1. Better Funding For Services For People With A Learning Disabilities - Learning Disability Coalition
What The Initiative Seeks To Do
Persuade the government that more funding is necessary and can be found for learning disabilities.
The Story So Far
December 2008 research shows numbers needing care up by 3-5%
How We Know The Initiative Is A Success
Department of Health accepts figures e.g. population going up
Department of Health Acknowledge legitimacy of campaign
Next Steps
Campaign based on research and cost benefit of early interventions and interventions for people with moderate learning disabilities.

2. Kissing It Better Independent website (Personal Initiative) www
Kissing It Better Independent website (Personal Initiative)
What The Initiative Seeks To Do
Highlight how simple ideas can make the world of difference
The Story So Far
The website was recently launched
Feedback has been made, the site has been well accepted
How We Know The Initiative Is A Success
Feedback has been made
Personal contact
People are willing to share their stories with us
Next Steps
Sustainability - funding
Promotion through media
Spreading the word

3. The Orders of St John Care Trust
What The Initiative Seeks To Do
To ensure person centred care reflects the whole person and not just their physical care needs
Create a social interactive tool
The Story So Far
Staff trained to enable clients to complete life histories
Discussions/meetings with clients/families/friends
How We Know The Initiative Is A Success
Much better interaction between staff resident and family
Respect for the person and their past lives knowledge that enables staff to understand clients with dementia and other social care needs
Next Steps
To continue with programme across all specialities
To introduce memory books so the person is remembered after death

4. Dignity Matrix (My Home Life) – Help the aged/Age concern
What The Initiative Seeks To Do
Tool to measure whether organisations (primarily aimed at care homes) using dignity initiatives are meeting them
From the users prospective
The Story So Far
Tool launched winter 2008/2009 (through my home life project available on web site)
Four country participation
How We Know The Initiative Is A Success
Evaluation is integral to the process, timing of this will be notified
Next Steps
To be advised (information is not currently available)

5. Registration of Health & Social Care
What The Initiative Seeks To Do
Central to the new registration system is a specific regulation on ‘respecting and involving service users’
This includes the need for the registered personnel provider as far as reasonably practicable to make suitable arrangements to ensure the dignity, privacy and independence of service users
The Story So Far
Scope of regulation consulted by Department of Health
Guidance on compliance criteria for registration drafted and currently consulted on
Feedback and involvement of public and people who use services in progress
Proposals for working with LINks in future planned
How We Know The Initiative Is A Success
Compliance with registration criteria
Many examples of high quality demonstrating users are treated with dignity and respect and human rights are protected
Feedback from service user
Next Steps
Completion of consultation process
Registration of health care providers April 2010
Registration of social care providers 2019

6. Promoting Dignity In Dementia Care Training Course – Anchor Trust
What The Initiative Seeks To Do
Deliver training to staff from day care, home care and small residential care settings about person centred care and promoting dignity in dementia care
The Story So Far
Researching
Development of course
How We Know The Initiative Is A Success
This is a pilot (September 2009)
It builds upon and compliments the range of other 30+ courses delivered within the portfolio available from dementia
Next Steps
Deliver training

7. Standards and Values (Methodist homes –MHA Care Group)
What The Initiative Seeks To Do
Evidence that we do what we say we do
Commitment to the people we support and staff
Support and share good practice
Quality and service improvement
The Story So Far
Set up around 4 years ago
Developed with lots of people who had something important to tell us
A separate team spend 2 days in the home and provide a report and keep supporting them
Helps us do things better but also helps the people who inspect us from outside see what we do
Next Steps
Review it each year
Raise the pass mark each year
Link with dementia champions
Feel everyone should see dignity as part of what they are about
All staff should deliver the values of the organisation
How We Know The Initiative Is A Success
The staff find the reports really helpful
Just had our first audit where we scored good on everything (100%)
Staff are proud and confident about what they do
The people we support talk to us about their experiences – good and not so good

