1. Participatory Medicine: How user-generated media are changing Americans’ attitudes and actions, both online and offline 6.10.08 Susannah Fox and Mary Madden Pew Internet & American Life Project Presented to: NIH

2. Participatory Medicine June 10, 20082 Who we are…

3. Participatory Medicine June 10, 20083 Where we live…

4. Participatory Medicine June 10, 20084 Watching the online audience grow 75% of adults in the U.S. use the internet  up from 46% in 2000 93% of teens ages 12-17 use the internet  up from 73% in 2000

5. Participatory Medicine June 10, 20085 Older adults still less likely to be online October-December 2007

6. Participatory Medicine June 10, 20086 Education still matters, too… October-December 2007

7. All Whites (76%) All Blacks (56%) English-Speaking Hispanics (79%) 75%* of the population reports using the internet or email. Here is a breakdown of use among different groups. (shown as a percentage of population online) 18-29 Years Old (92%) 30-49 Years Old (85%) 50-64 Years Old (72%) 65+ Years Old (37%) No High School Degree (38%) College Graduates (93%) <$30K Income (61%) >$75K Income (93%) Men (76%) Women (74%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org http://www.pewinternet.org ** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006. High School Graduates (67%) Urban (77%) Rural (64%) Suburban (77%) Spanish-Dominant Hispanics (32%)**

8. Participatory Medicine June 10, 20088 Then and Now… 2000 5% with broadband at home 50% owned a cell phone =slow and stationary connections 2008 55% with broadband at home 80% own a cell phone =fast and mobile connections

9. Participatory Medicine June 10, 20089 Mobile access goes mainstream 62% of Americans have some experience with “on the go” access to digital data and information

10. Participatory Medicine June 10, 200810 Does technology improve our lives? Attitudes about information technology How much, if at all, have communication and information devices improved … “A lot” or “Somewhat” Your ability to keep in touch with friends and family 81% Your ability to learn new things 79 Your ability to do your job 59 The way you pursue your hobbies or interests 55 Your ability to share your ideas and creations with others 55 Your ability to work with others in your community or in groups you belong to 55 Source: Pew Internet & American Life Project April 2006 Survey. N=3,355 for internet and cell phone users. Margin of error is ±2%.

11. Participatory Medicine June 10, 200811 What’s the big deal with Web 2.0?

12. Participatory Medicine June 10, 200812 How many of us are participating? User-generated content creation activities: % - Adult Internet Users Share something online that you created yourself, such as your own artwork, photos, stories, or videos 19 Post comments to an online news group or website18 Create or work on your own webpage12 Create or work on webpages or blogs for others11 Take material you find online – like songs, text, or images and remix them into your own artistic creation 9 Create or work on your own online journal or blog8 Those who have done at least one: 37

13. Participatory Medicine June 10, 200813 Content Creation: Age tells a different story

14. Participatory Medicine June 10, 200814 Youth of today, innovators of today

15. All Whites (76%) All Blacks (56%) English-Speaking Hispanics (79%) 75%* of the population reports using the internet or email. Here is a breakdown of use among different groups. (shown as a percentage of population online) 18-29 Years Old (92%) 30-49 Years Old (85%) 50-64 Years Old (72%) 65+ Years Old (37%) No High School Degree (38%) College Graduates (93%) <$30K Income (61%) >$75K Income (93%) Men (76%) Women (74%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org http://www.pewinternet.org ** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006. High School Graduates (67%) Urban (77%) Rural (64%) Suburban (77%) Spanish-Dominant Hispanics (32%)**

16. Participatory Medicine June 10, 200816 54%* of the population reports using a high-speed connection (e.g., DSL, cable, wireless) when accessing the internet from home. Here is a breakdown of use among different groups. (shown as a percentage of population using a high-speed connection from home) Whites (55%) Blacks (38%) English-Speaking Hispanics (57%) 18-29 Years Old (74%) 30-49 Years Old (62%) 50-64 Years Old (49%) 65+ Years Old (20%)No High School Degree (22%) College Graduates (74%) <$30K Income (40%) >$75K Income (77%) Men (58%) Women (50%) High School Graduates (43%) Urban (60%) Suburban (56%) Rural (42%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org http://www.pewinternet.org

17. Participatory Medicine June 10, 200817 Whites (74%) Blacks (71%) English-Speaking Hispanics (84%) 75%* of the population reports owning a cell phone. Here is a breakdown of use among different groups. (shown as a percentage of population owning a cell phone) 18-29 Years Old (88%) 30-49 Years Old (83%) 50-64 Years Old (70%) 65+ Years Old (50%) No High School Degree (63%) College Graduates (86%) <$30K Income (61%) >$75K Income (92%) Men (77%) Women (73%) High School Graduates (67%) Urban (79%) Suburban (77%) Rural (62%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org http://www.pewinternet.org

18. Participatory Medicine June 10, 200818 Thank you! Susannah Fox & Mary Madden Pew Internet & American Life Project 1615 L Street NW Suite 700 Washington, DC 20036 sfox@pewinternet.org mmadden@pewinternet.org 202-419-4500