1. Patient Reported Measures (PRMs) Health Innovation Symposium: November 2 nd 2015 Mel Tinsley | Project Manager Patient Reported Measures Program | ACI Outcomes that matter to patients

2. Background NSW Integrated Care Strategy IT systems Monitoring and Evaluation Patient Reported Measures Risk Stratification An ‘enabler’ of the Integrated Care Strategy

3. Patient Reported Measures Enable patients to provide direct, timely feedback about their health related outcomes and experiences to drive improvement and integration of health care across NSW Reduce burden to clinicians and patients Identify areas for service improvement Improve care for individual patients Evaluation of the NSW Health system

4. Why patient reported measures? What patient’s value What clinicians’ value ICHOM Standard Set for Coronary Artery Disease (2013)

5. Patient Reported OUTCOME OUTCOMEMeasures Patient Reported EXPERIENCEMeasures What are patient reported measures? Capture the patient’s perspectives about how illness or care impacts on their health and well-being Capture the patient’s perception of their experience with health care or services

6. Why? Biomarkers often fail to correspond with how a patient is actually feeling Increase patient satisfaction with care Predict meaningful clinical outcomes Documentation Clinical decision making Improve Symptom management

7.  Patients  Shared decision making  Increased engagement& participation  Improved health literacy  Improved experience & satisfaction  Clinicians  Resource & linkage development  Outcome based medicine  Understanding of patient’s needs & values for planning/coordination Value Add

8.  Service  More timely & appropriate referrals for better coordinated & integrated care  Access to timely feedback to identify issues & service improvement  System  Better understanding of disease burden & healthcare outcomes  Data access:  Service development  Efficiencies  Patient’s engaged in their care tend to choose less costly, but effective interventions Value Add

9. Core Question Set  PROMIS-10 Short Form Multi-Lingual Domain Specific Physical Mental Social Measure HR-QOL

10. PROMs – The Patient Journey Patient Identified PRMs collected ConsultationAction Information sharing Ongoing monitoring Risk stratification GP/ED presentation Contact Centre Self/ carer/ clinician Clinic/ home Paper/ tablet/ phone/ web Readministration Alerts Review and discuss PRMs results Develop care plan Self- management support Referrals Shared care plan PCEHR

11. PRM Collection: Demonstration  User friendly  Available via web link  Minimal provider input required  Confidential (restricted Access)  Capacity: scheduler; reporting; dissemination

12. ACI Implementation Support Wider Implementation based on pilot program learnings Align monitoring and evaluation with HSIRB Test, refine and implement PRMs “Go-Live” in Pilot Sites Oct 2015 Oct 2016  Provision of support to consumers, clinicians and healthcare services:  Point of contact  Capability Building  Resources  Linkages

13.  http://vimeo.com/111977469 http://vimeo.com/111977469

14. Level 4, Sage Building 67 Albert Avenue, Chatswood NSW 2067 PO Box 699 Chatswood NSW 2057 T + 61 2 9464 4666 F + 61 2 9464 4728 aci-info@health.nsw.gov.au www.aci.health.nsw.gov.au Melissa Tinsley melissa.tinsley@health.nsw.gov.au