1. SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

2. The Special Kids Network System of Care (SKN SOC), in partnership with the PA Elks Home Service Program, helps children and youth with special health care needs by helping their families get the services and support these young people require in order to thrive in the community and develop to their full potential. If your child has a physical, developmental, behavioral or emotional need, call 1-800-986-4550 or visit our website at: www.gotoskn.state.pa.us What is the Special Kids Network System of Care? SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

3. The SKN SOC SKN SOC History: Continued funding through the Federal Title V Maternal and Child Health Services Block Grant since inception in 1996 Has focused on children with special health care needs through age 21 Initially began as an information and referral service SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

4. The SKN SOC SKN SOC History: Community systems development component introduced in 1997 Parent Youth Professional Forums (PYPF) began in late 2008 SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

5. A New Initiative Two significant changes were introduced: Parents of children with special health care needs hired as Regional Coordinators A partnership with the PA Elks Home Service Program provides service coordination SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

6. The six regional coordinators reside in six health districts of Pennsylvania. A New Initiative SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

7. PA ELKS HOME SERVICE PROGRAM The Elks Home Service Program: offers free in-home care coordination services; provides services to persons of any age with a disability that began before age 22; and, services can continue throughout a person’s lifetime, if needed.

8. PA ELKS HOME SERVICE PROGRAM The Elks Home Service Program: provides home visits by a nurse or social worker; offers one-on-one help to navigate the system; and, referrals can come from any source. www.paelkshomeservice.org

9. The SKN SOC The SKN SOC offers: Information on health care and other resources; Call the SKN SOC Helpline: 1-800-986-4550 Visit our website: www.gotoskn.state.pa.uswww.gotoskn.state.pa.us SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

10. The SKN SOC it starts with a call to the SKN SOC Helpline 1-800-986-4550 as needed, caller referred to Elks Nurse Elks Nurse contacts family to begin service coordination The SKN SOC offers: Service coordination through a partnership with the PA Elks Home Service Program;

11. The SKN SOC The SKN SOC offers: Regional Coordinators working in communities; to enhance access and availability of services to ensure families are partners in decision making at all levels to facilitate opportunities for families to identify issues of concern to them. SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

12. How we can work together We welcome opportunities to: participate in small group meeting settings with families of children with special health care needs and disabilities within their communities; provide technical assistance on special health care needs issues and happenings both at local, regional and national levels; SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

13. How we can work together We welcome opportunities to: value and support active participation of families and community stakeholders in policy development and systems change; and support adoption of cultural and linguistic practices in our agencies and organizations. SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us

14. Your Regional Coordinators There are 6 Regional Coordinators throughout the state: Each coordinator is a parent with a child that has a disABILITY. SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us Northwest Amy Caraballo (814) 270-5553 acaraballo@paelkshomeservice.org North Central Tammy Pursel (814) 270-5556 tpursel@paelkshomeservice.org Northeast Lori DeVoe (570) 949-4152 ldevoe@paelkshomeservice.org Southwest Melissa Morgan (814) 270-5595 mmorgan@paelkshomeservice.org South Central Grace Egun (814) 270-5600 gegun@paelkshomeservice.org Southeast Diane Perry (814) 270-5618 dperry@paelkshomeservice.org

15. Contact Information For more information visit our website at: www.gotoskn.state.pa.us You can also call 1-800-986-4550 SKN System of Care: 1-800-986-4550 Website: www.gotoskn.state.pa.us