1. Introducing the ASD Stakeholder Group Louise Rixon, Jeni Snell and Carol Wheeler January 2014

2. What we do Inform consultation, planning and development of local ASD Action Plans Challenge professional and practitioners views Represent children, young people/teenage years and adults across the spectrum Raise awareness and highlight needs of individuals and their families Help develop best practice

3. Who we are Parents Service Users Social Workers Medical Professionals Youth Councillors Disability Champions Educational Services Team Disability Services Team

4. Why we do it We love building partnerships and sharing information. We can give a voice to individuals, families, parents and carers. We’re seeing autism awareness improve dramatically. We know our contributions are being listened to, valued and respected

5. Introducing the Terminology Autism Autism Spectrum High Functioning Autism Autistic Atypical Autism ASD Autism Spectrum Conditions AS Aspergers Syndrome Classic Autism Kanner Autism Childhood Autism Infantile Autism Autism Traits and PDD

6. But it’s really about people

7. Educating people about ASD 20092014 Basic Awareness Open University TEACCH Visual Timetables and Social Stories Older People Understanding the Autism Spectrum ASD Assessment Diagnosis and Co- morbidities Classroom Strategies Understanding and Managing Behaviour Trouble Shooting Workshops Leisure and Play Young Carers Adult Respite Care 838 people in more than 50 organizations Teen Life Transition

8. Some great results… Sam Francis, who works in the Children with Disabilities Team, won a social care award for her ASD work in 2012. Russian officials visited Monmouthshire to research new initiatives for their orphans who have ASD, Sam was invited to visit Russia to talk about best practice in ASD. The Adult Aspergers Virtual Team, set up in 2011 as part of the adult social services team, is working really well with over 60 people now receiving support. We completed our second ASD Action Plan (2011 – 2014) Development of an updated plan for 2014 and beyond will be finalised once the National Plan is refreshed. We completed our second ASD Action Plan (2011 – 2014) Development of an updated plan for 2014 and beyond will be finalised once the National Plan is refreshed.

9. …more great results! We supported the youth service to fund some equipment for their new sensory garden in Usk. We helped research and develop a user- friendly passport information system with Mark, Monmouthshire's Disability Sports Officer. Newport and Monmouthshire Education Departments are working together to share good practice and to promote an ASD Friendly Schools programme. We have developed a Picture Exchange Communication System for families to use in all of our leisure centres. Teresa, Monmouthshire ASD Co-ordinator accompanied Jo, the National ASD Co-ordinator to Scotland to demonstrate how the Welsh Government ASD Strategic Action Plan for Wales is being delivered at a local level.

10. Have your say! We’re building the ASD action plan and we need your help. Please fill in the feedback form and tell us what you want.

11. Recommended reading (Also under development: A book for adult parent carers)

12. Where to find the information Homelessness Employment Advocacy Primary Healthcare Education Criminal Justice Leisure, Play and Sport Families and Family Support Dentists and Opticians Residential and Day Care Older People Religious Faiths Housing

13. Meet the team! Bernard BonifaceASD Lead and Lead Commissioner Collaboration and Partnership Jackie SimmonsCommissioning Team Teresa JamesASD Co-ordinator Commissioning Team Carol Buck Team Manager, Children Disability Team, MCC Sue GwynllywTeam Manager Stephanie HawkinsHead of Learning Support & Education Inclusion Linda MarshallTeam Leader LD Steve McDonaghJoint Commissioning Manager Dr Hilary BartonConsultant Child and Adolescent Psychiatrist Dr SundariConsultant Psychiatrist Shirley ParsleyNational Co-ordinator Wales Jane CrossSpecial Needs Team Leader Kate ThomasHealth & Social Care Facilitator Jeni SnellService User Rep Carol WheelerSNAP Volunteer Geraint SpaceyOperational Manager Helen KnoyleParent Carer Rep Samantha FrancisSenior Social Worker Joy WhiteAspergers Project Officer Mark FosterDisability Sports Officer Rebecca ParksPerforming Arts Co-ordinator Louise RixonParent/Carer Rep Liz ConnorsTraining in Autism Spectrum Conditions Rosie WilliamsTraining in Autism Spectrum Conditions Andrew JamesDisability Champion Phil WaltersYouth Councillor Lee HaleYouth Councillor

14. Thank you for listening! (If you’re interested in getting involved with this work please come to talk to us at lunchtime.)