1. Getting the Care & Treatment You Need Presented by NPF Government Relations & Advocacy Team

2. Advocacy & Government Relations Team Leah Howard – VP of Government Relations and Advocacy (Alexandria office) Sara Kofman – Advocacy Manager (Home office) Quardricos Driskell – Health Policy Manager (Alexandria office) Patrick Stone – State Government Relations Manager (Alexandria office)

3. Flares & Fixes

4. Barriers to Care – “The Chutes” Choosing insurance coverage High out-of-pocket costs Frustrating and confusing insurance policies Treatments denials Yearly insurance coverage changes

5. Resources to Help – “The Ladders” Get the right coverage – www.puttingpatientsfirst.org www.puttingpatientsfirst.org Financial assistance resources (see handout) Overcome treatment denials Become your own best advocate Medicare resources

6. NPF Efforts Working to lower out-of-pocket costs State legislation to change insurance barriers & bring new treatments to market Advocating with volunteers like YOU!

7. Final Words... Don’t give up; there are options. The NPF is here to help…reach out. Advocate for yourself and others!