8. Behind Closed Doors - British Geriatrics Society
What The Initiative Seeks To Do
Share ‘best practice’ for ‘toileting’ with dignity with professionals and individuals
The Story So Far
Set of standards developed and distributed to named hospital staff for care of older people
How We Know The Initiative Is A Success
Through word of mouth, the original print run of 5,000 leaflets and has since been reprinted FOUR times
Difficult to assess and impact
Next Steps
Share standards more widely with the care home sector
Expand the ‘standards’ to include personal hygiene and bed control (enabling people to eat sitting ‘out’ rather than ‘in’ bed

9. The Role Of Local Councillors Extending The Scope For Dignity
What The Initiative Seeks To Do
To champion dignity as elected members
To challenge how we deliver services
Dignity central to commissioning
Workforce/staff development notebooks outside social services e.g. leisure, libraries, parks, no-traditional organisations
The Story So Far
Collecting data on service use/non-use
Two senior councillors lead on wellbeing (including dignity)
Produced a dignity code published and launched
Carers champion in place
Free swimming for U18’s and over 60’s (real example of initiative being implemented
How We Know The Initiative Is A Success
Measuring the outcomes through data collection (against targets) engaging listening to service users)
Ongoing process
Positive results
Next Steps
Initiative needs to broaden across local strategic partnerships e.g. housing, community safety
Needs to be raised to level of safeguarding adults – just as important
Broaden across other councils – sharing best practice – driven by Local Government Association

10. Amanda Waring Films & Training Packs On Dignity www.amandawaring.com
What The Initiative Seeks To Do
Through the films what do you see etc…and the interactive training pack on dignity be able to support the emotional and spiritual aspects of the dignity and person centred care initiatives
As a speaker at conferences Amanda aims to engage and inspire others to get involved and KEEP involved
The Story So Far
Amanda is the keynotes speaker at over 12 conferences this year and her films on end of life care will be ready in September 2009
Her films and the What Do You See training pack are being used by major organisations, hospitals, care homes and domiciliary organisations
How We Know The Initiative Is A Success
The films have sold in their thousands around the world and the feedback is constantly positive
What do you see training pack is being used in care homes and by dignity champions
Amanda is speaking regularly in End of Life issues and the media ask her to contribute to T.V, radio etc regularly too
Next Steps
To continue promoting the films on pack effective Dignity Training Aids
To make a new film on intergenerational healing and to continue the campaigning around dignity and end of life care

11. Life Story Network What The Initiative Seeks To Do
Share good practice around life story networks
Creating clearer understanding of the value of like work and networks on delivery of personalised care
Develop sustainability for the work through research, commissioning and everyday delivery of care
The Story So Far
Builds on experience of individual carer, supported by local overview and Scrutiny Committee
Held event in North on November 2008 – invitation out to share good practice – overwhelming support – more than 100 attendees – identified lots of exiting good practice
Established small steering group convened (Chaired Ruth Eley) to develop and support network
Short report on outcome of event and examples of good practice
Ongoing discussions with Department of Health regarding hosting the network of the dignity webpage
Seeking funding to appoint a part-time network coordinator nationally
How We Know The Initiative Is A Success
Positive feedback from patients/carers/service users – also empowering for carers
High degree of interest from key stakeholders
South-west Yorkshire Mental Health Trust – recognised for work and value of work in this area.
Oldham adopted system and embedded practice
Buy-in from Social Care in Excellence, Admiral Nursing
Positive impact for transition of care/across pathways – more seamless transfer of personal information makes it easier
Next Steps
Publish report
Appoint coordinator
Develop a webpage – possibly as part of Department of Health website
Prepare/plan for national launch event later in 2009

12. Putting People First Without Putting Carers Second – The Princess Royal Trust for Carers
What The Initiative Seeks To Do
Ensures that we take a WHOLE FAMILY APPROACH
Five PRACTICAL examples of schemes that work (to ensure personalisation for user doesn’t adversely affect family)
The Story So Far
Published document. Phil Hope launched (February 2009)
Disseminating (ongoing)
How We Know The Initiative Is A Success
Outcome-focused
Evaluating now
Starting to see relationship between adult and children services to give a whole family approach
Next Steps
Working with other organisations
Evaluation – has a difference been made?

