1. Lori Simon-Rusinowitz, Ph.D., Min Qi Wang, Ph.D., Dawn M. Loughlin, Ph.D., University of Maryland Center on Aging Developed in collaboration with: Kevin J. Mahoney, Ph.D., National Program Director, Cash and Counseling National Program Office, Boston College December 14, 2005 Contact Information:ccdas@umd.edu The Robert Wood Johnson Foundation and US DHHS Office of the Assistant Secretary for Planning and Evaluation funded the CCDE. The Centers for Medicare and Medicaid Services (CMS) granted 1115 research and demonstration waivers to the Demonstration states and has provided ongoing oversight and technical assistance. The two funders sponsored the Interactive Data Website and Public Use Files, which were developed by the University of Maryland Center on Aging in collaboration with the Cash and Counseling National Program Office at Boston College. Cash & Counseling Interactive Data Website Introduction

2. Welcome to the Cash and Counseling Interactive Data Website  The data presented here on service utilization, consumer satisfaction, and service quality are intended to help several audiences.  Researchers may want to explore simple questions prior to conducting more complex analyses with the full public use data files.  Others, such as policymakers and program administrators, may want quick information on variables of interest.

3. What You Will Find on the Interactive Data Website  This site provides descriptive statistics and cross-tabulations of selected variables from the CCDE baseline, 4/6 month, and 9 month surveys for Arkansas, New Jersey and adults in Florida.  Chi-Square statistics and tests of statistical significance are presented for participants who were randomized to the cash option condition vs. participants randomized to the traditional services condition.  Numerous sub-group analyses are available, including sub- analysis by age, race, and living arrangement.

4. What is NOT on the Interactive Data Website  This site is not intended to substitute for the in-depth reports that have been prepared on many topics for this research project, (please see www.cashandcounseling.org).  This site does not present information about Florida children, program costs, or data from the paid and informal worker surveys.  This site is also not intended to substitute for vigorous on-going analysis of this data.  We encourage interested researchers to consider working with the full public use data files

5. What Variables You Will Find on the Interactive Data Website At right are the categories of data that are included on the interactive data website. Each category includes many variables, For example the category: Characteristics of client respondents Includes the following variables:  What is the client's gender?  What is the client's age?  What is the client's race?  Is the client of Hispanic origin?  Is the client married?  What is the client's educational background?  How does the client rate his/her health now?  Does the client live with others?  Does the client have any unpaid help?  How many unpaid helpers did the client have last week?  How many paid helpers did the client have last week?  Did the client have a representative at baseline?  Is the client a new or continuing PAS applicant?  In what type of area does the client live?  Has the client ever supervised a worker?  Has the client ever hired someone privately?  In what language was the interview conducted? Baseline data: Characteristics of client respondents Unpaid help Reasons for applying for Cash and Counseling Paid in-home care Use of services and modifications Current satisfaction Client health and functional impairment Four/Six-month follow-up data: Characteristics of client respondents Program participation Cash expenditure plan Uses of cash Employer responsibilities: recruiting workers Employer responsibilities: fringe benefits Employer responsibilities: help with recruiting Employer responsibilities: working Nine-month follow-up data: Characteristics of client respondents Client health, injury and functional impairment Receipt of cash and participation Client living arrangement Unpaid in-home care Paid in-home care Satisfaction with care and unmet need Equipment supplies and modifications Receipt of community services

19. Welcome to the CCDE Public Use Files The following data files are now available for the CCDE programs in Arkansas, New Jersey, and adults and children in Florida:  All consumer survey files (baseline, 4/6 month follow-up and 9 month follow up)  All paid and unpaid caregiver survey files  All consultant survey files  Medicaid cost data  Files and documentation associated with the development of each MPR report (the full reports may be found on the Cash and Counseling website)

20. Downloadable Files You Will Find on the CCDE Public Use Site Baseline Survey Files Arkansas Baseline File Florida Adult Baseline File Florida Child Baseline File New Jersey Baseline File 4/6 Month Survey Files Arkansas Four Month File Florida Adult Six Month File Florida Child Six Month File New Jersey Six Month File Nine Month Survey Files Arkansas Nine Month File Florida Adult Nine Month File Florida Child Nine Month File New Jersey Nine Month File Informal/Paid Worker Files Arkansas Informal/Paid Worker File Florida Adult Informal/Paid Worker File Florida Child Informal/Paid Worker File New Jersey Informal/Paid Worker File Consultant Files Arkansas Consultant File Florida Consultant File New Jersey Consultant File Analysis Files and Documentation Paid Worker Analysis Demand Analysis Medicaid Cost Analysis for Adults in 3 States Medicaid Cost Analysis for Florida Children 3-State Primary Informal Caregiver Analysis 3-State Paid Worker and Arkansas Analysis 3-State PAS Use and Quality Analysis PAS Use and Quality Documentation for Florida Children Florida Children Primary Informal Caregiver Analysis Florida Implementation Analysis New Jersey Implementation Analysis Arkansas Implementation Analysis Cost Data Arkansas Cost Data Florida Adult Cost Data Florida Child Cost Data New Jersey Cost Data

21. CCDE Public Use Files  A quick registration is required to download the public use files.  Files may be downloaded in SAS or SPSS format.  Additional documentation files, including the original survey instruments and variable frequencies, are easily downloaded from the site.  A FAQ link should answer many common questions about the data and its uses.