Kafka: www.discoverczech.com/aproject/about/vir_fullsize.php4?tour=200&sight=pg&kteremisto=4 Marilyn Monroe: http://en.wikipedia.org/wiki/Marilyn_Monroe Winston Churchill: http://www.congressionalgoldmedal.com/WinstonChurchill.htm Julia Roberts: www.ruggedelegantliving.com/a/002995.html Rowan Atkinson (Mr. Bean): http://de.wikipedia.org/wiki/Rowan_Atkinson Noel Gallagher (Oasis): http://en.wikipedia.org/wiki/Noel_Gallagherhttp://en.wikipedia.org/wiki/Aristotlehttp://de.wikipedia.org/wiki/Demostheneshttp://de.wikipedia.org/wiki/Isaac_Newtonwww.mathematik.ch/mathematiker/carroll.phphttp://de.wikipedia.org/wiki/Charles_Darwinwww.discoverczech.com/aproject/about/vir_fullsize.php4?tour=200&sight=pg&kteremisto=4http://en.wikipedia.org/wiki/Marilyn_Monroehttp://www.congressionalgoldmedal.com/WinstonChurchill.htmwww.ruggedelegantliving.com/a/002995.htmlhttp://de.wikipedia.org/wiki/Rowan_Atkinsonhttp://en.wikipedia.org/wiki/Noel_Gallagherhttp://en.wikipedia.org/wiki/Aristotlehttp://de.wikipedia.org/wiki/Demostheneshttp://de.wikipedia.org/wiki/Isaac_Newtonwww.mathematik.ch/mathematiker/carroll.phphttp://de.wikipedia.org/wiki/Charles_Darwinwww.discoverczech.com/aproject/about/vir_fullsize.php4?tour=200&sight=pg&kteremisto=4http://en.wikipedia.org/wiki/Marilyn_Monroehttp://www.congressionalgoldmedal.com/WinstonChurchill.htmwww.ruggedelegantliving.com/a/002995.htmlhttp://de.wikipedia.org/wiki/Rowan_Atkinsonhttp://en.wikipedia.org/wiki/Noel_Gallagher F 1 F 1http://trabant.shocauto.com/images/U2_Trabant_concert1.jpg; http://static.flickr.com/106/253399475_89d7aac940_m.jpg, http://trabant.shocauto.com/images/Trabant_Limousine_front_corner1.JPGhttp://trabant.shocauto.com/images/U2_Trabant_concert1.jpg http://static.flickr.com/106/253399475_89d7aac940_m.jpg http://trabant.shocauto.com/images/Trabant_Limousine_front_corner1.JPG F 7Book Bernays Propaganda: www.amazon.de Edward L. Bernays: www.eastman.org/ar/strip17/htmlsrc/muray_sld00009.html F 7Book Bernays Propaganda: www.amazon.de Edward L. Bernays: www.eastman.org/ar/strip17/htmlsrc/muray_sld00009.htmlwww.amazon.dewww.eastman.org/ar/strip17/htmlsrc/muray_sld00009.htmlwww.amazon.dewww.eastman.org/ar/strip17/htmlsrc/muray_sld00009.html F 8Søren Aabye Kierkegaard: www.cvm.qc.ca/encephi/contenu/philoso/kierkega.htm F 8Søren Aabye Kierkegaard: www.cvm.qc.ca/encephi/contenu/philoso/kierkega.htmwww.cvm.qc.ca/encephi/contenu/philoso/kierkega.htm F 9Wolf Schneider: www.wolf-schneider-sprachseminar.de (altes Bild) F 9Wolf Schneider: www.wolf-schneider-sprachseminar.de (altes Bild)www.wolf-schneider-sprachseminar.de F 11Hermann Hesse: www.schwarzaufweiss.de/Schwarzwald/unterwegs_im_nordschwarzwald.htm F 11Hermann Hesse: www.schwarzaufweiss.de/Schwarzwald/unterwegs_im_nordschwarzwald.htmwww.schwarzaufweiss.de/Schwarzwald/unterwegs_im_nordschwarzwald.htm F 13Felsen: www.filousophie.de, Yin & Yang: www.healingtherapies.info/images/Yin__Yang.gif F 13Felsen: www.filousophie.de, Yin & Yang: www.healingtherapies.info/images/Yin__Yang.gifwww.filousophie.dewww.healingtherapies.info/images/Yin__Yang.gifwww.filousophie.dewww.healingtherapies.info/images/Yin__Yang.gif F 15TV show: http://www.mdr.de/unter-uns/2410181-hintergrund-268822.html F 15TV show: http://www.mdr.de/unter-uns/2410181-hintergrund-268822.htmlhttp://www.mdr.de/unter-uns/2410181-hintergrund-268822.html Wilhelm Reich: www.wilhelm-reich-gesellschaft.de/cms/img/orgonomie_wilhelmreich_170.jpg www.wilhelm-reich-gesellschaft.de/cms/img/orgonomie_wilhelmreich_170.jpg F 19Marilyn Monroe: www.germanposters.de/warhol-andy-marilyn-monroe-pink.jpg F 19Marilyn Monroe: www.germanposters.de/warhol-andy-marilyn-monroe-pink.jpgwww.germanposters.de/warhol-andy-marilyn-monroe-pink.jpg F 22Isabelle Adjani: http://louis.chatel.free.fr/images_blogs/stars_cine/adjani.jpg F 22Isabelle Adjani: http://louis.chatel.free.fr/images_blogs/stars_cine/adjani.jpghttp://louis.chatel.free.fr/images_blogs/stars_cine/adjani.jpg All other images were designed and generated by the author. http://creativecommons.org/licenses/by-nc-sa/2.0/de/deed.en_GB