1. Patient access to on-line records Policy perspective Peter Short National Clinical Lead GP Department of Health Informatics Directorate & GP Partner in Buxton, Derbyshire

2. The Power of Information Published May 2012 Chapter 2 : Covers the information held within our individual care records. It sets out a vision in which being able to access and share our own records can help us take part in decisions about our own care in a genuine partnership with professionals.

3. “...to interact with health and care services online..” “Letters...available electronically...” “..normal to access health and care services online...” “..GP records by 2015..” “.. personalised information on opportunities to improve our own health..”

4. ‘The power of information’ All NHS patients will have secure online access, where they wish it, to their personal GP records by 2015’ ‘By 2015, all general practices will be expected to make available electronic booking, cancelling of appointments, ordering of repeat prescriptions, communication with the practice and access to records’

5. ‘The power of information’ The Government has asked the Royal College of General Practitioners, working in partnership with patient groups and other professional organisations, to lead the development of a plan, policy and procedures to support patient access and engagement with their GP records

6. What is the current status?

7. Previous RCGP led guidance RCGP Health informatics group: Enabling patients to access electronic health Records: Guidance for health professionals: 2010 http://www.rcgp.org.uk/pdf/Health_Informatics_E nabling_Patient_Access.pdf

8. Guidance for health professionals: 2010 Working in partnership with patients shared decision making, care planning, patient decision support, health related information, benefits to practices

9. Project outline The programme is split into three phases: Phase 1- Initiation and defining the scope of work (June - September 2012); Phase 2- Specification development and initial delivery (October – December 2012); Phase 3- Implementation and roll-out (January 2013 – December 2014).

10. Challenges & Benefits Issues around provision of technology? How safe is it? What are the costs to the practices? Issues relating to sensitive data and consent. e.g. third party data What are the benefits to patients and practices? Does it lead to improved/quality care?

11. End of phase 2 Road map Project and scoping plan for phase 3 milestones Project plan for phase 3 to include education, training and governance documentation with particular emphasis on the benefits to GP practice

12. RCGP led work summary Facilitate the direct recommendations of the DH information strategy paper Raise awareness with partnership working Consider the aspirations of the strategy e.g. shared records, handling patients self reported data Awareness of wider initiatives

13. Personal journey Team decision using EMIS LV system ‘Admin team’ drivers for appointments and repeat medication ‘Experimental’ driver for Record access On-line transactions from 2006 On-line records from November 2011

14. July 2012 activity Logins 683 Appointments booked 179 Appointments cancelled 61 New accounts 19 Repeat medication orders 223 Messages & Pre-reg 0 Address change 6 Medical Record views 20

15. Policy aims are great, but.... EMIS (LV) system functionality is basic Administration is tedious and inefficient Activity reporting is poor currently Appointment granularity needed for different clinics Patient facing records are challenging Patients need support beyond simple registration Great interest in test result notification potential