1. People with learning disabilities in England 2012 Eric Emerson, Amanda Kenney, Gyles Glover

2. People with learning disabilities in England 2012 2People with Learning Disabilities in England 2012 Fifth annual digest of statistics about people with learning disabilities and their care Linked to the learning disability health profiles - Where possible these provide local version of the data. Centre for Disability Research produced two editions (2005 and 2008) This is the third by IHaL (2010, 2011, 2012)

3. Numbers of people with learning disabilities 1.14 Million people 3People with Learning Disabilities in England 2012 Population pyramid

4. Mortality 4People with Learning Disabilities in England 2012 Median age at death People with LD 57 Other people81 Sources – death certificate data – people identified as having LD or a condition such as Down’s Syndrome that is usually associated. Median age is the age by which half of deaths have occurred This year also major report by the Confidential Inquiry

5. Using health services 10,000 more people were identified as needing an annual health check with their GP 13,000 more people had an annual health check For the first time more than 50% of people requiring a health check received a health check The best 30 areas did health checks for 7 out of 10 people The worst 30 areas did less than 4 out of every 10 people needing them 5People with Learning Disabilities in England 2012

6. Children In schools, IDENTIFICATION of Moderate LD is falling (-7% per year), Severe (+2% per year) and Profound LD (+ 4.5%)is rising Wide variation in the proportion of children with LD in mainstream schools: 6People with Learning Disabilities in England 2012 Moderate LD Severe or Profound / Multiple LD Top 10%99.5 or more41% or more Bottom 10%75% or less10% or less Free school meals: No SEN14% MLD37% SLD35% PMLD27% Association with poverty in all groups

7. Adult Social Care – residential placements Numbers of adults living in Adult placements Nursing care LA staffed residential care Independent sector residential care 7People with Learning Disabilities in England 2012 Over the last seven years:

8. Adult Social Care: Gross spend 8People with Learning Disabilities in England 2012

9. Adult Social Care Users Experiences of Social Care - Survey People with LD compared to those with: Physical disability Mental health problems Substance misuse Vulnerable people Strongly positive responses for Quality of life, Satisfaction with services, how services make me feel, information and advice, general health BUT many more helped to complete survey by care worker. 9People with Learning Disabilities in England 2012

10. Employment Slight rise in proportion of adults with LD known to LAs working full or part time This recovers losses of 2008/9 to 2009/10 Most work part-time Wide range between local authorities 10People with Learning Disabilities in England 2012

11. Abuse of vulnerable adults 11People with Learning Disabilities in England 2012 26,750 alerts relating to people with LD in 2011/12, up from 20,165 in 2010/11 These are new statistics Outcome of concluded cases

12. Abuse of vulnerable adults 12People with Learning Disabilities in England 2012 Relationship of alleged perpetrator to alleged victim

13. Deprivation of Liberty Safeguards Steady increase in the number granted to LAs Number granted to PCTs fell then steady Some differences from DOLS for other reasons 13People with Learning Disabilities in England 2012

14. Benefits Numbers of PWLD claiming DLA increasing by 5% a year. Cost in 2012 £1.51bn, up 12% from 2011 Attendance allowance falling but many fewer people 14People with Learning Disabilities in England 2012

15. Some Concluding Thoughts The value of information Monitoring progress (direct payments and self- directed support, home care, health checks) Identifying persistent problems (employment, inclusive education) Documenting inequality (local variation) If only ……. It was joined up It told us about outcomes It allowed disaggregation by gender, age, ethnicity ….. We are unique! 15People with Learning Disabilities in England 2012

16. People with learning disabilities in England 2012 www.ihal.org.uk/projects/annualreport www.ihal.org.uk/profiles Eric Emerson, Amanda Kenney, Gyles Glover