13. Best Practice Bank Mentoring: Mentoring and Befriending Foundation
What The Initiative Seeks To Do
Providing an information hub for best practice, all sectors
The Story So Far
Collated a range of case studies and other materials, such as research studies, publications etc that are available on-line
Contributed to government consultations
How We Know The Initiative Is A Success
Influenced national policy
Increased number of visits to the website
Up take of national training programme courses
Next Steps
Developing best practice bank across all sectors
Developing additional training courses in key areas
Promoting approved provider standards

14. Access With Respect – Multi-agency – Safeguarding Vulnerable adults
What The Initiative Seeks To Do
Facilitating IMMEDIATE access for authorised personnel in to people’s homes to deliver multi-agency care
The Story So Far
Using a ‘Key safe’ for authorised entry by way of a code system allowing multiple access for multiple services
Also linked to Telecare buttons response
How We Know The Initiative Is A Success
1.6 million homes now access this service
Next Steps
Looking at ways to promote Dignity in Care via training systems and packs for our service providers

15. Health: Wellbeing In Care Homes Campaign
What The Initiative Seeks To Do
Promote Health: Wellbeing and Dignity by sharing good practice, developing information materials and involving relatives as partners
The Story So Far
3 conferences
2 newsletters
1 publication
On-going networking and promotional work
How We Know The Initiative Is A Success
Increased awareness amongst staff, relatives and managers and residents
Reduction in complaints
Increased attendance at conferences
Increased requests for publications
Next Steps
More conferences
More publications: newsletters
More activities to promote multi-disciplinary involvement
Embedding in core Policy

16. Anchor Trust Dignity In Care Champions
What The Initiative Seeks To Do
All staff who have completed a day developing Dementia care practice course have the opportunity to be registered as Dignity champions taking forward the change in culture and practice in the home in which they work. Nominated to lead and influence
The Story So Far
449 champions registered to date
Regional networks of dignity champions meet on a regular basis to share practice information
How We Know The Initiative Is A Success
Supporting meetings
Evaluating
Difference being made to peoples lives: life history work, working with friends and families, creating enabling environments
Next Steps
Continue to train, support and make a difference
Create wider networks to continue to promote dignity in care

17. ‘With Respect’ Dignity In Homecare Resource Guide And Training Programme
What The Initiative Seeks To Do
Provide homecare organisations with an off-the-shelf training programme to provide dignity training in-house for their staff
Provide a resource guide to give information about dignity in care
The Story So Far
Awaiting publication of materials on CD which will be sent to all home care organisations in England
A similar resource guide and training programme has been produced for residential care
How We Know The Initiative Is A Success
Next Steps

18. Care with Dignity Steering Group Shrewsbury and Telford NHS Trust
What The Initiative Seeks To Do
Embed dignity in the culture of Hospital Trust (2 Hospitals)
The Story So Far
Steering groups
4 work streams
Governance
Development
Partnership
Scholarship & research
How We Know The Initiative Is A Success
Success
Implementation
Next Steps
Outcome measures
Job Description
Review/Appraisals

19. RCN Dignity Campaign What The Initiative Seeks To Do
Surveyed opinions of nursing teams
Raise awareness
Utilising learning resources
Influencing for positive change
Share good practice. Through networks
The Story So Far
In the first year:
Events and workshops locally/nationally
Identifying issues, making changes, feeding back
Creating networks
Inclusive of everyone
Linked with equality diversity and human rights
Linking with other work/campaigns
How We Know The Initiative Is A Success
Huge interest
Positive stories and case studies
Evaluation report due summer 2009
Has put dignity onto agenda as a priority
Has created dignity champions
Next Steps
Embedding good practice into everything we do
Continue to raise awareness and challenge poor attitudes and behaviours
Champion good practices
Work in partnership with other organisations
Continue to drive up standards

20. Review of Standards and Guidance Pre registered Care and Health Around End Of Life, Dementia, Chronic
What The Initiative Seeks To Do
Produced standards and guidance to underpin practice to inform the people in our care services, public and professionals
The Story So Far
Framework
Review – stakeholder engagement
Pre consultation – desk research
Focus group across UK NMC pre-registered
Consultations
Dissemination
Evaluation
How We Know The Initiative Is A Success
Next Steps